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Ataxic Cerebral Palsy
Does anyone on here have Ataxic CP and would you mind please sharing your experiences of it and in what ways it affects you? My CP affects my balance and coordination. I have low tone and the floppy muscles. I turned 40 late last year and early this year I had an unexplained injury which turned out i had torn a muscle in…
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Falling through the gaps? A closer look at NHS Continuing Healthcare
NHS Continuing Healthcare (CHC) is care funded by the NHS but provided outside of hospital for people with significant ongoing care needs. Ahead of our further work on the subject, Rachel Hutchings and Miranda Davies explain how eligibility for CHC is decided, what the data tells us about eligibility and access over time,…
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CP Network: Let’s talk about Volunteering on 12 June 2024
Join us for our CP Network session on June 12, where we will focus on Volunteers Week 2024. We are excited to announce that Rachel Haine, the Volunteering Development Coordinator at Scope, will join us to discuss volunteering and its benefits. Mark your calendars for Wednesday 12 June from 6pm to 7pm. Looking forward to…
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Hey everyone! New here and struggling with life.
Hey everyone I'm new here I have CP and depression and Anxiety, anger management issues. Having this disability really effects my mental health negatively. It's hard to cope really and who else here has panic/anxiety attacks everytime they leave the house? 👋 I went to pick up my prescriptions today and I get stared at…
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Right Sided Hemiplegia.. Pain in Left Knee
Hi. I have right sided hemiplegia and for the last 47 years have managed reasonably well with physical tasks. There are some limitations but with support, I’m ok. This past year I’ve noticed pain in my left hand and diagnosed with arthritis. I was told this is general wear and tear. Recently my left knee has started to…
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20 Best Cerebral Palsy Books of All Time
Discover the most recommended cerebral palsy books, and pick the right one for you. As seen on CNN, Forbes, and Inc, BookAuthority features the books experts recommend .20 Best Cerebral Palsy Books of All Time
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At a stage where we are wanting to learn more about CP and seek support
Hey everyone. This is my very first post here.. so please be gentle :) Our story. My wife and I noticed when my son was 3 or 4 months old that he wasnt using his right hand as much as his left. We figured that it maybe preference. But took him to the doctors... She said she wanted to give him a few months and see if there…
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Parent needing advice and guidance.
Hi all My little boy (13 months) recieved his CP diagnosis 2 months ago. It has been a lot to process over the last 2 months and we are always learning about him and his condition. The reason for my post is i would love to meet some parents who have experienced this and could help with any advice guidance tips etc because…
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The Challenges of Being a Parent with CP - Online Panel Event - 28 June 2024
The Challenges of Being a Parent with CP - Online Panel Event - 28 June 2024 Can people with cerebral palsy have children? Should they?! Having a child is one of the most important steps in any adult's life and one of the greatest physical challenges a woman will face. Having a child when you have a complex disability such…
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Adult Cerebral Palsy Reviews from The Bobath Centre
At Scope, we recognise the importance of annual reviews in helping adults living with cerebral palsy maintain their independence and the life they choose. We are proud to support Bobath in offering this service to the adult cerebral palsy community. Have you ever wanted to discuss your cerebral palsy with someone who…
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Watch "Cerebral Visual Impairment and CP" from CP Research Network
This webinar features Corinna Bauer, PhD, Karen Harpster, PhD, OTR/L, and Michele Shusterman, who are developing a study of visual impairment across the lifespan. They will discuss basic concepts about visual impairment and the state of treatment and research for visual impairment in the CP population from both clinical…
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Any chance of Cerebral Palsy being missed or misdiagnosed in childhood?
Hello everybody, first post here, thanks for letting me in :) I'm concerned about my son and wanted to ask those of you with first hand experience what you think. My lovely lad is 22 and is diagnosed with autism, learning disability, 2 different kinds of epilepsy (one confirmed, one suspected), sensory processing disorder,…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral PalsyLucy James Cerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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CP Network: Let’s talk about Mental Health on 8 May 2024
Join us for our CP Network session on May 8th, where we will
be focusing on Mental Health Awareness Week 2024. We are excited to announce that Liz Whiteley, a Registered
Member of BACP and NCPS, will be joining us to discuss the importance of
seeking disability therapy. Mark your calendars for Wednesday, May 8th, from 6pm…
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Issues with length of appointments for people who use communication aid (AAC)
I'm not going to name and shame, but just want to flag up an issue that is currently affecting my adult son who has CP and uses AAC (no speech). He has some mental health issues which we have struggled to find the right support for (another story for another time) and over the last few months he has been accessing some…
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Dsytonia with CP and post impairment disorder
Just an update of previous discussions, from the xray and letter from the London University hospital. It clear that have dsytonia too which make sense as it effects my facial expressions, speech, and high tone causing my jaw to pop out and causing me discomfort while eating in right jaw and effecting my ear. Also the xray…
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Medication for depression with cerebral palsy
I’ve tried a few different ones now but can’t seem to find the right medication that dosent give me more spasms and cramps
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Foot Health and Cerebral Palsy Research
Foot Health and Adults with Cerebral Palsy A report assessing the responses to the call for evidence identifying the need for Podiatry in Adults with Cerebral Palsy. A survey was conducted with the help of Scope and CPAAUK. This project started in 2023 as a result of several members of Cerebral Palsy Adults Advice UK…
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Has anyone else with CP (which affects their speech) ever had problems with their jaw?
Hi - I've just joined this forum, I should have done it sooner, like most things but due to always being busy with work it never got done - at the moment I am off work for a week so have more time Since about June 2016 I have been having problems with my jaw, initially it just locked which was annoying but something which…
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Post Impairment Syndrome and Cerebral Palsy
A common condition that adults with Cerebral Palsy live with, post-impairment syndrome, is a collection of symptoms and health problems that cause a great deal of discomfort, pain, and trouble with mobility. The exact issues this condition causes vary by individual, but often include fatigue, joint pain and arthritis,…
