Hi, my name is 1975! My daughter, 11, has CP and I want to find support for her

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1975
1975 Online Community Member Posts: 2 Listener
edited September 2021 in Cerebral Palsy Network
Hi , my name is Sadah . I am father of FARAH . She diagnosed CP since her 5th month . FARAH IS 11 Years now . 
Unfortunately,  I am so far from UK or US or any country may help such cases to be at least with a reasonable care . 
I am from SUDAN ??.  Working and living in Saudi Arabia for last 18 years. 
I am looking for any kind of guidance ? and help . And if there is a medical help can be provided by specific organisation or hospital please advice . 
Our plan as a family to just find a visa to one of countries we can be sure FARAH will be under a good medical and life care . 

Thanks for all . Hope all happiness to you   
.
Sadah,

(Removed by moderator, personal details)

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,123 Championing
    Hi @1975 welcome to the forum, I don't personally  know,  are there any in Saudi? 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @1975

    Welcome to the community, it's lovely to meet you and thanks for joining us.

    I am unsure of what support might be available in your country, is it possible for you to speak with a health professional at all about your daughter's CP to see if they can advise at all? 

    Just to let you know, I have removed your email address from your post, because we do not allow personal details on the community in accordance with our guidelines.
  • chiarieds
    chiarieds Online Community Member Posts: 17,108 Championing
    Hello @1975 - & welcome to the community. Perhaps CMRC in Saudi Arabia may be able to help (between Dhahran and Al Khobar). They treat cerebral palsy in their outpatient service. Please see:https://cmrc.com/facilities/saudi-arabia/

  • 1975
    1975 Online Community Member Posts: 2 Listener
    Thank you all for valuable response ! 
    @chiarieds / @Sandy_123 :smile:
    Thanks for your concern. CMRC is a good ? rehabilitation center . Honestly it is a high price center . And we already completed a therapy course for my wife (after disc operation) . 
    One of the main problems is the cost and also the lifestyle will not allow you as a parent to take care of a disability case in your family ! 
    Thanks for the advice dear  

    @Ross_Scope . Thanks a lot for your message.  And remind my of personal contact issue . 
    FARAH Since diagnosis is following with Pediatric Neurologist . And taking treatment to control epileptic seizures . She is fine thanks god  
    As my first post . The life here can't provide any mentioned progress to her unfortunately. 

    Thanks for all.