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Pip mobility

babs33babs33 Member Posts: 9 Listener
hi I was wondering if anyone has had to change there mobility needs 
I scored 8 in my appeal and lost my car I wanted to let them no I now have diabetes type 2 and cold and fibromyalgia but am scared in case they take everything back the lost 4 points they can find my way about but I can’t I need help when I’m in my car  I’m never on my own don’t really no what to do 
thank you


  • lindadeniselindadenise Member Posts: 302 Pioneering
    I lost points when i told them my conditions had got worse.
    I have no faith in the DWP or Atos the Assessors i am in constant pain. I really would not like to advise you as i feel completely let down.
  • debsidoodebsidoo Member Posts: 327 Pioneering
    Hi babs3
    Are you still getting pip Care component?
  • geordiangelgeordiangel Member Posts: 3 Listener
    I had everything stopped carers .benefits I'm back down to my original £22 week disability. I've numerous health issues. Don't go out by myself. Only drive occasionally I had rang them to say I was worse. As I now have a heart condition. Ontop of Sarcoidosis. Fibromyalgia. Constant pain from a knee replacement nearly three years ago. Osteoarthritis. Discs crumbling. Kidney and liver problems. Depression.  The list goes on. I was shocked when they took everything off me. I couldn't even get out of the seat to stand up to do some movements he wanted me to do at my medical. I take codeine phosphate. Paracetamol. Naphropam. And pregabalin. For pain. Along with everything else. 
    I've heard lots of people have been taken off benefits. The lady I spoke to at benefits said to appeal it. As they had all my notes there. And back it up with medical letters. So I'm going to go all the way. Even if i have to go to court..good luck to you all. Don't let them get away with it all. Appeal. Xxx 
  • MisscleoMisscleo Member Posts: 646 Pioneering
    Please let us know how you get on at court.
    What do you mean by "at benefits" 
  • wilkowilko Member Posts: 2,182 Disability Gamechanger
    Morning everyone, I was on low rate PIP for care and mobility as my mobility got worst over the 12mths since my first accessment I informed DWP of my worsening mobility and was sent a new form to fill and had a F2F. I had taxi to both accessments due to my mobility issues. I expected  the same rate or care and enhanced mobility, which I did receive when the award letter arrived, Atos was the accessment company. I found no errors or falseying of evidence in both of my reports.
  • babs33babs33 Member Posts: 9 Listener
    I still get care component but can I just have my mobility assessed or will they do both x
  • wilkowilko Member Posts: 2,182 Disability Gamechanger
    @babs33, hi babs, no you will be reassessed for care and mobility, I can take it you where moving from DLA to PIP if so the criteria for the two,benefits are totally different. DLAvis about your disability and PIP is focused on your abilities to cope in daily living activities and your mobility issues. Hope this helps.
  • CockneyRebelCockneyRebel Member Posts: 5,258 Disability Gamechanger
    Hi babs

    If it is a reveiw then they will look at both components

    Be all you can be, make  every day count. Namaste
  • babs33babs33 Member Posts: 9 Listener
    I won’t bother then x
  • babs33babs33 Member Posts: 9 Listener
    i have been on pip for while now but my ability’s to do things have changed n worsened now but after reading reply’s then I’m not going to ask for a review x
  • CockneyRebelCockneyRebel Member Posts: 5,258 Disability Gamechanger
    Hi babs

    What you would be asking for is not a review but a change of circumstance, which may or may not require a f2f.

    A review usually comes a year before the end of your award,
    If your award is ending soon then you might be better to wait

