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A Look At Adult CP Research
On February 8, 2022, experts from the University of Michigan shared insights about care and treatment for adults with CP, as well as ongoing and emerging research that will be helpful for the adult community. Find the transcript to follow along here: https://adobe.ly/3tdZHFD https://youtu.be/9BR0NSfUePw</div> The research…
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Move More March This Cerebral Palsy (CP) Awareness Month
Did you know exercise is vital for CP (Cerebral Palsy)? They go hand in hand like a perfect fitting glove. The less you move the worse your CP will be but the more we move the better our CP is. I am Sam, for those that do not know me I am a fully qualified level 4 neurological personal trainer & fitness instructor and I…
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New to scope. Aging and CP
Hello, I will be turning 50 this year, I know we all slow down as we age, but the older I get, the more my cp (spastic diaplegia) is impacting on my life. I'm glad I've finally logged on! I've already seen your video on aging and cp and I hope to find support and laughs along the way.
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Support for children with CP
Hello, My toddler has CP (hemiplegia). We're considering moving back to the UK, from Canada. He currently gets a range of services / therapies through state health provisions here. I'm trying to get a sense of what is provided thru the NHS, what waiting lists are like and if we need to brace ourselves to privately cover…
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I have CP hemiplegic. I have anxiety and low self esteem. Has anyone had similar experiences?
Hi my name Chuck I have cerebral palsy hemiplegic affects right side I have anxiety low self esteem in socially i am independent I emotionally struggle socially perception of me have other people had similar experiences how have cp community had experiences and thoughts? I had bad experiences in life i I just got turn…
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Free Webinar Talk with Tully Kearney MBE
The first in a series of events coming up is a free webinar featuring Tully Kearney MBE, Paralympic Champion. The webinar is on 10th March 6-7 pm – hope you can make it too! Register here: https://cpsport.org/events/?category=Webinars [Tully Kearney sitting in her wheelchair holding her gold and silver medals on a green…
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CP?
Hi, I’m hoping some people can offer advice! My little one is 5 months and sometimes feels really stiff, and other times not. Her stomach is weak. Like once I had to use full force to lift her arm up. I first noticed things where odd when she looked asymmetrical, the left shoulder appears internally rotated and hand is 80%…
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An Afternoon of Dance, Food, Fun & Games!
CP TEENS UK & THE NATIONAL BOBATH CENTRE FOR CEREBRAL PALSY BRING YOU AN AFTERNOON OF DANCE, FOOD, FUN & GAMES! Register: www.cpteensuk.org/events We are delighted to announce that we have partnered up with National Bobath Cerebral Palsy Centre to bring you a fantastic afternoon of fun at the national centre in Watford!…
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Cerebral Palsy and Core Stability 25th February 2pm
Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath neuro-physiotherapist and members of our Bobath team, you can ask us any burning questions, join the discussion and gain some general coping…
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Adaptive Yoga Live
NEW TEACHER ALERT: We are so excited to welcome a new teacher to the AYL team! Lin Leong specialises in rehabilitation - working with people who have neurological conditions. Lin has over 25 years of experience as a Physiotherapist within both the National Health System and private practice. She is also a yoga therapist…
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Hi, my name is Celi54! I'm CEV, and worried about returning to teach tomorrow
I am a 54 year old with CP who was born 3 months prematurely in 1967. Decreased lung capacity means I’m CEV. I am also a teacher facing going back to school tomorrow (including whole school inset) so even with 2 vacs and booster I’m pretty terrified and thought I’d come here for some friendly support!
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A 13 year old I'm supporting would like to talk to someone else with CP about her personal identity
Hi, I am supporting a 13 year old with CP and she would like to talk to someone about her personal identity as she is finding it hard to meet people with life experiences in common with hers. Are there any groups/forums that we can look at together?
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Overnight care/nanny services -- information sought
We are looking for potential overnight support/care for our 11yr old youngest son who has cerebral palsy. Can anyone please recommend any reputable websites or contacts where we might be able to find a suitable nanny. Based in south bucks. Many thanks.
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Mild Cerbral Palsy
Hi, My son is 18 months old and i noticed at 9 months old that he did not use his right hand. It was such a struggle to get the professionals to take me seriously. He has finally been diagnosed with mild cerebral palsy of the right hand side that affects his right arm, hand, leg and foot. I am still fighting for physio and…
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Hi, my name is MaddieMaddie! I am the mother of a one year old girl who has CP
Hi!I am the mother of a 1 year old girl.She is diagnosed with CP in all 4 limbs. She can move all of them very nicely,but every time the physiotherapist comes to see her she gets stiff as a rock and screams her heart out.I can manage to calm her down,but the physiotherapist recommended Baclofen.She has requested in a…
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Anti spasm medication prn
Hi, my name is Lisa and just wondering whether there is such a thing as anti-spasm medication where you can take it as and when you need it rather than taking it on a regular basis? Any advice would be appreciated
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Cerebral Palsy Often Genetic, Study Finds
New research suggests that as many as a quarter of cerebral palsy cases are related to an underlying genetic condition. Researchers sequenced the DNA of 50 children and adults with various types of cerebral palsy. About half had no known risk factors for the condition while the remainder were either individuals with a risk…
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How do I find someone who will accept me as I am?
I'm wondering if there is a method of meeting young people with mild cerebral palsy and ASD.. without using a dating app such as Tinder.
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University of Worcester CP Football Team 2022
Please come and join us at
our University 3G pitch for our first training session every Wednesday from 12th January 2022! Anyone with
cerebral palsy or a diagnosed mobility impairment is welcome to attend our free
introductory event to get involved and hear more! Sessions will be led by 3rd
year coaching student Harry…
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Post impairment syndrome
The article on the post impairment syndrome was very interesting. I have being experiencing all of the mentioned symptoms for the last two to three years. I don't think lockdown helped. I had to highlight this to my GP and her answer was antidepressants ? To manage my fatigue. How do others manage their fatigue. I am glad…
