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Looking for wheelchair users to help test RollSense
Hi everyone, We’re building RollSense, a mobile app designed to help wheelchair users understand how sidewalks and outdoor routes actually feel to travel on — not just whether they are technically marked as wheelchair accessible. The idea is simple: Your phone is securely mounted or fixed in a stable position on your…
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Fellow fat people; what mobility aids are you using?
Hello. I have severe, chronic, debilitating pain all over my body. It makes living impossible and I am not receiving any help despite my constant begging. I cry in bed most days because I just can't do anything. I really want to start getting out of the house more. It would do me the world of good I think. I can't walk…
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I Am Too Proud To Ask For Help 🤔
I have lived on the old Blue Spinning Ball for 43 years and it is fair to say that life has been like a Donkey Kong Roller Coaster….. I have battled multiple mental and physical conditions for every single breath I have taken. I was often told that I wouldn’t amount to anything, that I couldn’t do this, I couldn’t do that…
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Special tomato jogger
Hello. I wondered if anyone can help me source a second hand special tomato jogger. Currently using a second hand hauck jogger for my 6yr old PDAer and trying to find something larger and similar colour (grey) to help ease the transition. We claim DLA but will need to reapply in spring so I don't think we currently qualify…
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Powered wheelchair advice
I'm looking for companies in the SE that will give advice on which powered wheelchairs to try, bearing in mind my living conditions, seating needs and intended use. So far I've found Recare and Gerald Simonds, does anyone know of any other companies?
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Participants Needed for Spinal Cord Injury Research
Regenerating Presence: Immersive Nature Environments for Wellbeing and Place-Based Healing through XR We are looking for adults living in the UK with spinal cord injury (SCI) to take part in a research study exploring body image and body appreciation following SCI. Taking part will involve a short questionnaire, which…
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Free app to find toilet, parking and health facilities: Find Nearby
Hi everyone, My name is Callum and I’m the Glasgow-based founder of Find Nearby, a mobile app that helps people quickly find toilets, parking, benches, playparks, health locations and other useful places nearby. I’ve recently made several key accessibility, family and health searches completely free with no ads, including…
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How to get out with my dog?
I have no idea. After fall from 35 feet I have pins in heel and rod in femur and stuck in hip. Hurts constantly. I'm still house bound as there are steps to get out. I'm right handed and my right hand is semi paralysed due to damage to 2 out of 3 nerves. I'm on highest dose of pregabulin for nerve pain that I presume is…
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Reporting An Improvement/Fluctuating Condition.
Hello everyone, I am wondering if anyone can advise on this. I have been on PIP for a few years and my award is due for review in 2029. The main condition I have is physically and mentally draining but it is a fluctuating "visible" condition that varies in severity. Sometimes it is minimal but I will still be in some pain…
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Looking for wheelchair users to take part in a UCL research interview
Hi everyone, I'm Harini, an MSc student at UCL. I'm doing research on how fire crews could better understand and support wheelchair users when they arrive at a fire in a residential building. When a fire crew arrives, the first minutes count. Right now they often have little or no information about what wheelchair users…
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NEW RESOURCES FOR PEOPLE WITH DISABILITIES
PLEASE FORGIVE THE CAPS FOR I HAVE VISION LOSS. I AM A DISABLED FOUNDER WORKING ON NEW IDEAS THAT WILL BE BENEFICIAL TO PEOPLE WITH DISABILITIES OF ALL AGES. PARENTS WITH DISABLED CHILDREN ARE INCLUDED. OUR LOCAL HEROES, LAW ENFORCEMENT, AND MEDICAL PERSONNEL. I RECENTLY HEARD THAT AFFORDABLE HOMES ARE EASILY ACCESSIBLE TO…
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Dystonia
is there anyone else here who has cerebral palsy and suffers with dystonia I’ve been having bad flare ups where I’m locked in for days recently and it’s painful how do you deal with it?
