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Hi I just wondered had you come across any children with fragile x syndrome


  • paulaciaransmumpaulaciaransmum Member Posts: 2
    Hi I just wondered had you come across any children with fragile x syndrome ? My son is being tested for it and it seems highly likely that this is going to be positive. I want him to fit into as normal a life pattern as he can but he struggles with social occasions, is very short tempered and I suppose could be described as very immature for his age. Do you know of any organisations who provide chaperones or carers that would help him to access clubs and things after school, he needs supervision at things like this more than what the person who is running them can give him. So many questions to ask that I don't really know where to start, Thanks
  • ParentingAdvisorParentingAdvisor Member Posts: 16

    I'm familiar with Fragile X Syndrome and I advise you on how to help your son to become less upset his temper and behave more maturely. Is that something you would like? Unfortunately I am not able to answer your questions about chaperones or carers, but there are advisors in the Scope community who can point you in the right direction.

    Best wishes - Noel
  • ScopeHelplineScopeHelpline Member Posts: 209 Courageous
    Scope have some services that can provide a carer/chaperone to support children in after school clubs and activities. Unfortunately they are not a free service but can sometimes be funded by the local authority, and they do not cover all areas of the country. Please give the Scope Helpline a call or email and we can see if there is an appropriate service in your area: 0808 800 3333 or [email protected]

    Scope Helpline
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