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Looking for wheelchair users to take part in a UCL research interview
Hi everyone, I'm Harini, an MSc student at UCL. I'm doing research on how fire crews could better understand and support wheelchair users when they arrive at a fire in a residential building. When a fire crew arrives, the first minutes count. Right now they often have little or no information about what wheelchair users…
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NEW RESOURCES FOR PEOPLE WITH DISABILITIES
PLEASE FORGIVE THE CAPS FOR I HAVE VISION LOSS. I AM A DISABLED FOUNDER WORKING ON NEW IDEAS THAT WILL BE BENEFICIAL TO PEOPLE WITH DISABILITIES OF ALL AGES. PARENTS WITH DISABLED CHILDREN ARE INCLUDED. OUR LOCAL HEROES, LAW ENFORCEMENT, AND MEDICAL PERSONNEL. I RECENTLY HEARD THAT AFFORDABLE HOMES ARE EASILY ACCESSIBLE TO…
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Dystonia
is there anyone else here who has cerebral palsy and suffers with dystonia I’ve been having bad flare ups where I’m locked in for days recently and it’s painful how do you deal with it?
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Afraid to challenge PIP decision
Hi everyone! New here so please bear with me… I was recently awarded the basic daily living level of PIP, however I believe I should be entitled to the mobility component too. I’m now scared to appeal in case I lose my basic level. Does anyone have any experience or advice to share please? Thank you so much, Sparkle…
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Confused about PIP Activity 11 and familiar journeys
Hi, I'm preparing for a PIP tribunal, and I'm confused about Activity 11. I rarely go out alone. Most of my journeys are with my mum or another trusted person. I might do a short local journey alone around 2-3 times a month, but usually only because I feel I have to. The DWP seemed to focus on the fact that I can…
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Derotation osteotomy
Hello, My Husband (38) with CP, has had a femoral/tibial derotation osteotomy. He was completely independent before (no walking aids). 6 months post surgery he is walking with elbow crutches & has reached a plateau in his rehab, and he's becoming frustrated with not being back to his baseline mobility yet (although we were…
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Medication Management For Independent Living Study
Hi, I am studying Industrial Design, at Loughborough University and I’m currently doing a student research study to gain information relating to the medication management, administration fail points and strategies of individuals with fine motor impairment or disability, to design a related product. The study will be…
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Free app to find toilet, parking and health facilities: Find Nearby
Hi everyone, My name is Callum and I’m the Glasgow-based founder of Find Nearby, a mobile app that helps people quickly find toilets, parking, benches, playparks, health locations and other useful places nearby. I’ve recently made several key accessibility, family and health searches completely free with no ads, including…
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Hi, my name is Bruce4! having difficulty, mobility wise, so am considering ...
Hi all. I have been classed as disabled for a few years now, but sadly feel almost Unabled for many requirements. Am having difficulty, mobility wise, so am considering getting a mobility scooter. But I am rather heavy 18st+ and live in a hilly area, mostly canal hump back bridges, so any advice re extra power or best(also…
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DLA Mobility Timescales
Hello automatic review forms came out as son turned 5, DLA received them back 9th march. Can anyone advise of current wait times for a decision?
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looking for a 'travel' mobility scooter which my partner can easily dismantle
Hi I'm a 'silver surfer' in the south of England. Previously an electrical sales engineer, then publican, In retirement I volunteered to train and facilitate self management courses for people with long term conditions, because it helped me a lot!. I have now retired (about time some might say) and am currently looking for…
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Hi, my name is Crazybobs! i'm 60 in a few days and rely on my Greenpower scooter
Hi all, i'm 60 in a few days and rely on my Greenpower scooter to take my dogs for long walks in the forest. Although i suffer Osteo Arthritis throughout my body, i am a mechanic by trade (medicaly retired) and carry out all my own maintenance, repairs, and hopefully mods, so am looking to exchange ideas and info regarding…
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Green Power Mobility Scooter - Avoid at all costs! Terrible Experience
This is a message to fellow mobility scooter drivers. I am posting this message to hopefully save you some hassle. Please learn from my experience. I bought a Green Power ZT500 scooter online last year and had so many problems. I chose this mobility scooter because it seemed good value - it has all the specs of much more…
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Hi, it is agnesinspireu from Sunny Island!
