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Hi, my name is lottiekins!

Hello,
I am 29 and live with numerous health conditions that affect my mobility and ability to function. The biggest two are Ehlers Danlos Syndrome, and Postural Orthostatic Tachycardia Syndrome.
I am currently looking for support dealing with the above, the benefit system and am about to hire a carer, so with that too!
Would be great to chat
I am 29 and live with numerous health conditions that affect my mobility and ability to function. The biggest two are Ehlers Danlos Syndrome, and Postural Orthostatic Tachycardia Syndrome.
I am currently looking for support dealing with the above, the benefit system and am about to hire a carer, so with that too!
Would be great to chat

Replies
We are here to support you in any way we can.
Do you have any questions at the moment ?
CR
It is now being passed back to the DWP who have told me they are likely to cancel my claim.
If my PIP is stopped, I will be in serious financial difficulty, and I am petrified. I have a number of difficult health problems cropping up at the moment, and my father has just gone through cancer surgery, so neither him nor mum are working, which means I have no backup.
Is there any advice on what to do in this situation?! I feel so angry that there is no way of fighting your own corner when it comes to the benefits system - its a constant battle.
The DWP should write to you, giving you the opportunity to explain why you failed to attend
However, they will nearly always take the word of their assessor and this will result in your claim being closed
Have you spoken to A DWP manager or just a phone operator ?
If not then that is something you can try
It might be worth getting your local MP involved at this stage
I hope that one of the advisors will be able to give you some suggestions
CR
I have a form of POTS myself, and have found the team at POTS UK to be absolutely brilliant in terms of information and support.
So sorry to hear about your assessment experience and that you've been penalised for something that isn't your fault. Glad that CR has provided some useful information above, and I hope it helps in terms of moving forwards. If there's anything we can support you with in the meantime, just let us know, and keep us updated!
A very very big welcome to you this evening.
Please please let me know if I can offer you help/support ??????
Thanks.