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Afraid to challenge PIP decision
Hi everyone! New here so please bear with me… I was recently awarded the basic daily living level of PIP, however I believe I should be entitled to the mobility component too. I’m now scared to appeal in case I lose my basic level. Does anyone have any experience or advice to share please? Thank you so much, Sparkle…
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Confused about PIP Activity 11 and familiar journeys
Hi, I'm preparing for a PIP tribunal, and I'm confused about Activity 11. I rarely go out alone. Most of my journeys are with my mum or another trusted person. I might do a short local journey alone around 2-3 times a month, but usually only because I feel I have to. The DWP seemed to focus on the fact that I can…
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Derotation osteotomy
Hello, My Husband (38) with CP, has had a femoral/tibial derotation osteotomy. He was completely independent before (no walking aids). 6 months post surgery he is walking with elbow crutches & has reached a plateau in his rehab, and he's becoming frustrated with not being back to his baseline mobility yet (although we were…
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Medication Management For Independent Living Study
Hi, I am studying Industrial Design, at Loughborough University and I’m currently doing a student research study to gain information relating to the medication management, administration fail points and strategies of individuals with fine motor impairment or disability, to design a related product. The study will be…
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Hi, my name is Bruce4! having difficulty, mobility wise, so am considering ...
Hi all. I have been classed as disabled for a few years now, but sadly feel almost Unabled for many requirements. Am having difficulty, mobility wise, so am considering getting a mobility scooter. But I am rather heavy 18st+ and live in a hilly area, mostly canal hump back bridges, so any advice re extra power or best(also…
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DLA Mobility Timescales
Hello automatic review forms came out as son turned 5, DLA received them back 9th march. Can anyone advise of current wait times for a decision?
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looking for a 'travel' mobility scooter which my partner can easily dismantle
Hi I'm a 'silver surfer' in the south of England. Previously an electrical sales engineer, then publican, In retirement I volunteered to train and facilitate self management courses for people with long term conditions, because it helped me a lot!. I have now retired (about time some might say) and am currently looking for…
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Hi, my name is Crazybobs! i'm 60 in a few days and rely on my Greenpower scooter
Hi all, i'm 60 in a few days and rely on my Greenpower scooter to take my dogs for long walks in the forest. Although i suffer Osteo Arthritis throughout my body, i am a mechanic by trade (medicaly retired) and carry out all my own maintenance, repairs, and hopefully mods, so am looking to exchange ideas and info regarding…
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Green Power Mobility Scooter - Avoid at all costs! Terrible Experience
This is a message to fellow mobility scooter drivers. I am posting this message to hopefully save you some hassle. Please learn from my experience. I bought a Green Power ZT500 scooter online last year and had so many problems. I chose this mobility scooter because it seemed good value - it has all the specs of much more…
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Hi, it is agnesinspireu from Sunny Island!
Joy isn't an emotion; it is a choice to rejoice even in the valleys Hi, my name is Agnes! The above quote is born out of my lived experiences—overcoming challenges and fighting battles. I believe I was created on purpose, for a purpose. Although having a disability or condition isn't a walk in the park. It can be…
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Hi, my name is pjnlass80!
Hi there nice to chat to you have a nice weekend lots to do in Yorkshire long coastline nice pub lunches , Pauline and grown up family here 😊 plenty of time to pass how about you're travels and hobbies 😁 Cheers healthy living good ideas 💡 💞
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Unaffordable public transport
It used to cost me £10 per week to put fuel into my car to visit my Daughter and Grandchildren in the next village (rough terrain and poor mobility means walking isn't an option sadly). Now it takes over an hour to get there and £7 per visit on public transport which has made seeing my family more than once a month…
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PIP mobility change
I am due for review for PIP next year but over this winter my mobility has taken a hit with arthritis flares. I was one point off full mobility allowance last time. Do I report the change now or wait? Will I still be reassessed next year if they reassess me now? Part of me doesn't want to rock the boat but I am struggling…
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Power chair recommendations please?
hi Power chairs are totally new to me The whill c2 looks like a good power chair for me to hire or buy, but does anyone else have any other recommendations? I like the fact that it’s been reviewed and demonstrated a few times on YouTube by people who aren’t affiliated to the product. Am particularly interested if there are…
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Finding the perfect powered wheelchair
Hello, everyone. I hope this is the right place to ask this and that it's okay to do so. I have Cerebral Palsy Spastic Diplegia. I have limited mobility and and have used a manual wheelchair all my life, with e-motion wheels for the past 15 years or so. As a 30-something, I desperately want more independence and I think a…
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Launch of new national council to shape wheelchair provision
Wheelchair users in the UK are being invited to join The Wheelchair Collective – the first national council of wheelchair users. Led by the Wheelchair Alliance, the initiative will give wheelchair users with lived experience the power to influence how wheelchair services are designed, delivered and improved. Backed by…
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Walking stick recommendations for arthritic hands
Hi I need two sticks to walk. I’ve been diagnosed with arthritis in both hands and I’m finding it difficult to use my sticks. Can anyone recommend any good walking sticks? Many thanks
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