Joy isn't an emotion; it is a choice to rejoice even in the valleys Hi, my name is Agnes! The above quote is born out of my lived experiences—overcoming challenges and fighting battles. I believe I was created on purpose, for a purpose. Although having a disability or condition isn't a walk in the park. It can be…
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Hi, my name is pjnlass80!
Hi there nice to chat to you have a nice weekend lots to do in Yorkshire long coastline nice pub lunches , Pauline and grown up family here 😊 plenty of time to pass how about you're travels and hobbies 😁 Cheers healthy living good ideas 💡 💞
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Unaffordable public transport
It used to cost me £10 per week to put fuel into my car to visit my Daughter and Grandchildren in the next village (rough terrain and poor mobility means walking isn't an option sadly). Now it takes over an hour to get there and £7 per visit on public transport which has made seeing my family more than once a month…
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PIP mobility change
I am due for review for PIP next year but over this winter my mobility has taken a hit with arthritis flares. I was one point off full mobility allowance last time. Do I report the change now or wait? Will I still be reassessed next year if they reassess me now? Part of me doesn't want to rock the boat but I am struggling…
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Power chair recommendations please?
hi Power chairs are totally new to me The whill c2 looks like a good power chair for me to hire or buy, but does anyone else have any other recommendations? I like the fact that it’s been reviewed and demonstrated a few times on YouTube by people who aren’t affiliated to the product. Am particularly interested if there are…
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Finding the perfect powered wheelchair
Hello, everyone. I hope this is the right place to ask this and that it's okay to do so. I have Cerebral Palsy Spastic Diplegia. I have limited mobility and and have used a manual wheelchair all my life, with e-motion wheels for the past 15 years or so. As a 30-something, I desperately want more independence and I think a…
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Launch of new national council to shape wheelchair provision
Wheelchair users in the UK are being invited to join The Wheelchair Collective – the first national council of wheelchair users. Led by the Wheelchair Alliance, the initiative will give wheelchair users with lived experience the power to influence how wheelchair services are designed, delivered and improved. Backed by…
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Walking stick recommendations for arthritic hands
Hi I need two sticks to walk. I’ve been diagnosed with arthritis in both hands and I’m finding it difficult to use my sticks. Can anyone recommend any good walking sticks? Many thanks
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
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Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
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Best wheelchair-friendly day trips from Newcastle?
Greetings everyone👱♀️ Looking for some light-hearted outings. Any recommendations for accessible spots like parks or beaches within an hour's drive? Bonus if there's good ice cream involved! Let's swap ideas for fun escapes.
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What is a normal day, let alone life?
I thought this would be an interesting topic, With my Mental Health I struggle with my personal care. I am ashamed to admit thy as someone who always takes prides in my appearance, I freely admit that its been an as and when I have the energy jobby. When I came out of the Mental Health Unit in late 2023, I was placed into…
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PIP Tribunal not allowed and bad experience
Hi, I applied for PIP in June 2023 and just had my Tribunal date last week after DWP refused my appeal. I suffer from anxiety, breathlessness, and migraines as well as fatigue, and pains. I was awarded 6 points for daily living and 4 for mobility. The minimum I can say is that this tribunal day was a disaster. The appeal…
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Hi, my name is Dave31!
I am not disabled but my wife is and I understand the problems that you people have in getting around on pavements and getting in various premises both in the UK and in Europe. We use TUI for holidays but they have no idea about the hotels they use even though they have reps visiting them all the time.
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Mobility car scheme - where can I get a mobility car when the driver is under 25?
Hi everyone, i need information if anybody can help. Where can I get mobility scheme car easily that can under 25 be a driver? Any any recommendations which 7 seater car is good in mobility scheme?
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Fastest Electric Mobility Scooter 1000W 60v by Green Power - Third Gear Won't Work
I have a Fastest Electric Mobility Scooter 1000W 60v by Green Power with lithium batteries. it is registered but it only works on first and second gear. how can the third gear work
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To Wheelchair or not to Wheelchair?
I'm 29 and it's becoming increasingly painful and tiring to stand and walk for long. Last year I started university (very late in life😅) with the help of my rollator. I find myself missing days as I just cant bare standing/walking as much as I need to even with my rollator or my crutches. I keep backtracking and talking…
