Hi, my name is JNawaz! CP and SDR Surgery?

JNawaz
JNawaz Community member Posts: 1 Listener
edited October 2022 in Cerebral Palsy Network
Hi folks. I'm the parent of a 4 Yr old boy who has PVL grade 3 Cerebral Palsy. Lower legs effected so doesn't have flat feet and doesn't walk without aid of his kayewalker. We have had botox injections which helped very little. We have now been offered SDR surgery in Nottingham. Would be great to speak to people in similar situations or any1 who can advise or help in anyway. 

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello @JNawaz and thanks for your query, I've moved it over into our CP category so it's easier for members to share their thoughts :) 

    I have CP myself, but I've got no experience with SDR surgery, so I'm afraid I can't answer your question directly. I will tag my colleague @Richard_Scope who I'm sure can point you towards so helpful resources, and lend his advice!

    Let us know if we can help with anything else in the meantime.

    Alex

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