If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
I have Cerebral palsy and also have the Intrathecal Baclofen Pump
Options
sunflower23
Community member Posts: 15 Connected
Hi am sunflower
I have Cerebral palsy and also have the Intrathecal Baclofen Pump inside my back to help with muscle spasms in my legs and arms
If you like to ask me any thing please do about the pump sunflower x
I have Cerebral palsy and also have the Intrathecal Baclofen Pump inside my back to help with muscle spasms in my legs and arms
If you like to ask me any thing please do about the pump sunflower x
Comments
-
Hello @sunflower23, and what a charming ID that is. Welcome to the community. My beautiful, late daughter (in the picture) had CP among a number of other conditions, and many of her many friends were also sufferers. I had to look up 'intrathecal Baclofen pump' though
Is it working for you?
Lovely to meet you, Sunflower, and I hope we'll get to know you better.
Warmest best wishes to you,
Richard -
Welcome to the community, @sunflower23!
-
Thanks
-
Hi @sunflower23
i am 42 with spastic cerebral palsy and up until lately have always walked on my own. I have now started to have lots of issues with mobility having to hold my husbands hand to walk because my legs feel so stiff and heavy they just don’t want to move no matter how much I try. I am currently taking oral baclofen but it seems to be doing nothing. I am thinking of talking to a Nero doc about the pump. Would appreciate hearing about your experience with it.
Have a great day
amber -
Hi @AmberjoGood to meet you and thanks for posting. We have some information about Intracathal Baclofen that might be helpful to you. Also, the website of the pump manufacturers is interesting. http://www.medtronic.com/uk-en/patients/treatments-therapies/drug-pump-severe-spasticity/living-with/during-treatment-pump-replacement.html
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 767 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.