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Struck down with ill health all of a sudden and now find everyday a struggle

Susan46Susan46 Member Posts: 16 Connected
edited May 2018 in Disabled people
i was fully active 11 weeks ago and struck down with ill health all of a sudden and now find everyday a struggle. im new on here and looking for people in the same situation who can advise and just generally be friends. i suppise really im looking for answers and to try understand my condition , maybe not feel so alone.

Replies

  • AlexAlex Scope Posts: 1,324 Pioneering
    Hi @Susan46,

    Welcome to the community and sorry to hear that you're struggling. I hope we can help. If you don't mind me asking, what's your condition? Maybe we can find other users in a similar situation.

    Thanks.
  • Susan46Susan46 Member Posts: 16 Connected
    hi
    no one knows yet. it happened 2 yrs ago starting from loss of feeling and use in hands. then shoulder and neck. i had to give up great job. 18 months later it disappeared only coming back 3 months ago . started the same way but have weakness down right side in extremities and when talking i stutter alot now and forget what im talking about stare blankly before continuing my talk but about something completely out of context. my family tell me its happening more and more. dizzy and unbalanced the gp has got me a wheelchair and aids for the home. on top of that, both incontinences and basically my life seems sitting at home and too weak to do anything cos my neck and bottom of spine are both very very painful and thd pain is constant including the migraine type headaches. i get no relief from any meds
    i had mri which showed bulging disc on bottom of spine and spurs. however the gp says maybe all the symptoms i have may come from somewhere else and i have to get used to it. no explaination though and im thinking bad things. i cant get any real answers because as gp says...we dont have any to give
     
  • Richard_ScopeRichard_Scope Posts: 2,736

    Scope community team

    Hello @Susan46
    A very warm welcome to the Community!
    Please make yourself at home!

    I'm going to include a link to discussions about undiagnosed conditions.
    https://community.scope.org.uk/categories/undiagnosed_rare_conditions 

    I hope that will be of some help. If you need anything, just ask. We are a very friendly lot.

    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Susan46

    ” Welcome “

    It’s great to meet you this morning.

    I currently have/had a “Rare Condition”

    Following a Stroke & a number off “Brain Opp’s”

    I’m currently a “ok”

    Unfortunately I’m now left with “chronic pain 24/7”

    I’m now part of the team here at “Scope”

    Please please “dive in”

    If there is anything that I can help/support you with please let me know????
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