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Disabled Parents

I am a disabled parent with 3 sons two of them are also disabled. I wanted to be able to talk to disabled parents about the things we struggle with. I dont know and parents who are disabled and all of my friends are able. I have a veru good husbnad who cares for me and my children but would be good to be able to talk and get advice from others in my position.
I dont know how to explain to my children about disability in a way they can understand and i want to be the best parent i can be for them despite my mobility and other limitations. My sons are 9, 8 and 5.
I dont know how to explain to my children about disability in a way they can understand and i want to be the best parent i can be for them despite my mobility and other limitations. My sons are 9, 8 and 5.
Replies
There are a fair number of people in our extended families with chronic illnesses and disabilities.
My little girl is 18m and loves my powered wheelchair, she thinks riding on my lap is the best thing ever. I do wonder about explaining my illness and disability to her later on though.
www.paininthemum.wordpress.com
Specialist Information Officer - Cerebral Palsy
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Research on disabled parenting and PA support
Hi,
Are you a disabled parent? Do you have a personal assistant? I am doing some research into how personal assistance affects relationships between disabled parents and their children as part of my PhD studies at the University of East Anglia. This is an under-researched area, but it is very important as more disabled parents are using personal budgets/direct payments in this way. I am currently seeking participants based in the Essex/Suffolk/Norwich area to interview as part of this project and would love to hear from people with direct experience.
If you would like to find out more, or tell me what you think is important to learn about this subject, please contact me direct by email:
[email protected]
and I will be more than happy to send you further details. Confidentiality and anonymity is ensured.
Thanks for any interest!
Hi
In case you aren't aware, there is an organisation for disabled parents DPPI Disability, Pregnancy and Parenthood http://disabledparent.org.uk/ You can "ask the community" and "share experiences" amongst other things so that you feel a little less isolated.
Claire and Sallyanna - I assume you may already know of the fibromyalgia organisation UK?...if not: hhttp://fmauk.org/ they have a helpline and dedicated benefits line National Helpline 0844 887 2444 (10am - 4pm Mon - Fri)
Benefits Helpline 0844 887 2450 (10am - 12pm Mon, Wed, and Fri)
best wishes :-)
best wishes to you also ;-)