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Christmas Cracker with Bobath
Bring your party hat and your Christmas jumper and join The Bobath Centre's Rajkumar Rajan and Helen Foale for an afternoon of Christmas questions, fun, games, and surprises. Join us for free! Sponsored by Scope
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Hi, I'm Rachel, My sister has cerebral palsy. I am on here representing both of us.
My sister has cerebral palsy. I am on here representing both of us, until such a time as using IT becomes easier for those that can't read or write. It is great to meet you all and we are really enjoying hearing about the the services we didn't know about (Disability Plus for example), and the updates on progress (or not)…
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Royal College of Speech and Language Therapists dysphagia/eating drinking and swallowing project
Royal College of Speech and Language Therapists
payment guidance for the dysphagia/eating drinking and swallowing guidance
project Why is
the RCSLT involving service users in this work? The RCSLT
is proud of a profession that incorporates service user preference as a key
part of evidence-based practice and service…
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NICE Published Guidelines for Adults with Cerebral Palsy
Today NICE has published the final recommendations for the NHS with regards to adults with Cerebral Palsy.Here is an overview of the recommendations:Cerebral palsy in adults: the care you should expect Cerebral palsy is a lifelong condition caused by a problem developing in a baby’s brain around the time of birth. It…
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Bobath and JMW Solicitors legal support
If your family has been affected by #cerebralpalsy, you're likely to have questions about your legal rights, as well as the care and support options available to you. Next week, JMW and our partners at the National Bobath Cerebral Palsy Centre will be hosting our Facebook Live cerebral palsy legal clinic, and we'll be…
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Growing Up Well with Cerebral Palsy: Improving Nutrition, Health, and Wellbeing
The Cerebral Palsy Research Network is excited to announce its November MyCP webinar entitled “Growing Up Well with Cerebral Palsy: Improving Nutrition, Health, and Wellbeing” with Dr. Richard Stevenson, Developmental Pediatrician and Division Head – Neurodevelopmental and Behavioral Pediatrics at the University of…
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My Name is Luca: Cerebral Palsy and Me e-book
Hi, I am Vivian Maeda, I have been campaigning for a more inclusive society for many years. I am a great believer that awareness sessions, education, offering a space to talk about diversity are key towards achieving that. And early engagement is key to form a more inclusive community. I did not know much about Cerebral…
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Do not want male carers
The care agency that I am with now has said I haven't got the right to say that I do not have male carers looking after me the CQC has started I have the right to do so the care agency I am with now has told me that I don't have the right to request all female caregivers. However, the CQC states that I do have this right.…
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Impact of Cost of Living Crisis on People with Cerebral Palsy 2023
Impact of the Cost of Living Crisis on People with Cerebral Palsy 2023 Deadline 13th November 2023 If you’ve already completed our survey, thank you very much indeed! Action is urgently needed from the Government to support those living with cerebral palsy and other disabilities. We’ve extended the deadline for our survey…
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CP Sport and Frame Football
CP Sport would like to find out about what you know about CP and Frame Football. Please complete the following short form to help us gain a better understanding of your awareness around the sport. Please share for wider reach. https://surveymonkey.co.uk/r/L3LSTSB
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People disrespecting boundaries- leaning on or moving my chair without permission
Hello. Has anyone else experienced people moving your chair without asking or leaning on it (because it is more comfortable’)? This happens a lot to me especially with family and they don’t seem to respect or understand boundaries in the same you would about body or tactile contact! It’s very frustrating and they are very…
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CASCAIDr Conversations on Social Care
CASCAIDr Conversations: Podcasts on Principles! At CASCAIDr, we know how the world of adult social care can seem impenetrably surreal – and how the reality is often very different from the rhetoric. We think people could do with a refresher on the underlying principles, which come from a set of rules called ‘public law’.…
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The effects of anesthesia in a person who has cerebral palsy
I would like to know Why do you have to tell the anesthesiologist that you have cerebral palsy Because I am very worried every time I have surgery I had the first operation it was a circumcision at the age of 7.Then, around the age of 9, I had surgery on my right foot by an orthopedist. He pulled my archilles tendon. Third…
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'It started when I was a teenager' - woman with cerebral palsy speaks on hate crime she faced
A woman with cerebral palsy shared her ordeal of how one of the students in her class "threatened to take her off the wheelchair". A recent report from charity Leonard Cheshire found fewer than 2% of disability hate crimes end up being in court despite over 11,000 incidents getting reported last year across England and…
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Hi, my name is mumlove! I support my daughter who has CP
Hi, I support my daughter who has CP. She was diagnosed at birth, due to her birth experience. I love her and support her but she’s 24 years old now and it can be hard, especially as her circle of friends/trusted adults who understand her is so small.
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Rachel's Disability Skiing Adventure
Hi, my name is Rachel Bailey. I have Cerebral Palsy, a wheelchair user, and I love to Ski! I have been skiing for 15 years. I have also been on many ski holidays abroad which I absolutely love. A couple of months ago I wanted to come up with a challenge to keep active and push boundaries about adaptive skiing. I started my…
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Woman with cerebral palsy lands first job at the age of 36 after years of discrimination
Article from Mirror.co.uk and the charity Sense. Written by Husna Anjum Jade Cotton, 36, is celebrating her first job in years SenseA woman with cerebral palsy is thrilled to have landed her first job after years of being told she wouldn't be able to work due to her disability. Jade Cotton, 36, faced numerous rejections…
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MyCP Webinar: Classifying Pain in Adults with CP
The Cerebral Palsy Research Network has released a video on about classifying pain in adults with cerebral palsy. <div class="post-text-align-center"> https://youtu.be/kaNNeZL6a6w?si=fpyu6Sfgyit3tcf6</div>
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How Non-Progressive is Cerebral Palsy?
Our friend Sam from Inclusfit asks the questions. It is well-known in the medical profession that cerebral Palsy is non-progressive…. But how non-progressive is cerebral palsy? How does the ageing process make it progressive? How vital is strength training as we age? Cerebral Palsy is non-progressive with the brain damage…
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Impact of the Cost of Living Crisis on People with Cerebral Palsy 2023
A Special Survey from The Bobath Centre Impact of the Cost of Living Crisis on People with Cerebral Palsy 2023 The country is in the middle of a cost-of-living crisis and action is needed from the Government to support those living with cerebral palsy and other disabilities. The Bobath Centre urgently needs to know how the…