Cerebral Palsy
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Legs in permanent cramped spasm - morphine prescribed. HELP

GTJGTJ Member Posts: 2
edited June 2014 in Cerebral Palsy
My daughter's legs are now permanently in spasm and she is in such severe pain the GP has prescribed morphine. This can't be a permanent solution. Does anyone out there know of specialist in muscle relaxants or any associated skill. (She is also taking Baclofen but that doesn't seem to work. She has had Botox injected into muscles but without effect)

Replies

  • NoahNoah Member Posts: 430 Pioneering
    Really sorry to hear about your troubles.
    A few questions.
    How old is your daughter?
    You say permanently in spasm, would it be worest or better if she had a hot bath or sauna?
    Have you considered any kind of music/art/dance theropy?

    What happens when she goes swimming? Does the water temrepure make any difference? Some people find that cold water brings them on, some people don't like hot water in the hydro pools.

    What does her physiophiest say? Maybe a nerologist is required.

    What is her mobility like?

    When I was very young I had horriable spasms durring the night, not as bad these days, used to last hours and put me in floods of tears due to pain.

    Is she any other drugs - I recently discovered that my spasms where being made worest by a sterod drug to for my asma, changed drugs and they improved.

  • GTJGTJ Member Posts: 2
    Daughter is now 47. Cannot walk or stand now. No physiotherapy. Swimming pools too cold for her. We are looking for a neurologist. She's not on any steroids. Takes Diazepam & Baclofen to try and relax muscles. Her spasms are worse at night. Now taking morphine for the pain.
  • NoahNoah Member Posts: 430 Pioneering
    Reflexogy can help + Regular massage treament. Try and create relaxing enviroments - Ostipathes are good at helping with pain.

    Offen it is not one magic drug or one change that will help, it is lots of little changes that will make the difference over a period of time. Keep a log of what is working is an idea, and build on it. Music thorapy can brighton mood and stimualate the muscle to brain connections and reduce spasm.

    I guess another option is a pain managment clinic.

    An Ocupational theopist is also very good and looking at how someone can be in less discomfot and add quality back into their life and reach ones indivaul protential, something that everyone should be entitled to weather they have a disability or not.

    Another idea - is to try out different types of chairs, beds etc to see if that makes a difference.

    You are probably doing most of these things already - Wish there was one magic drug cure, but there is currently not - or one that I have found! - from my exerperence it is a combination of all the seemly little things, that make the difference.

    Hope things improve for you - don't give up.







  • mafalamafala Member Posts: 72 Listener
    I would suggest to see an osteopath, if you can. Osteopathy might be able to help her. As you say, morphine is not a long term solution. I'm an osteopath in north east London. You can find someone near where you live at www.osteopathy.org.uk.

    All the best.
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