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Would love to chat with other parents in the CP network.
My name is Jane I am Nics mum Nic is 34 years old I Nic was born with Spastic Cerebral Plasy and Epilepsy looking to meet other mums on hear as I need some support and advice with nic's care need changes as he's growing up can anyone help me in this area thank you Nics health has gone down hill recently with his breathing and seizure disorder would love to chat with other parents in the CP network.
Regards
Jane
Comments
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Hi @JaneNicsMum_34
Good Morning & Welcome!!!!!
It’s great to meet you today!!!!
I have posted some info below I hope that is ok???
https://community.scope.org.uk/categories/carers-of-disabled-children-and-adults
Can you please let me know if there’s anything else that I can help you with???? -
Dear Steve
Thank you for welcoming me into this group we have battled 34 years with Nic he is a inspiration to us all in so many ways he's a true fighter and a legend
I would like your help Steve please ??
Nic is on lots of medications and it would be great to talk with others that have issues with.....
Drooling
and Bad Breath I wish there was a cure its consent and I have tried all the mouthwashes and toothpastes nothing works
Regards
jane
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Hi @JaneNicsMum_34
That’s ok it’s my pleasure!!!!
Please please leave it with me if that’s ok ????
Thanks. -
Hi @JaneNicsMum_34, great to meet you!
You may like to chat with @Abigail, @Rcarter, @staceye83 and @garethbeach who have all discussed caring for children with CP in past discussions. -
There are surgical and drug interventions that can be effective in dramatically reducing drooling, see:
https://www.scope.org.uk/support/families/cerebral-palsy/drooling
Obviously not all interventions are suitable for all people so you will probably need a GP referral to a Consultant.
If the cause of 'bad breath' isn't obvious that may also need investigating further as it can be an indication of other health conditions.
Best Wishes
Jean
https://community.scope.org.uk/categories/ask-an-occupational-therapist
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
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