Condition disagnosed — Scope | Disability forum
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Condition disagnosed

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woodbine
woodbine Community member Posts: 11,670 Disability Gamechanger
in Coffee lounge
Finally the problem with my eye-sight has been diagnosed I have nystagmus which basically means that my eyes don't co-ordinate with my brain, my eyes also move from side to side, the cause of the nystagmus would have been my two strokes 25 years ago and my subsequent TIA's over the years plus my regular seizures. It is quite likely that in the near future I will be registered as partially sighted.
It has become impossible to read even with reading glasses and the condition is not treatable, I can use my laptop with everything magnified and hope I can continue to be an active member of the scope community.
2024 The year of the general election...the time for change is coming 💡

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  • Grinchy
    Grinchy Community member Posts: 1,864 Disability Gamechanger
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    Sorry to read its not treatable, i hope you will make the best of it, take care my friend
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  • Sandy_123
    Sandy_123 Scope Member Posts: 50,832 Disability Gamechanger
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    Hi @woodbine it's going to take some getting used to.  It's good you can still use your laptop
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  • 66Mustang
    66Mustang Community member Posts: 13,697 Disability Gamechanger
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    That's a shame @woodbine, just a suggestion but can you read books on your laptop? Can you get books on the laptop and magnify them? Sorry if you have already thought of this.
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  • durhamjaide2001
    durhamjaide2001 Community Co-Production Group, Scope Member Posts: 10,563 Disability Gamechanger
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    I have that condition @woodbine
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  • woodbine
    woodbine Community member Posts: 11,670 Disability Gamechanger
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    66Mustang said:
    That's a shame @woodbine, just a suggestion but can you read books on your laptop? Can you get books on the laptop and magnify them? Sorry if you have already thought of this.
    Ive bought myself a CD player and ordered some Audio books, but thanks
    2024 The year of the general election...the time for change is coming 💡

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  • Biblioklept
    Biblioklept Community member Posts: 4,682 Disability Gamechanger
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    Have you thought about practicing with screen readers and adaptive tech now so that if your vision does get worse you can still do the things you enjoy (like being here with us!!! <3) 
    I'm glad you've now got answers but I'm sorry it's not treatable. How you feeling about it?
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  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
    edited August 2023
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    Yeah, adaptive technology has become quite good lately from what I have witnessed. Screen readers are getting more and more sophisticated. 
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

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    Opinions are my own, such as mashed potato being bad.
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  • woodbine
    woodbine Community member Posts: 11,670 Disability Gamechanger
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    Biblioklept said:
    Have you thought about practicing with screen readers and adaptive tech now so that if your vision does get worse you can still do the things you enjoy (like being here with us!!! <3) 
    I'm glad you've now got answers but I'm sorry it's not treatable. How you feeling about it?
    If I'm honest I'm feeling really  bad about the whole thing, but I am seeing a counsellor atm not sure if its helping but I'm giving it ago (again).
    2024 The year of the general election...the time for change is coming 💡

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  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    @woodbine I'm so sorry that it isn't treatable. And I am so sorry you a feeling so bad, I do hope the counsellor helps. Remember we are always here if you need to vent or to talk <3
    Hannah - She / Her

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  • Lou67
    Lou67 Community member Posts: 7,333 Disability Gamechanger
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    @woodbine
    Hi I’m so sorry to read about this, you have had it tough on and off for a while now. I’m glad you can still use the computer to communicate with your friends on here.
    I really hope some good comes out of the counselling sessions for you.
    Im sure SM is fussing over you.

    Take care ❤️
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  • woodbine
    woodbine Community member Posts: 11,670 Disability Gamechanger
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    I am as ever grateful for the kind words of support.
    2024 The year of the general election...the time for change is coming 💡

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  • MW123
    MW123 Scope Member Posts: 480 Pioneering
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    I'm saddened by the news you shared, Woodbine.  I always enjoy reading your thoughtful responses to other people's messages.  
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