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Hi, my name is Careyon! Recently diagnosed with FND

Careyon

Hello,
Recently diagnosed with FND. I had increasing mobility and speach difficulties after eating gluten. i have tried to get specialist support, or even someone to explain what it is but been told by a locum gp dont know of anything. My symptoms come and go and I do hope they will just go I feel so confused.

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Comments

Sandy_123

Hi @Careyon welcome to the forum. That sounds awful for you and I can imagine it's frightening, especially when no one medical can give you answers.
Could you ask your gp for a referral to a specialists who may be able to help you better with your symptoms.

Careyon

Hello, thanks for reply. I was told nothing local i.e. in Wales. But I am going to see another GP. It all feels unreal, unclear, and like I have gone mad.

Sandy_123

Yes getting a second opinion might help, good luck with that

Hannah_Alumni

Hello @Careyon

Welcome to the community!

How are you feeling today?

Getting a second opinion sounds like a good idea. If you feel gluten is affecting your symptoms, maybe speaking to a Dietician could be beneficial too. We always recommend speaking to the medical professionals.

Just to let you know, I popped your post into our Physical and Neurological section of the forum. Hoping more people can see and share their experiences with you. I also wondered if you had seen the website FND Action? They have lots of support pages.

funkynumpty

Careyon said:
Hello,
Recently diagnosed with FND. I had increasing mobility and speach difficulties after eating gluten. i have tried to get specialist support, or even someone to explain what it is but been told by a locum gp dont know of anything. My symptoms come and go and I do hope they will just go I feel so confused.