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Daughter's birth
My name is Hasina and in 2017 my daughter suffered a server brain injury at birth leaving her parshly blind and deaf I wanted to ask if any one else's child suffered in the hands of NHS please
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I care for my husband
I care for my husband who has had two strokes he now has vascular dementia
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My son has Polymicrogyria, and Duchennes Muscular Dystrophy
My son has Polymicrogyria, and Duchennes Muscular Dystrophy. My wife and I care for him with the help of our beautifull daughter who is 3. Harvey is just 13 months old and is suffering development delay. Luckily, there are very supportive people and organisations out there! We hope to make life as comfortable and fun as…
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Mum of 6
Just want to say a big hello to everyone, I’m a newbie and a mother of 6 amazing children, 2 of which are disabled. I hope that I can contribute well to this community and also receive support and advice. ?
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Parent Carer
I have Multiple Sclerosis, and I am ParentCarer for my 17 year old son who has SpinoCerebellar Ataxia Types 1516, 28, and 29. I also have a 14 year old daughter, who is able bodied. Oh - and I’m a lone parent!! ????????
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Son refused PIP with a diagnosis of aspergers from age 15
Hi. My son was refused a PIP after the initial assessment and we have not had any further support or anything at all. Just concerned that he is going to need extra support whilst at uni in Sept. What can I do as a parent he will soon be 19.
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I need some advice for daughter's flat feet
Hi ?, im joining your group as im looking for some answers/advice about my daughters flat feet. Long story, short At 2 years old podiatrist said come back at 7. At 7 took 2 years to get appointment. At 9 podiatrist gave insoles that get updated yearly. Feet are still flat as a pancake. Hips, knees ankles super flexible and…
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Use of term "severe mental impairment" by councils
Hello - I was shocked to receive a letter from my council which said to claim the 25% council tax discount my son, who has a learning disability, needs to provide evidence of his PIP award but also we would have to go to our GP to get him to sign a statement stating that my son has a "severe mental impairment". Does anyone…
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I hope to benefit from this community
My name is Eunice a single mun, I have a daughter who has cerebral palsy, though am not based in the UK i hope to benefit from this community. Thanks
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Moved: FREE Wills and Trusts Information Events in October
This discussion has been moved.
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twin daughters with disabilities and special needs
Good afternoon to everyone, I have twin daughters with disabilities and special needs, will be good to talk to everyone
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Anyone live in Liverpool City Council region?
Hi there. We have a two year old daughter with complex needs, both learning and physical. We are currently under Sefon council but are considering a move to south Liverpool, where we’d fall under Liverpool City Council. We are quite happy with the support our daughter gets in Sefton (physio, speech, OT, portage who all…
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I was a carer for 20 years
I’m a single bloke mum just passed away I was her carer for 20yrs now I’m just fed up alone in a 3 bed semi don’t no what to do no more
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we hope our experience may help others
Hi I was the Dad of two multiply children, both now deceased. They both attended Rose Road and we had great help from Scope over the years. Although our knowledge may be a little out of date we hope our experience may help others.
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Advice
Hi,I have twins special needs and they can’t able to walk and my buggy just suitable for 3years old now they are 3 and half and struggling with buggy to walk.shall I get advice which buggy suitable for long term .thank you
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ASD child - impact on sibling
I have a 4 yr old son with ASD who is non verbal. I am growing increasingly worried about the impact of his behaviour and our home life on his younger sister (aged 2 and NT). My son is extremely sensory and is constantly moving. He will jump on his sister without warning or often bumps her because he is moving around…
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How can we get respite?
How can we get respite from our 9 year Severey Autistic child. We are at our wits end as no one is listening to us and the whole family is falling apart.
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Care Providers - staff shortages and what to do
hi - just wondering what other parents/carers have done in this situation: our daughter with cp will be living independently in what’s now the family home as soon as everything is sorted. We have fantastic carers but need to plan for emergencies etc when these carers can’t cover. We have been looking into Care Providers,…
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Hi, my name is TriciaAnn I have searched for an answer to this for most of my life
I have long realised that the forceps delivery used on one of my children had caused problems and now I see that all the symptoms and problems known medially were there. he is adult and does suffer. I wish I knew how to help him. I did reach out for help but nobody understood the problem symtoms and causes. he has bravely…
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what plus is?
Can anyone please advise me on any idea what plus is? As the name was passed to me regarding help for my son who is she 25.I was told I had to go to my local library to get help?
