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Hi, my name is Careyon! Recently diagnosed with FND

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Careyon
Careyon Community member Posts: 4 Listener
edited June 2023 in Physical and neurological impairments
Hello,
Recently diagnosed with FND.  I had increasing mobility and speach difficulties  after eating gluten.  i have tried to get specialist support, or even someone to explain what it is but been told by a locum gp dont know of anything.  My symptoms come and go and I do hope they will just go   I feel so confused.
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  • Sandy_123
    Sandy_123 Scope Member Posts: 53,241 Disability Gamechanger
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    Hi @Careyon welcome to the forum. That sounds awful for you and I can imagine it's frightening, especially when no one medical can give you answers. 
    Could you ask your gp for a referral to a specialists who may be able to help you better with your symptoms.
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  • Careyon
    Careyon Community member Posts: 4 Listener
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    Hello, thanks for reply.  I was told nothing local i.e. in Wales. But I am going to see another GP. It all feels unreal, unclear, and like I have gone mad.
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  • Sandy_123
    Sandy_123 Scope Member Posts: 53,241 Disability Gamechanger
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    Yes getting a second opinion might help, good luck with that
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  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @Careyon

    Welcome to the community! :) How are you feeling today?

    Getting a second opinion sounds like a good idea. If you feel gluten is affecting your symptoms, maybe speaking to a Dietician could be beneficial too. We always recommend speaking to the medical professionals.

    Just to let you know, I popped your post into our Physical and Neurological section of the forum. Hoping more people can see and share their experiences with you. I also wondered if you had seen the website FND Action? They have lots of support pages. 
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • funkynumpty
    funkynumpty Community member Posts: 1 Listener
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    Careyon said:
    Hello,
    Recently diagnosed with FND. I had increasing mobility and speach difficulties after eating gluten. i have tried to get specialist support, or even someone to explain what it is but been told by a locum gp dont know of anything. My symptoms come and go and I do hope they will just go I feel so confused.



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