I have Cerebral palsy and also have the Intrathecal Baclofen Pump

sunflower23

Hi am sunflower 
I have Cerebral palsy and also have the Intrathecal Baclofen Pump inside my back to help with muscle spasms in my legs and arms 
If you like to ask me any thing please do about the pump sunflower x

JennysDad

Hello @sunflower23, and what a charming ID that is. Welcome to the community. My beautiful, late daughter (in the picture) had CP among a number of other conditions, and many of her many friends were also sufferers. I had to look up 'intrathecal Baclofen pump' though   Is it working for you?
Lovely to meet you, Sunflower, and I hope we'll get to know you better.
Warmest best wishes to you,
Richard

Pippa_Alumni

Welcome to the community, @sunflower23!

sunflower23

Thanks 

Amberjo

Hi @sunflower23
i am 42 with spastic cerebral palsy and up until lately have always walked on my own. I have now started to have lots of issues with mobility having to hold my husbands hand to walk because my legs feel so stiff and heavy they just don’t want to move no matter how much I try. I am currently taking oral baclofen but it seems to be doing nothing. I am thinking of talking to a Nero doc about the pump. Would appreciate hearing about your experience with it.

Have a great day 
amber

Richard_Scope

Hi @Amberjo

Good to meet you and thanks for posting. We have some information about Intracathal Baclofen that might be helpful to you. Also, the website of the pump manufacturers is interesting. http://www.medtronic.com/uk-en/patients/treatments-therapies/drug-pump-severe-spasticity/living-with/during-treatment-pump-replacement.html