Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

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Hiya I'm Alison Netty

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AlisonNetty
AlisonNetty Community member Posts: 192 Pioneering
Hi. I have fibromyalgia and osetoartrightis.sorry about spell. Asthma.depression. arthirtis in my spine. Sciatica. degenerating disc. All my disabilities are invisible. No one believes me when I tell them just how much I'm hurting.
Its very isolating, I don't go out much as I haven't got a car. I have a walker and using the bus can be difficult when there is a pushchair. Walking is painful. 
Oh well at least I'm alive. Pleased to meet everyone. Hugs 

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  • deb74
    deb74 Community member Posts: 814 Pioneering
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    hello alison. it hard when you suffer from invisible disabilities. i suffer with ME, oesteoarthritis, spina bifida and scoliosis non of which are visible as i don't use a wheelchair. no-one sees pain. a lot of the time i am in agony when i walk as the arthritis is in my spine and my legs and also i get a lot of pain because of my spina bifida and always knackered with the ME. 
  • Ami2301
    Ami2301 Community member Posts: 7,944 Disability Gamechanger
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    Hi @AlisonNetty
    Welcome to the community! You might like to check out these message boards on the list of discussions: Disabled People, Dealing with Chronic Pain, invisible Impairments and Mental Health Issues. Are you currently receiving any benefits?
    Disability Gamechanger - 2019
  • AlisonNetty
    AlisonNetty Community member Posts: 192 Pioneering
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    Ami2301  I get ESA at the moment, I used to have pip at the lower rate but they took that away in May, I'm fighting that. Going to Tribunal, waiting for a date and time. which is stressing me out. Everything is put on hold until this is over... I have to wait to move into a smaller place as I'm in a two-bed room house. I have no help in doing the gardens so I have to move from my home of 32 years. 
  • Ami2301
    Ami2301 Community member Posts: 7,944 Disability Gamechanger
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    I'm sorry to hear this :( Have you considered a mobility scooter?
    Disability Gamechanger - 2019
  • AlisonNetty
    AlisonNetty Community member Posts: 192 Pioneering
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    I can't afford one.. but would love one. 
  • Ami2301
    Ami2301 Community member Posts: 7,944 Disability Gamechanger
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    It might be worth asking your doctor to wheelchair services, they will assess for what is best suitable for you, maybe a powered wheelchair :)
    Disability Gamechanger - 2019
  • jane1973
    jane1973 Community member Posts: 175 Pioneering
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    @AlisonNetty welcome, i too have fibro and a combination of other illnesses that are invisible, my pip was taken away in may also and i am waiting for an appeal date, its like you said our world has to be put on hold because of this, wish you all the luck with yours x
    Hugz to everyone xx
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
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    Welcome to the community @AlisonNetty :)
    Scope
    Senior online community officer
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