Disabled Parents
I dont know how to explain to my children about disability in a way they can understand and i want to be the best parent i can be for them despite my mobility and other limitations. My sons are 9, 8 and 5.
Comments
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I have a disabled 8 year old little boy. He has epilepsy, chrosome imbalance, sensory disorder, speech and language delay and global developmental delay
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hi, I'm a disabled parent, my daughter and husband are not disabled.
There are a fair number of people in our extended families with chronic illnesses and disabilities.
My little girl is 18m and loves my powered wheelchair, she thinks riding on my lap is the best thing ever. I do wonder about explaining my illness and disability to her later on though. -
I think because I may have passed my condition in to my children I am worried about how to explain it. I have never had the opportunity to talk to other disabled parents to know if he things I worry about are common.
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I'm a disabled mum I have lupus and fibromyalgia I have 2 boys my oldest is disabled he was born prem at 26week and has learning problems. My youngest is nearly 4 ..its a struggle there so active and I'm not I use crutches or a wheel chair I'm waiting for a stairs lift to be fitted and I'm only 34.so I know were you're coming from like you my husband is a blessing. But there are things that only a mother can do and on bad days its very tough not to sit and just cry .but I have to stay strong and hold it back for my children sake .I'm more than happy to email Rhi87 or write letters I don't get out so I don't have any friends
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Hi. I'm 32, living with chronic illness and 3 kids. It's such a tricky situation to be in and so lonely at times. I've started a blog about my experiences and challenges. Please take a look and feel free to contact me if anyone wants a chat.
www.paininthemum.wordpress.com
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I am a 48 year old mother with athetoid CP. I have two non-disabled teenagers aged 18 and 15, and have always found honesty the best policy when discussing my disability. I have been genuinely surprised at how accepting the majority of their friends are but will always try to put them at their ease, especially on a first visit. Humour always helps and, even very young children, will understand the concept of impairment if it's explained in the right way. Unfortunately, this acceptance is not always seen in adults-teachers at Parent Teacher Meetings being a case in point!
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I'm a disabled dad, my daughter is 7 years old. I have always been honest with her since she has been old enough to process the information.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Research on disabled parenting and PA support
Hi,
Are you a disabled parent? Do you have a personal assistant? I am doing some research into how personal assistance affects relationships between disabled parents and their children as part of my PhD studies at the University of East Anglia. This is an under-researched area, but it is very important as more disabled parents are using personal budgets/direct payments in this way. I am currently seeking participants based in the Essex/Suffolk/Norwich area to interview as part of this project and would love to hear from people with direct experience.
If you would like to find out more, or tell me what you think is important to learn about this subject, please contact me direct by email:
Nicola.t.jones@uea.ac.uk
and I will be more than happy to send you further details. Confidentiality and anonymity is ensured.
Thanks for any interest!
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Claire Ballantyne said:I'm a disabled mum I have lupus and fibromyalgia I have 2 boys my oldest is disabled he was born prem at 26week and has learning problems. My youngest is nearly 4 ..its a struggle there so active and I'm not I use crutches or a wheel chair I'm waiting for a stairs lift to be fitted and I'm only 34.so I know were you're coming from like you my husband is a blessing. But there are things that only a mother can do and on bad days its very tough not to sit and just cry .but I have to stay strong and hold it back for my children sake .I'm more than happy to email Rhi87 or write letters I don't get out so I don't have any friends
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I think being honest is best but it's hard to explain in a way that they can understand. I have a very busy life as I'm trying to squeeze as much in before my mobility decreases. It can be very lonely being in pain all the time and I feel quite depressed about it lately.
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Hi
In case you aren't aware, there is an organisation for disabled parents DPPI Disability, Pregnancy and Parenthood http://disabledparent.org.uk/ You can "ask the community" and "share experiences" amongst other things so that you feel a little less isolated.
Claire and Sallyanna - I assume you may already know of the fibromyalgia organisation UK?...if not: hhttp://fmauk.org/ they have a helpline and dedicated benefits line National Helpline 0844 887 2444 (10am - 4pm Mon - Fri)
Benefits Helpline 0844 887 2450 (10am - 12pm Mon, Wed, and Fri)best wishes :-)
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Thank you very much Janeywoo i didnt no that information
best wishes to you also ;-) -
Hi I am a disabled mum of 2 young people 1 is 7 and 1 is 5. I had a very sudden brain hemorrhage a few years ago- I literally went to bed fine and woke up disabled in hospital. I need any tips now!
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