› Welcomes and introductions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hiya I'm Alison Netty

AlisonNettyAlisonNetty Member Posts: 138 Pioneering
in Welcomes and introductions
Hi. I have fibromyalgia and osetoartrightis.sorry about spell. Asthma.depression. arthirtis in my spine. Sciatica. degenerating disc. All my disabilities are invisible. No one believes me when I tell them just how much I'm hurting.
Its very isolating, I don't go out much as I haven't got a car. I have a walker and using the bus can be difficult when there is a pushchair. Walking is painful. 
Oh well at least I'm alive. Pleased to meet everyone. Hugs 
· Share on FacebookShare on Twitter

Replies

  • deb74deb74 Member Posts: 754 Pioneering
    hello alison. it hard when you suffer from invisible disabilities. i suffer with ME, oesteoarthritis, spina bifida and scoliosis non of which are visible as i don't use a wheelchair. no-one sees pain. a lot of the time i am in agony when i walk as the arthritis is in my spine and my legs and also i get a lot of pain because of my spina bifida and always knackered with the ME. 
    · Share on FacebookShare on Twitter
  • Ami2301Ami2301 Member Posts: 7,445 Disability Gamechanger
    Hi @AlisonNetty
    Welcome to the community! You might like to check out these message boards on the list of discussions: Disabled People, Dealing with Chronic Pain, invisible Impairments and Mental Health Issues. Are you currently receiving any benefits?
    Disability Gamechanger - 2019
    · Share on FacebookShare on Twitter
  • AlisonNettyAlisonNetty Member Posts: 138 Pioneering
    Ami2301  I get ESA at the moment, I used to have pip at the lower rate but they took that away in May, I'm fighting that. Going to Tribunal, waiting for a date and time. which is stressing me out. Everything is put on hold until this is over... I have to wait to move into a smaller place as I'm in a two-bed room house. I have no help in doing the gardens so I have to move from my home of 32 years. 
    · Share on FacebookShare on Twitter
  • Ami2301Ami2301 Member Posts: 7,445 Disability Gamechanger
    I'm sorry to hear this :( Have you considered a mobility scooter?
    Disability Gamechanger - 2019
    · Share on FacebookShare on Twitter
  • AlisonNettyAlisonNetty Member Posts: 138 Pioneering
    I can't afford one.. but would love one. 
    · Share on FacebookShare on Twitter
  • Ami2301Ami2301 Member Posts: 7,445 Disability Gamechanger
    It might be worth asking your doctor to wheelchair services, they will assess for what is best suitable for you, maybe a powered wheelchair :)
    Disability Gamechanger - 2019
    · Share on FacebookShare on Twitter
  • jane1973jane1973 Member Posts: 175 Pioneering
    @AlisonNetty welcome, i too have fibro and a combination of other illnesses that are invisible, my pip was taken away in may also and i am waiting for an appeal date, its like you said our world has to be put on hold because of this, wish you all the luck with yours x
    Hugz to everyone xx
    · Share on FacebookShare on Twitter
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Welcome to the community @AlisonNetty :)
    Scope
    Senior online community officer
    · Share on FacebookShare on Twitter
Sign in or join us to comment.