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Would anyone like to be mentored?
Hi my name is stephenrmb and my nephew Tim aged 27 has CP and has trained as a mentor and is looking to help other people with CP. I don't know if this discussion is the best place to start or the right way to go about it. Can anyone advise or would anyone like to be mentored by someone who also has CP? Kind regards to all.
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CBD and CP
Hi, hope you’re all well! I’m still struggling with my legs 😞 I’ve had another MRI scan and nothing has changed; which is good but frustrating as no real answer!! I’m being referred to a neurological rehab consultant to see if they can help; but obviously got to wait. So I’m doing some research and read about CBD oil; has…
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CP and strokes -more information needed! Anyone else had one?
Hi everyone. I had a stroke in August which made my symptoms of cerebral palsy worse. Has anybody else experienced this? I was wondering what the prospects of recovery and rehab are. I did find a research paper which is based on research in Taiwan. It says that people with CP are twice as likely to have a stroke. Both are…
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Things that you have found helpful for managing your CP
Just thought I would try and start a new discussion to create some kind of list of the things that we have discovered over the years that help us, as we all face similar challenges and it's interesting to learn about what strategies we have in common, and perhaps learn some new ones. Maybe it's a particular type of…
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Ageing with Cerebral Palsy: Experience, Challenges and Solutions
This short documentary film is the first part of a larger research project that is being undertaken by Scope and the Unversity of Nottingham, overseen by Dr Sonali Shah. The film provides new knowledge and understanding about the experiences of ageing for adults with cerebral palsy. Speaking for themselves, six adults with…
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Bulging Discs and back pain
I have suffered with a bad lower back for years. I am 55 now and i had an MRI last year which showed up the bulging discs / prolapsed disc and squashed nerves. I tried many different painkillers. Currently take ibuprofen and paracetamol. I do get bad back spasms too. Currently in middle of one and trying to work also! I…
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Annual Conference For Adults with CP
Hi, I’m new here and I have a self interest in searching for something positive to look forward to, so I have a question. If it was possible to organise, would a weekend annual conference appeal to anyone? I’m thinking a nice hotel, possibly with a grand spa, in a different part of the UK each year, where adults with CP…
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Pain in lower back.traveling down
Hi everyone, my name is Thomas, I am a 40 year old with Spastic Dieplega CP, Quite recently I have started having really bad pains in my back while walking, this is traveling down my hips and legs, I have been taking Baclofen for years, but it doesn't seem to.relieve it, back feels like it's going to lock, any similar…
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disabled people in hospital
Hello, My name is Jackie and I wanted to write and tell you about my sister Tina who was born with cerebral palsy. Sadly I lost Tina this October, she was aged 55. Tina has been the biggest thing in my life and losing her has left a massive gap. Ive been surrounded by disability all my life and have supported Tina for the…
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Monoplegia
Hi, is it unusual to be affected in just one limb? My daughter has spasticity in her leg. She’s 5 and it hasn’t been diagnosed yet, I’m wondering what the chances of it being CP are or something like HSP. Thanks
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NCEPOD Moving from Child to Adult Healthcare Survey
NCEPOD is undertaking a study to look at the process of transition from child to adult health services. As part of this study, we are collecting the views of young people and parent carers on the transition process via an online survey. I am emailing you to let you know that this survey is now open for completion. The link…
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Female Cerebral Palsy Football
Our friends at CP Sport have created a short survey to help more females living with CP get into and enjoy football. Female Cerebral Palsy Football (google.com)
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I have CP and I'm Frustrated
Layla, a member of Scope's Network CP has written about what living with CP means to them. I'm Layla, I'm 25 years old, and I have cerebral palsy (CP). Me and my brain have a wonderful, but often very difficult, relationship. As a writer, I often find myself untangling that relationship by writing about my struggles and…
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Access to online community
Our daughter has cerebral palsy, is aged 37, and receives full time care in a nursing home located in Gloucestershire. Her world has been adversely affected by the pandemic. She has become isolated and insular and we are seeking a safe online pen friend type service to.help her re-connect with the world safely, following…
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Cerebral Palsy Should Not Be a Barrier to Total Hip Replacement Surgery
Individuals with neurological conditions can face obstacles when seeking medical treatment. Patients with cerebral palsy (CP) may experience painful symptoms of hip osteoarthritis as adults and may potentially be overlooked for consideration as surgical candidates for total hip arthroplasty. A recent study by Yale…
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Hi, my name is Beth. My son may have mild hemiplegia, and I'm feeling a little lost
Hi, I am a children’s physiotherapist. My son is one year old, I had noticed he has a clear hand preference and occasional high tone, associated movements and some difficulties in reaching milestones. After pushing for an assessment, it has been discussed he most likely has a mild hemiplegia and we are waiting for an MRI…
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Falling over
As a child I used to fall over all the time as I got older that lessened and last few months I’ve fallen over almost every day I almost got hit by a car yesterday as I fell into the road my mum made me call Gp they referring me to a orthopaedic and neurologist specialist and I’m just wondering if anyone else has had these…
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CP Welcome Café starts Monday 3rd of August at 4pm
We want to provide an opportunity for people with Cerebral Palsy or a similar disability who are 20 and over to get together and chat. We will run these sessions in partnership with CP Sport every Monday starting from the 3rd of August. There will be an opportunity to find out more and meet people from both organisations…
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sharing my experience with cerebral palsy, what is yours?
Hello everyone. My name is Christopher and I was born with cerebral palsy. I found this community as I've been wanting to connect with more people like me. I recently turned 30 years old and as I've aged my pain is getting worse. It's quite difficult. I am able to walk with the assistance of a stick. But I am in pain every…
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Cancer treatment advice for somebody with CP please
I'm looking for advice regarding cancer treatments. My dad has recently been diagnosed with bladder cancer. He has been advised the best treatment to go along with keeping his daily life as normal as possible would be palliative radiotherapy. He tried to have a planning scan but couldn't keep still due to his cerebral…