    Be all you can be, make  every day count. Namaste
  • wilkowilko Member Posts: 2,182 Disability Gamechanger
    Hi CR , mine was a change of circumstances but I still had to fill in a new applecation form and go for a face to,face accessment. 
  • babs33babs33 Member Posts: 9 Listener
  • MisscleoMisscleo Member Posts: 646 Pioneering
    Admin why have you sent me Kooberboo7 43 times?
    Why would you think anyone wamt to look at tbis 43 times 
    Stupid! Your wasting peoples time.
    Dont send tbis rubbish to people not 43 times. 
  • Springtime18Springtime18 Member Posts: 21 Connected
    If your condition has changed you can ask for a review because of that, I did that recently and my living went from standard to enhanced although mobility stayed the same, I have put a mandatory reconsideration in as I only need 2 points as ASOS assumed and guessed much of the report. This is my 6 th week come nd up for decision on MR. I'm getting increasingly annoyed with people to scare tactics that they may lose it completely, basically saying be grateful for what you get. I feel you should fight for what you deserve, or you'll always wonder if you'd have won .
  • Springtime18Springtime18 Member Posts: 21 Connected
    I forgot to say it was treated as a new application but ASOS did a home visit at my request, citizens advice have excellent help on their site 
  • sandyp196sandyp196 Member Posts: 133 Pioneering
    Always fight them. The chance of getting what you need is better than accepting what they decide. At least make it as hard as possible for them to bin you off.
    I'm fully expecting to have the pip taken off me after a recent assessment. I'm not scared of the brown letter coming because I'm prepared and I will fight it all the way if I have too.
    I don't have the health to do this and wish I didn't have to, but I will. I didnt ask to be ill. I have paid into this system and I need help to carry on living. 
    I won't make it easy for them to ignore or minimise my health difficulties.   
    When I first got ill I felt so guilty about it and I let the govt treat me like dirt. I accepted all their decisions as I felt so guilty even claiming assistance. 
    Iv got over that. Extreme poverty does that to you.  Now I fight them if I have to and I no longer feel apologetic otr racked with guilt for being unwell.  

  • geordiangelgeordiangel Member Posts: 3 Listener
    I agree Sandy. I felt the same guilt after working all my life until last few years. I didnt ask to be ill. I'd rather be fit and well again. I had a recent mandatory reconsideration rejected. They changed nothing. How can I go from being poorly on care element and disability to getting it taken off me. But I'm worse in lots of ways. The reconsideration changed nothing. None of it makes sense .. Everything I said to them was ignored! It's so infuriating. I'm getting help from citizens advice now. Taking it all the way . 
  • sandyp196sandyp196 Member Posts: 133 Pioneering
    One of the worst things I found is having to let go of my pride and dignity to get what I need. when I lost my career and home I had no idea how the benefits system worked. Time and again I had assessments and got turned down. When I finally got some support they told me to to let go of all my ideas of social norms and show my illness. I realised I had been going to assessments and trying to hide my shame at my situation. I was polite, sociable and actually played down my illness and symptoms. I couldn't help it. I still get the urge to do that now especially when I have good phases.  
    With support I did stop putting on an act and for the first time I was awarded disability benefit.
    I hate this culture the dwp have made that you have to show yourself on your worst day. 
    I know this is necessary, but it's also dangerous for mental health. 
    Iv recently been through a vey bad phase because I had to prove my illness at its worst when I wasn't actually feeling it at its worst. But what it diD was TRIGGER a very bad phase for me that has taken a few weeks to get back under control. 
    We have experts to diagnose illness but it's like their diagnosis means nothing to the dwp. My gP even said once it's very insulting to the medical profession.  
    Mental health conditions are vey prone to fluctuation.  Good and bad. You can't deliberately mess with it like I sometimes feel forced to do to get what I need to survive. 
    This is a very bad system and I think it makes people more sick than they were originally.  Especially if you have to deal with extreme poverty as well as the stress.
    Doctors and specialists word should be enough and disabled people shouldn't have to deal with this. Bt as we do, it's imprtant to do what you need to get what you need.     
  • MisscleoMisscleo Member Posts: 646 Pioneering
    BANG ON!
    Totaly  agree with everything you said.
    I once suggested that their should be a work place where we could go on our best day and do a couple of hours work. Gental work and only when we felt well enough.
    I was told couldnt do that. It would mess up their paper work.
    Stuff your paper work. When we 1st get ill we have some good days and if the dwp didnt treat us so badly MOST honest people would try to do some work for our dignity sake.
    I think we all get worse because we have to be on our guard from some weasel who see us tidy tge path or garden and accues us being able to work 9 till 6pm which is alot difgerent from 15 mins of tidy
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