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Sleep deprived
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Direct Payments
I believe Ive got myself into a sticky situtation. We astarted getting these payments in the pandemic and tgeyve never been reviewd..I have been using them for cleaning products and care items instead of a respite carer for me...what can i do?
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Appointees
I am an appointee for my child, I have a bank account for them but in my name, as appointee. What happens if I die, can I request that another family member has access to this account/becoming their appointee? I have looked into Deputyship but it is so expensive I’m not in a position to apply for this at present.
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You cannot change the path of destiny
All this time ive been fighting so hard for support and reading back over my own posts and notes I realise that this has been going on for 15 months.Its now obvious to me that there is obviously a greater power going on that simply defines my future path.So I am no longer going to do anything about anything as this it…
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Autistic Barbie
https://www.theguardian.com/society/2026/jan/12/mattel-launches-its-first-autistic-barbie
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Neurodivergent son being taking advantage of
So my mum who is a narcissist and whom I haven't spoken to for many years has ACTUALLY phoned me today to say that she is concerned about my son over this situation with this girl.So know I know the situation is bad!.The question what can/do I do about it?.In brief my son got chatting with a girl who used to go to his…
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Help with sleep for autism toddler
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15-year old son has Becker Muscular Dystrophy
I have a 15 year old son who has Becker Muscular Dystrophy. It's a degenerative condition causing muscle weakness and wasting. I wonder if there are any other people on here who's child has a similar condition?
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Letting Go
Im crying as I write this i cant keep trying to support my dad I know hes at the last stage of his life hes has always sent me mixed messages one minute he cares the next hes verbally abusing me this has been a lifelong thing even from a child he used to mock me calling me miss piggy which was very distressing as a child I…
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Carers Hourly Rates
Checking rates for private carers on the Curam homecare lists the cheapest carers i can find in my area are £20 per hour but most are around £25-£30 per hour. With the national minimum wage currently set at £12.21p are some carers pricing themselves out of employment because at £25ph that's double the minimum wage.
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Dying
My brother brother was born 71 years ago with the umbilical cord wrapped tightly around his neck. Thus resulted in catastrophic brain damage, mild LD and CP. Despite predictions to the contrary, Edward learned to walk and talk, read and write. When mum and dad died Edward had to go into supported living where he was…
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Pension credit
Hello, i’m trying to get some advice please as i seem to be getting different answers, i’m currently in the process of claiming carers element in order to care for my mum full time, i’m currently on UC and put the claim in via my UC, when speaking to citizen advice they’ve told me claiming carer element wouldn’t completely…
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Mileage expenses on direct payments and problems with social workers putting up barriers
Hello all, I am a PA for my brother and after years of being dictated to that my brother COULD NOT use his direct payments for multitudinous activities, events etc that would meet his needs, his social worker has done a complete about turn (after being quite aggressively questioned why, by me) and has now agreed that not…
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Carers Assesment
Hello Hoping For some advice . I’ve cared for my husband pretty much solely since he had his life changing RTA accident 19 months ago. He got lost in the system as I only found out two months ago and thought it was normal the way I had it deal with everything . Anyhow, adult social care team and the occupational therapy…
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Aquired Brain Injury and looking for support for my 20 month old who may have CP from the insult
Hi there, My son at 13 months old suffered an aquired hypoxic ischemic brain injury, he has damage to his basil ganglia and he is now 20 months old. At first he lost his ability to do anything, feed, see, hear, walk, talk, spasticity in all 4 limbs, spasasms all the time, poor muscle tone etc etc he was just laid there...…
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How can carers be integrated into care plans effectively?
Family members and informal carers play a critical role in patient care, providing emotional support, daily assistance, and continuity between healthcare settings. To integrate carers effectively into care plans, healthcare providers must treat them as active partners rather than passive observers. 1. Early Involvement:…
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Carers allowance mixed age couple retirement
My partner has top rates of PIP - we have a joint claim for UC and he gets LCWRA and I claim Carers Allowance which is deducted from UC + get Carer Premium. We are mixed age - I am 67 and not yet claimed SP - I want to now claim my SP as partner is spending all our money on rubbish - I would expect to get full amount of SP…
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Christmas Bonus
I was paid my £10 for PIP - over 2 weeks ago My wife/carer has still not been paid hers as a carer yet !!
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Tribunal
Hi don't if any can help me but I'm stuck giving anything a go now! Long story short, a long standing P A of mine left last year just before I moves in with my fiance. She decided to take tribunal saying she was being bullied i didn't deal with it! No idea what to do
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Wife/Carer going into hospital - what to do ?
My wife/carer may have to go to hospital (her shoulders and hips are bad) - what would I do ? She is currently at her GP. Bearing in mind that I am virtually immobile and can't speak on the phone either - I am useless at virtually everything else that I try…. I also would be unable to visit her in hospital - because of my…
