Hi everyone 👋
I’m hoping someone here might be able to point me in the right direction.
I’m looking for charities or organisations that support disabled adults with funding for electric standing wheelchairs. I know there are some out there – but it’s tricky to know which are still active or accepting applications in 2025.
I was diagnosed with Alexander’s Leukodystrophy as a baby and have used a wheelchair for most of my life. I’m 30 now – I was given a life expectancy of just 15 years, so I’ve already beaten the odds. 💪
At age 12, I was lucky enough to get a Permobil standing wheelchair, which allowed me to do things like cook, reach shelves, and even stand to give a speech at my sister’s wedding. But after many years of use, it’s now breaking down and the standing function no longer works. It’s having a big impact on my independence.
I’m currently fundraising for a replacement (the Permobil F5 VS), and while I’ve set up a GoFundMe to help cover the cost, I’m not asking for donations here – I’m really just hoping someone in this community knows of grants, charities, or schemes that help fund this kind of essential equipment.
[Removed by moderator - crowdfunding is against our house rules]
Any leads, advice, or even personal experiences would mean the world to me 🙏
Thank you so much 💙