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Hiya I'm Alison Netty

AlisonNetty
Member Posts: 192 Pioneering
Hi. I have fibromyalgia and osetoartrightis.sorry about spell. Asthma.depression. arthirtis in my spine. Sciatica. degenerating disc. All my disabilities are invisible. No one believes me when I tell them just how much I'm hurting.
Its very isolating, I don't go out much as I haven't got a car. I have a walker and using the bus can be difficult when there is a pushchair. Walking is painful.
Oh well at least I'm alive. Pleased to meet everyone. Hugs
Its very isolating, I don't go out much as I haven't got a car. I have a walker and using the bus can be difficult when there is a pushchair. Walking is painful.
Oh well at least I'm alive. Pleased to meet everyone. Hugs
Comments
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hello alison. it hard when you suffer from invisible disabilities. i suffer with ME, oesteoarthritis, spina bifida and scoliosis non of which are visible as i don't use a wheelchair. no-one sees pain. a lot of the time i am in agony when i walk as the arthritis is in my spine and my legs and also i get a lot of pain because of my spina bifida and always knackered with the ME.
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Hi @AlisonNetty
Welcome to the community! You might like to check out these message boards on the list of discussions: Disabled People, Dealing with Chronic Pain, invisible Impairments and Mental Health Issues. Are you currently receiving any benefits?Disability Gamechanger - 2019 -
Ami2301 I get ESA at the moment, I used to have pip at the lower rate but they took that away in May, I'm fighting that. Going to Tribunal, waiting for a date and time. which is stressing me out. Everything is put on hold until this is over... I have to wait to move into a smaller place as I'm in a two-bed room house. I have no help in doing the gardens so I have to move from my home of 32 years.
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I'm sorry to hear this
Have you considered a mobility scooter?
Disability Gamechanger - 2019 -
I can't afford one.. but would love one.
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It might be worth asking your doctor to wheelchair services, they will assess for what is best suitable for you, maybe a powered wheelchairDisability Gamechanger - 2019
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@AlisonNetty welcome, i too have fibro and a combination of other illnesses that are invisible, my pip was taken away in may also and i am waiting for an appeal date, its like you said our world has to be put on hold because of this, wish you all the luck with yours xHugz to everyone xx
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