Hi, my name is angelina22! Anyone with fibromyalgia been turned down for PIP?

angelina22
angelina22 Community member Posts: 2 Listener
edited September 2022 in PIP, DLA, and AA
Hi I am keen yo hear from people with fibromalgia who was turned down for pip I never received 1 point in an assessment found it totally disgusting and degrading going to appeal I'm 61yrs old thanks 

Comments

  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello and welcome to the community @angelina22 and thanks for explaining what's happened. I'm so sorry to hear about your PIP claim, it can be really upsetting news when it's refused. 

    If you'd like to chat with other members about what to do if you'd like to challenge the decision, then do head over to our PIP category for advice. 

    If you'd like to connect with other members who have Fibromyalgia, you can visit our Chronic Pain and Pain Management category to share your experiences.  

    To have a look around the rest of the forum, here's a few of the best places to get started:

    • Recent discussions is where you'll find all the latest conversations our members are having
    • The categories page shows all the different topics for discussion
    • The virtual coffee lounge is a place to chat, get to know other members, and play games too

    I hope this community can act as a place of support for you, and please don't hesitate to reach out of you need anything :)

    Alex
  • poppy123456
    poppy123456 Community member Posts: 59,054 Championing
    edited September 2022
    We have quite a few members here that have Fibro, myself included but i have other conditions too. I've claimed PIP since 2013.  It's worth remembering that PIP isn't awarded based on any diagnosis. It's how those conditions affect you against the 12 PIP activities.
  • angelina22
    angelina22 Community member Posts: 2 Listener
    Thank you I have other conditions as well ie bowel disease asthma depression hypertension.along with fibro they can't tell me I don't have difficult days  as we all know fibro is just exhausting pip needs to know we are human beings and not just points x
  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    Many people feel the same way as you @angelina22. I know that doesn't take away the frustration, but I hope that it helps you to feel a little less alone.

    How have you been finding the appeals process? 

    Are you receiving enough support to help you manage your conditions, including your depression?

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