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Poem called My experience Living with Cerebral Palsy
A poem called My experience Living with Cerebral Palsy A young man called Jay. He remembers the negatively that used to surround him about having cerebral palsy. I am proud to say I have cerebral palsy have still been able to achieve glory as I look to tell my story. People use to tell me I would not achieve because have…
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Afternoon of Inclusive Dance, Pamper, Food, Games, and Social?!
Who's joining us for an afternoon of Inclusive Dance, Pamper, Food, Games, and Social?! We are delighted that we have partnered up with National Bobath Cerebral Palsy Centre to bring you a fantastic afternoon of fun at the national centre in Watford!This event will consist of an inclusive dance, food & drink, a nail bar, a…
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Enable 5 talks about Anxiety
New community member @Enable5 shares their first video blog about anxiety. https://www.youtube.com/watch?v=s1KEfTCIrPQ&feature=share&fbclid=IwAR2sgGp4wxyJcafYeyR02hOun-d6ImnljlJ3mHaRfPnWQrN-3xQNkJ_UYUk
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Ageing Well with a Lifelong Disability Zoom Discussion
We all want to age well and continue living our lives to their fullest. What does it mean to age well well with a lifelong disability like Cerebral Palsy and other lifelong conditions or Impairments? It's time we had the discussion. 15th of March 6 pm to 8 pm Register Meeting Registration - Zoom
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Hi, my name is Dougy6536 I was wondering the benefits of additional pyhsio
Hi all, I hope you're well. My son was diagnosed with bilateral spastic diplegia cerebral palsy he is currently 3 years old. He requires to wear boots and attends 1 physio session every couple of months. They have said he is doing good but that's not excellent. Although the physio is fantastic I believe one session isn't…
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#LetsTalkCerebralPalsy for CP Awareness Month
March is Cerebral Palsy Awareness month, which is dedicated to the 17 million people diagnosed with cerebral palsy around the world. Cerebral palsy affects many people in the UK and is more common than some people realise. Around 2-2.5 in every 1000 children in the UK are born with cerebral palsy and there are an estimated…
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2 yr old girl with CP mild 1 upper limb deficiency
Hi my name is sue I have a 2 yr old girl with CP mild 1 upper limb deficiency is tube fed does not drink but only eats puree foods. None verbal and does not crawl or sit up a very happy content girl enjoys people and nursery sleeps fairly well extremely fidgety. Lives with me and my partner we have no family or friends so…
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ADAPT - children's clothing market reserach
Hi parents! I am carrying out some research on the children’s cerebral palsy clothing market and was hoping you’d be able to help me. I am currently a fashion and business management student in my final year. I am looking to open a business that will improve the retail offering for children with cerebral palsy, designing…
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A Look At Adult CP Research
On February 8, 2022, experts from the University of Michigan shared insights about care and treatment for adults with CP, as well as ongoing and emerging research that will be helpful for the adult community. Find the transcript to follow along here: https://adobe.ly/3tdZHFD https://youtu.be/9BR0NSfUePw</div> The research…
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Move More March This Cerebral Palsy (CP) Awareness Month
Did you know exercise is vital for CP (Cerebral Palsy)? They go hand in hand like a perfect fitting glove. The less you move the worse your CP will be but the more we move the better our CP is. I am Sam, for those that do not know me I am a fully qualified level 4 neurological personal trainer & fitness instructor and I…
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New to scope. Aging and CP
Hello, I will be turning 50 this year, I know we all slow down as we age, but the older I get, the more my cp (spastic diaplegia) is impacting on my life. I'm glad I've finally logged on! I've already seen your video on aging and cp and I hope to find support and laughs along the way.
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Support for children with CP
Hello, My toddler has CP (hemiplegia). We're considering moving back to the UK, from Canada. He currently gets a range of services / therapies through state health provisions here. I'm trying to get a sense of what is provided thru the NHS, what waiting lists are like and if we need to brace ourselves to privately cover…
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I have CP hemiplegic. I have anxiety and low self esteem. Has anyone had similar experiences?
Hi my name Chuck I have cerebral palsy hemiplegic affects right side I have anxiety low self esteem in socially i am independent I emotionally struggle socially perception of me have other people had similar experiences how have cp community had experiences and thoughts? I had bad experiences in life i I just got turn…
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Free Webinar Talk with Tully Kearney MBE
The first in a series of events coming up is a free webinar featuring Tully Kearney MBE, Paralympic Champion. The webinar is on 10th March 6-7 pm – hope you can make it too! Register here: https://cpsport.org/events/?category=Webinars [Tully Kearney sitting in her wheelchair holding her gold and silver medals on a green…
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CP?
Hi, I’m hoping some people can offer advice! My little one is 5 months and sometimes feels really stiff, and other times not. Her stomach is weak. Like once I had to use full force to lift her arm up. I first noticed things where odd when she looked asymmetrical, the left shoulder appears internally rotated and hand is 80%…
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An Afternoon of Dance, Food, Fun & Games!
CP TEENS UK & THE NATIONAL BOBATH CENTRE FOR CEREBRAL PALSY BRING YOU AN AFTERNOON OF DANCE, FOOD, FUN & GAMES! Register: www.cpteensuk.org/events We are delighted to announce that we have partnered up with National Bobath Cerebral Palsy Centre to bring you a fantastic afternoon of fun at the national centre in Watford!…
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Cerebral Palsy and Core Stability 25th February 2pm
Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath neuro-physiotherapist and members of our Bobath team, you can ask us any burning questions, join the discussion and gain some general coping…
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Adaptive Yoga Live
NEW TEACHER ALERT: We are so excited to welcome a new teacher to the AYL team! Lin Leong specialises in rehabilitation - working with people who have neurological conditions. Lin has over 25 years of experience as a Physiotherapist within both the National Health System and private practice. She is also a yoga therapist…
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Hi, my name is Celi54! I'm CEV, and worried about returning to teach tomorrow
I am a 54 year old with CP who was born 3 months prematurely in 1967. Decreased lung capacity means I’m CEV. I am also a teacher facing going back to school tomorrow (including whole school inset) so even with 2 vacs and booster I’m pretty terrified and thought I’d come here for some friendly support!
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A 13 year old I'm supporting would like to talk to someone else with CP about her personal identity
Hi, I am supporting a 13 year old with CP and she would like to talk to someone about her personal identity as she is finding it hard to meet people with life experiences in common with hers. Are there any groups/forums that we can look at together?
