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Scope's CP Network FIRST MEETING TONIGHT!
Hello all, i'm all set for the first CP Network meeting through Scope! Who else will be joining? If you're interested in joining, i'm sure @Richard_Scope will be happy to share all the necessary details. I hope you're all enjoying the weather too? Michael
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First time COVID infection and CP
Hi! I tested positive yesterday and I’d consider my experience so far no different than a flu would be for me usually. Should I still go for Paxlovid and what other recommendations do you guys have? I’ve not yet been able to reach a medical professional. Any and all experiences are welcome.
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Why Self-employment works for me
Vicki Wilson shares why she started her business - Admin Fairy and the opportunities it has given her to support other disabled people manage her cerebral palsy. [picture of Vicki. Vicki is smiling looking at the camera. Vicki is wearing glasses, gold earrings and a yellow hoodie} I’m Vicki Wilson, I run my own Virtual…
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Being Myself The New Song
Posted on behalf of Alfie Draper. My name is Alfie Draper I’m 24 years Im a singer song, writer, and performer with mild cerebral palsy and visual impairment. I’m from West Malling in Kent. And I want to use my music as a platform to show people that anything is possible, no matter what your circumstances are. Just be…
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Scope's Cerebral Palsy Network
The Cerebral Palsy (CP) Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales. Who can join? You can join the network if you: are 18 years or over have lived experience of CP, or support someone with CP. Including family, friends, partners or…
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CP and Seizures advice
This is just a general query to see if anyone here has both of these conditions. I'm 36 year old, have mild cp affecting right side, I had a TC seizure when I was 10, but after scans and tests came back all clear, parents were informed this most likely one off and would grow out of it. Fast forward to now, after having…
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Medical negligence
Hi, my daughter was diagnosed at 8 months old, she is now 7 years old. Does anyone know of any really good solicitors? I've tried erwin Mitchell, field Fisher, slators and Gordon's and boyes Turner. I don't even mind to start paying, I just need someone good to fight my case.
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Guildford man with cerebral palsy accused Asda of discrimination after shopping delivery cancelled
Article from SurreyLive A disabled man from Guildford has accused Asda of discrimination after a delivery driver cancelled his order just metres from his home. Daniel Jakus, 25, has cerebral palsy and was waiting patiently for his order at his flat on Epsom Road when he received a call from the delivery driver. Describing…
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Adaptive Underwear for Disabled Women
Getting dressed is one of the most personal things we can do, and for many people with cerebral palsy, it’s painful, difficult, or impossible to do independently. That’s where Nicole Cuervo and her company, Springrose. Springrose’s mission is “to design intimate products that champion resiliency and respect dignity.” And…
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Bobath Want Your Views
At the National Bobath Cerebral Palsy Centre, we are here to support people of all ages with cerebral palsy and other neurological conditions and work with health and social care services. The COVID-19 pandemic and the cost of living crisis have both had a big impact on people’s ability to access the support they need. We…
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Tom Somerset-How: I want to help after suffering years of abuse
TW: This story contains content that may be upsetting. By Nikki Mitchell & Christian FullerBBC News Abused, left without sufficient food and drink and forced to live in squalid conditions. Tom Somerset-How had been living a nightmare of physical and psychological abuse at the hands of his wife and carer for four years. Mr…
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Lower Back Pain and CP. My CP Webinar Series
Join us on Wednesday, July 19, at 8 pm ET to watch Julie Stutzbach, PT, DPT, PhD, present her new study concept to members of the CP community. Chronic low back pain is a common problem in adults with CP. It leads to increasing disability and functional decline. Improving pain management strategies is critical to improving…
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Athetoid cerebral palsy in your 50s
Hi all I have athetoid cerebral palsy, it effects my left forearm and hand causing tremor, balance effected but I can walk but can't ride a bike, coordination difficult, impaired speech and have difficult controls my facial expressions. I can sometimes swallow incorrectly, and while my fatigue has always been there it so…
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The National Bobath Cerebral Palsy Centre Open Day
You are invited to Save the Date The National Bobath Cerebral Palsy Centre Open Day We’d be delighted if you could join us on World Cerebral Palsy Day, Friday 6th October, as we open our doors to the community and invite you to discover the inspiring work we do at the National Bobath Cerebral Palsy Centre. Our Open Day…
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Invitation to Help with Research on Eating and Drinking Sussex NHS
Testing out EDACS as a self-advocacy tool for
adults with CP Can you help us? We are
conducting a research study to see whether a rating scale for eating and
drinking ability, already being used with children, might be a useful tool for
adults with CP. The idea is for people to use it when talking to doctors,
speech and…
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Join the Young People Advisory Group for two new cerebral palsy trials!
Are
you aged 14-21 years with cerebral palsy (CP) and able to walk? Would
you like to help
make two new research studies for children and young people with CP fun and
interesting to take part in? The
SPELL trial will
find out if an exercise programme to stretch the muscles of young children with
CP is better than their…
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Join the Parent Advisory Group for two new cerebral palsy trials!
Are
you the parent carer of a walking child or young person with cerebral palsy? Are
you interested in helping improve outcomes for children and young people with
cerebral palsy? Would
you like to share your experience and interest to contribute to two new
research studies for children and young people with cerebral palsy?…
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Hi, my name is Dundas! My grandson is showing signs of Cerebral Palsy
Hi, I am new to the community, but have severe concerns regarding my grandson who is 2 and a half and show signs of cerebral palsy. He is a twin and can not speak apart from a couple of words, whilst his twin sister is now talking in sentences. He is constantly falling over and carries his right arm at a right angle to his…
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Research Project to Design a New Piece of Accessible Technology
Enayball is a design house looking to shake up the assistive product space by designing innovative, aesthetic, truly useful products. We are looking for participants for a research project to design a new piece of accessible technology.If you would be interested in taking part in the research project please fill out this…
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Cerebral Palsy Football Camp
Cerebral Palsy Football Camp for Boys and Girls aged 5 to 11 years old. Monday the 14th to the 17th of August at Sandon Park Nuneaton. What you can expect: * fun and engaging games * research and informed coaching practices * activities tailored to each child's needs * caring and specialised coaches that are F.A. qualified…
