Disability
Discussion List
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LCWRA back payment
Hi everyone! I was hoping to get some advice regarding LCWRA. So this may be a weird one as ive looked at alot of posts and cabt find any answers Ive been on a fit note with UC since 21 june 2023 and they never suggest, bought up, told me about or sent me for a lcw assessment So i started asking in my journal for an…
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Disabled Bus Pass
Hi, I have anxiety and depression plus COPD. I have to use a walking stick when out due to breathlessness. I am currently receiving enhanced daily living and enhanced mobility on PIP. The problem I have is that my award is only 4 points for mobility ( I put the wrong walking distance down on the form). I have 10 points for…
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Carers element backdating
Hi im new to this ive been on UC since 2022 and i have been caring for two of my sons whom one is receiving middle rate care and other higher rate PIP since the start of my claim. I wasn’t aware of the carers element which i was entitled to so i asked them to backdate it from Aug 2022 but refused because i ticked caring 35…
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When the daily struggles are taking over
I want to re-apply for PIP as I feel like the daily struggles are taking over on the mobility front, as my arthiritis is getting worse, but I work too and I feel that I would be rejected. Any tips please?
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ESA TO UC FINANCIAL ASSESSMENT
Hi please help. I Have just had to move from esa to uc my disability components were included for my financial assessment but reading into they are not on uc, I know I get the same money as before but now I will have to pay around £80 a week
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cp inclusion
hi there, I am an undergraduate student wanting to conduct research on cerebral palsy as it is understudied. I aim to bring awareness to what needs to be improved in education to make it more accessible and inclusive. I kindly ask if you could have a look at this survey and if you know anyone who fits the criteria and pass…
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Change of circumstances
Hi guys, I have had a determination and then a re determination both concluded that I would be awarded standard daily living even though I submitted letter and doctors lines that I cannot walk due to dizziness and most days cannot get out of bed along with all the other descriptors my condition limits me to basically do…
- Carpets
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Claim review
Ive been receiving lcwra since August 2025 and I've now been told that they're doing a claim review to make sure I'm getting the right payments. I've already sent 4 months worth of bank statements which they asked for and I now have a phone call booked for next week which says will take 60 minutes and that I need to…
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Save the Date: Journeys for Everyone – Accessibility Summit
Have you booked your space yet? Come and join us next week. Are you ready to help shape the future of accessible transport in the West Midlands? Transport for West Midlands (TfWM) invites you to join us for the Journeys for Everyone: Accessibility Summit on Wednesday 11th February 2026 Time: 9.30am - 3.30pm Venue: WV1…
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Reaching out
Hi, I was diagnosed with COVID October 2020 and within weeks of the effects staying with me, got the dreaded Long COVID diagnosis. Here I am 5 1/2 years later, still struggling daily and feeling like I'm getting worse, not better. No taste. No smell. Chronic aches and pains. SOB. Now being treated for COPD. Struggling with…
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LCWRA Backpay
Hi, I’ve been in LCW since June 2022 and was just awarded LCWRA. I sent in my reassessment forms in March 2024 with worsening conditions but no fit notes and no change of health on my UC account but only had the phone assessment in December 25. Found out last week they have awarded me LCWRA and have backdated it for a…
- Mom with child of server disability
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RIghts & CHoices to maternity care for women with cerebral palsy video
This video was made by Dr Sonali Shah with the support of Scope, CPAAUK and ScienceExplained. It is part of a NIHR funded project to explore access and utilization to maternity care for women with CP. It is informed by interviews with women with CP talking about barriers and facilitators experienced during pregnancy,…
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People refusing to let me be more independent with my Cerebral Palsy
Hi I wanted to start this discussion because I have been thinking about my own independence. I would love to learn to drive but problem is I have people telling me that I can't do it because I have a weakness in my right side and it annoys me when people like my family say you can't do this you can't do that. I have…
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Struggling with autism
Hi all, I’ve recently been diagnosed with autism (not a surprise) I am comfortable with my diagnosis however I can’t help but feel really stuck and lost. I wanted more for myself, I wanted to travel and experience different cultures and experience new things but my autism really holds me back. I never wanted to climb the…
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Interesting Article In The Independant Yesterday Regarding DWP Assessors
https://www.independent.co.uk/news/uk/home-news/dwp-benefit-pip-wca-assessment-lcwra-timms-b2910935.html
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Adult pads
Hi everyone I could really do with advice. I care for a family member who is double incontinent bit the local continence people will only allow 4 pads a day. Years ago it was 3 but they grudgingly increased it. I can't leave him in soiled pads, his skin burns etc. He is getting through 6 or 7 a day. We are having to self…
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Is this harassment?
I am writing on behalf of my mum as I am dealing with everything as she is very unwell. She has bipolar, agoraphobia and severe anxiety. In Nov 25 UC requested a review, she had already had one just under a year previously to this request although they didnt ask for bank statements prior this time. I explained she was in a…
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Making new friends
Hi my name is Marrianne & I am a 51 year old female with numerous physical/mental health disabilities which make me housebound and I am looking for like-minded people to make any friends who are Open-minded/Accepting & Unbiased within the community as I do not have any friends or family around me & miss being social.
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Uc - do I have to do what a job coach tells me if I've sent in a fit note?
HHi im waiting for a uc50 form disability capability assessment and I have waiting since December 2024 I am currently on Uc and been forced into a job club called akg and ive been penalised i am doing volunteer work and at college but its very hard being at te job club being penalised I dont know what to do the man at akg…
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sos pls i need help! backdated sdp now on uc
hhello I'm new & I'm in need of some advice if anyone knows I'dappreciateany help or advice etc ....so I was on job seekers but was getting the top ups but even though i started to recieve pip enhanced daily living fr9m 2014 i never got the sdp until 2023 i was then moved to uc & given the transitional protection payment…
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Just wanted to say hello
I wanted to say a big hello from the southwest of England. I’m happy to be part of your community. I’m also looking for a new role to be part of this project in a lived experience and frontline experience way as I have many years of experience working with vulnerable people seeking who are seeking support and advice. I am…
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AllWays Travel🏖️
AllWays Travel is an independent UK travel agency with a strong focus on accessible and inclusive travel. Alongside this, they run Accessible Housing Scotland, where they support clients with complex access needs to find and adapt suitable homes. Through that work, travel has come up repeatedly as something people want to…
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Help when need it
Cruvery woman
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Engaging for a more representative public image
Hi, I’m Eryn, a French student! I’m in the British section of my international school so I have a World Issues exam at the end of the year. I chose as the topic of my oral the public image of disabled people in Britain. My choice is motivated by a family member who has a disability, so I wish to help by shedding light on…
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Growing up with cerebral palsy, then, now and what comes next. Podcast
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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just need little advise
Im quite confused my pip awarded was to end 11 jan 2025 so sent in the renewal form 2024 june they extended it until Jan 2026 I did my telephone assessment just two weeks ago then I got a letter just saying that its awarded from may 2024 until Jan 2027 thats it Im so confused as I cant go through this all again its not my…
Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…