Hi, my name is Chloe I have CP

wheelygr8

Hi I'm Chloe
I have Cp which affects all four of my limbs which means i am a wheelchair user and reliant on 24hour care im here to meet other people and learn more about CP as an adult, does anyone ever wonder if weird problems they have are to do with CP? , even though they are told its not by medical professionals. I do let me know if you feel the same. 

Ross_Alumni

Hello @wheelygr8 and welcome to the online community  

How are you managing with your CP? It's good that you have support from medical professionals so that you can access them if you ever have any issues. 

  

This is a very supportive and welcoming site to be a part of so I’m hopeful that you’ll find it to be a positive outlet. Feel free to have a look around and get involved wherever you’d like 😊 I have included below a few of the pages I’d recommend having a look through to get used to things:

• The virtual coffee lounge which is one of our categories, in which we play games and talk about general subjects such as hobbies and interests
• The recent discussions page, which shows an overview of everything happening across the community
• The categories page, which shows a full list of discussion groups on the community

If you have any questions at all then don’t hesitate to ask.

wheelygr8

Hi Ross 
Thanks for your lovely message i will look at the pages you suggest i do have support from medical professionals but many of them are clueless about CP so it is very difficult a lot of the time i struggle to get them to understand the impact of CP on certain problems and i never seem to know if its a different problem that is made worse by Cp or a problem caused by cp in the first place they seem to follow a tick list and if i dont fit it which most of the time is the case they have no idea what to do next 

Richard_Scope

Hi @wheelygr8 (Chloe)
Great to meet you! I have quad CP too and use a wheelchair. There are certainly a lot of quirks with our impairment.
My colleague @Abdi_Scope and I run a virtual group for people with CP that meets once a month. The next meeting is on the 13th of July. If you would like to join us email; networkcp@scope.org.uk and we'll send the zoom link

wheelygr8

Hi Richard

I know you already, and already attend the meetings for some reason ive only just found the network platform but i hope we can continue to share notes regarding CP

Richard_Scope

Oh, hi Chloe! Great to have you join us in the community