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HERTFORDSHIRE PARENTS/CARERS
Cathy Reay, author of the children's book 'How to be Disabled and Proud (or at least kinda sorta okay with it...)' will be giving a talk at WGC Library later this month. This evening event is aimed at parents and carers to help support and advocate for their children. Thursday 26th June 7.00pm Welwyn Garden City Central…
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Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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Carers Premium.
Hi,any advice on the following would be greatly appreciated. I was receiving Carers Allowance up untill my retirement in early Oct 2024. My C.A.B.advisor put in place for Carers Premium from the day I retired.I have not had a single payment for nearly 8mnths now despite my Citizens Adviser making many calls to the…
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I don't know what to do. Elderly mother.
Hi Apologies for any errors I'm visually impaired. I'm my mums carer. She has carers 3x a day & I go every day. I change her catheter bag, do her diabetes monitor make sure she's in the right position etc. We've done POA & have a joint bank account. Mum has been having memory problems, she's bedbound. She randomly sat up a…
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Do I bother claiming carers allowance when on universal credit?
hi. Everyone. Bit of background info, my son is disabled, gets PIP, I work part time (around him) and get UC - I get the carers element with this. my question is I’m confused about carers allowance, if I was to claim would I lose my UC? I’ve read conflicting things as UC is a means tested benefit so is it worth me trying…
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Refused college place due to EHCP
Hi my son has been refused a college place due to his EHCP, he has Autism, is not a bad lad, just struggles emotionally and that's only if someone was to bully him. I'm in contact with SEN at the college and even she said he is capable of going to the college, he has his heart set on mechanics, is very knowledgeable in the…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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Transport to school costing too much
Hi I am new here so i dont know how this works. Am a single mom with an ADHD child. Still waiting for DLA but in the mean time am on low income, my daughter's school is very far, we cant cange it because we are in tempolary accommodation. She has serious anxieties we cant take a bus but taxi. Its costing me £30 a day.…
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My mother thinks my 13 year old brother is too young for boxer shorts
How do I convince mom to let my let my 13 year old younger brother with ADHD to have boxer shorts, he wanted them for his 13th birthday as a friend did. He has been begging his mom to let him wear boxers, but he keeps getting punished. He seems stuck in this sad and withdrawn state of mind. I periodically ask him what's…
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Daughter gone into residential school
HI i have a 16 year old non verbal autistic daughter with complex needs. Tonight is her 2nd night away at residential school. I so miss her and as shes never been away for more than 2 nights restbyte i fret she is now realising that she should come home soon and will become upset and anxious when shes starts pointing at…
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BBC Make a Difference Awards in Wales 2025
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Carer
Hi all. I have been a carer for my elderly neighbour since June 2024.the person I was caring for started getting deductions from his benefits and he was not happy with this so I cancelled carers in Jan 2025.he has been in touch with dwp wanting the money back, they told him he couldn't have the money back. So he has told…
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Hi, my name is Socket72! Are there any people out there that do home schooling?
I have a 13yr old son who has Autism & ADHA, he hates going to school because of the bullying he has been subjected to. The school are trying different things with him, but he really doesn't socialise at all with other children, he keeps himself to himself, but this means he has at times become a target for other kids to…
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Pushchair
hi all I’m looking for some advice on suitable pushchair . My son is seven and around 33kg , I’m looking for a pushchair that will accommodate him , it’s only required for long days out for rest breaks and power naps . Currently have the McLaren major however the footplate is difficult to manage when having to collapse ect…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
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Paying enhanced maternity pay to carer from a personal payment
Hello I employ carers to look after my disabled daughter 24/7 One if the staff works 37.5 hrs week. she is currently on maternity leave and is struggling with the loss of income. I want to pay her enhanced maternity pay she has worked for my daughter for 20 yrs. we have a personal payment not a direct payment. can i do…
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6-Year-Old Possibly Has Panayiotopoulos Syndrome – Neurologist Suggested Keppra, Unsure On Staarting
Hi everyone, I’m looking for advice and shared experiences from parents or clinicians. I have a 6-year-old son who recently had a nighttime seizure, and we’ve been told it might be Panayiotopoulos syndrome (PS). We’re unsure whether to start him on Keppra (levetiracetam) and would really appreciate your input. What…
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Wrongfully put on child protection
I want to know if anyone else here had the issue with children's services?.... Briefly...wrongfully put on child protection. No significant harm by parents, instead NHS negligence/misconduct and family is held accountable (scapegoat). Bringing evidence supporting our innocence to the social workers was futile, after a…
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Audio card to family member with dementia (abroad) what to put in it?
Please let me know if I need to move this to the mental health section as it is about dementia. But it's also family so I wasn't sure! So, someone in my family asked me to record in a card for a family member with dementia. He's also visually impaired. I don't even know if he can see anything. I have sent aural cards…
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Carers allowance
Hi all.advice needed please. I was a carer for a gentleman recently. I was receiving carers allowance. When we realised that the carers allowance was affecting his disability benefit and attendance allowance I phoned the carers allowance department and asked for my carers allowance to be stopped. Now the gentleman has…
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What help is there with getting children to school?
I’m a lone parent of 4 children 13,12,9,6) . Their dad died after we divorced and I’ve got Lcwra. I’m starting biologic therapy and I have Ankylosing spondylitis and a two other autoimmune progressive diseases, mentally ill and have FND. My 6 and 9 yr old get picked up from childminder and takes them to school. I am…
