Hiya I'm Alison Netty — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hiya I'm Alison Netty

Options
AlisonNetty
AlisonNetty Community member Posts: 192 Pioneering
in Start here and say hello!
Hi. I have fibromyalgia and osetoartrightis.sorry about spell. Asthma.depression. arthirtis in my spine. Sciatica. degenerating disc. All my disabilities are invisible. No one believes me when I tell them just how much I'm hurting.
Its very isolating, I don't go out much as I haven't got a car. I have a walker and using the bus can be difficult when there is a pushchair. Walking is painful. 
Oh well at least I'm alive. Pleased to meet everyone. Hugs 
· Share on FacebookShare on Twitter

Comments

  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    hello alison. it hard when you suffer from invisible disabilities. i suffer with ME, oesteoarthritis, spina bifida and scoliosis non of which are visible as i don't use a wheelchair. no-one sees pain. a lot of the time i am in agony when i walk as the arthritis is in my spine and my legs and also i get a lot of pain because of my spina bifida and always knackered with the ME. 
    · Share on FacebookShare on Twitter
  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
    Options
    Hi @AlisonNetty
    Welcome to the community! You might like to check out these message boards on the list of discussions: Disabled People, Dealing with Chronic Pain, invisible Impairments and Mental Health Issues. Are you currently receiving any benefits?
    Disability Gamechanger - 2019
    · Share on FacebookShare on Twitter
  • AlisonNetty
    AlisonNetty Community member Posts: 192 Pioneering
    Options
    Ami2301  I get ESA at the moment, I used to have pip at the lower rate but they took that away in May, I'm fighting that. Going to Tribunal, waiting for a date and time. which is stressing me out. Everything is put on hold until this is over... I have to wait to move into a smaller place as I'm in a two-bed room house. I have no help in doing the gardens so I have to move from my home of 32 years. 
    · Share on FacebookShare on Twitter
  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
    Options
    I'm sorry to hear this :( Have you considered a mobility scooter?
    Disability Gamechanger - 2019
    · Share on FacebookShare on Twitter
  • AlisonNetty
    AlisonNetty Community member Posts: 192 Pioneering
    Options
    I can't afford one.. but would love one. 
    · Share on FacebookShare on Twitter
  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
    Options
    It might be worth asking your doctor to wheelchair services, they will assess for what is best suitable for you, maybe a powered wheelchair :)
    Disability Gamechanger - 2019
    · Share on FacebookShare on Twitter
  • jane1973
    jane1973 Community member Posts: 175 Pioneering
    Options
    @AlisonNetty welcome, i too have fibro and a combination of other illnesses that are invisible, my pip was taken away in may also and i am waiting for an appeal date, its like you said our world has to be put on hold because of this, wish you all the luck with yours x
    Hugz to everyone xx
    · Share on FacebookShare on Twitter
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
    Options
    Welcome to the community @AlisonNetty :)
    Scope
    Senior online community officer
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.