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Pip Review

PaganLadyPaganLady Member Posts: 33 Connected
Hi all, I am new to this site - hello! 
I have read lot's on here but still feel somewhat conflicted and of course worried because I am going through my first review process so any help/guidance would be most appreciated please, thank you! 
I filled out my review form detailing as much as I could about the worsening of my conditions and the effect they are having on me in both aspects - Daily Living and Mobility - but in hindsight, there are so many other things that I didn't think to mention but I think when you get so used to being in constant pain the mind can go awol, I know mine does. Plus, I have acquired a new disease of which I'm struggling to manage and is already having a detrimental effect on my capabilities since first claiming PIP two years ago so I added that to my review form but didn't name my new specialist, they only gave me an option of the best contact so I named the one that is a specialist of my longest problem as I'm currently awaiting a new medicine for it of which he can verify (I was worried incase they mistook my previous missing medicine on my prescription list as an improvement in my illness). I provided a letter of this as supporting evidence along with a copy of my prescriptions, an Occupational Therapists report (I have had to call on one this year for adaptions to my home so it's new to PIP) and a supporting letter from my Son whom I live with and is an unpaid carer of me. Should I call PIP to tell them about the difficulties I forgot to mention - will they even take them into consideration or is it too late and would they be interested in the new specialists details? Or, should I wait to see if I have another face to face and submit everything then? How does this work? I'm worried that they may even stop my payments due to insufficient evidence from me as there was only really mostly details of a worsening of things they already know about. I realise this may have been done to death already so I thank you in advance for your patience. 

Replies

  • reneerenee Member Posts: 7 Listener
    Hi Pagan lady, I too am new to this site and also just sent away my review questionnaire for PIP. Its horrible isnt it! To be honest, Iv always found them very nice and helpful when Iv phoned....which I have done twice since sending my forms away 10 days ago! I would give them a call on Monday and explain your concerns, they will let you know whats best to do. Iv also had the dreaded review through from ESA, just 3 days ago so now Iv got both to worry about. I found the PIP form alot easier to fill out than the ESA so Iv requested the help of Citizens Advice who have kindly gave me an appointment at my local surgery. Must admit, its a horrible time doing benefit reviews. 😕😕
  • PaganLadyPaganLady Member Posts: 33 Connected
    Hi Renee, 
    Thanks so much for your reply  :) I know, it really is horrible - I had both interviews close together when I first made my claim (two years ago) and that was daunting enough. I may yet be called in for my first ESA review now too even though I have been awarded that indefinitely but I know they can and do still review as and when. I only posted my PIP review form back last Thursday, took me ages to fill in and I STILL forgot to mention lot's! I called them to say I'd sent it and he added an extra week on the due date even though it has a good couple of weeks to arrive as it is, lovely of him but kinda worrying at the same time if you get what I mean. I must say that I too have only had nice experiences when I've had to call them and had lovely assessors at my face to face meetings as well so that's encouraging in itself I guess - just a worrying time these reviews huh? Still, I will ring them Monday to be sure, thank you! 
    I hope everything goes smoothly for you with your reviews and CAB help, let me know how you get on (if you're happy to of course  ;)
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    No, there's no need to ring them to mention any of this. If you do this then they could class it as a change of circumstances and send you yet another form.

    Most people have face to face assessments as it's rare to have a paper based one. During your assessment you'll be able to tell them anything you haven't mentioned in the PIP form, providing there's time of course.

    I know what you mean about forgetting to tell them things. Most people just "manage" the best way they can and our disabilities become part of our life so most of the time we don't think about the affect they have on us.

    Once you've had the face to face assessment then you'll be able to ring DWP to request a copy of the assessment report, this will give you some idea what the decision will be.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • PaganLadyPaganLady Member Posts: 33 Connected
    Hi Poppy,
    Thanks for your reply and advice  :) I've just dug out my award letter from when I first claimed which has the initial report and reason's given from the Medical Examiner and have found lot's of inaccuracies. I just skimmed over them at the time because frankly, I was glad to be done with it and grateful to have been awarded but I wished I'd paid better attention now. I have Rheumatoid Arthritis which, as most know, is a degenerative disease so will never get better and also have slipped discs, Sciatica (down both legs) and nerve damage - these are the things which gave me no option but to claim ( I have since developed Type 1 Diabetes which is another Autoimmune disease but that's another story). Anyway, as I'm sure you can well understand, being in constant pain, restless nights of sleeping and even trying to do most kinds of activities causes extreme fatigue/exhaustion and often memory difficulties and it's part & parcel of RA anyway and I remember clearly having to ask her to repeat herself several times and struggled to remember some of the simplest of things and yet she had written that there was nothing wrong with my memory and concentration! I also told her my Son helped me with preparing/reminding me to take my meds because I was often too spaced out to remember and sometimes forget I haven't eaten, yet she said I managed this unaided and without prompting. I did and still do get spaced out on my meds as they are strong and I told her that but this wasn't mentioned?! She also said my grip was normal (it definitely wasn't) and it's a whole lot worse now and she wrote, 'I cannot consider you for any help you may need not covered by the activities for daily living, including ability to work, stairs and weather conditions' ALL kinds of Arthritis is affected by weather and she didn't even ask about that! I then went on to have my ESA assessment and they put me in the support group. I'm really concerned now because I have mentioned all of those things in my recent review and I fear they might wonder what the hey I'm talking about! I realise it's too late to make a complaint now and it seems to me like I will have to have another f2f as you say but I'm going to raise these things while I'm there or is there something I can do about it now would you think? Sorry for the long reply and yes, you're so right about the remembering things - I'm exhausted now!!
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    PIP has nothing to do with your ability to work so this being mentioned in the report is correct. People claim PIP and work. As i said most people have a face to face assessment, it's the process of a claim. Very few people manage to have the paper based assessment.

    There would be no point making a complaint not regarding the last assessment, just concentrate on this review. Good luck.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • PaganLadyPaganLady Member Posts: 33 Connected
    AH! I get the meaning of that statement now, makes perfect sense thank you!! I only remember parts of that interview clearly because I was having one of my worst days (I nearly fell over in the office) and felt so embarrassed  :'( I think the lesson in this for me is take better notice! Thanks again Poppy, I truly appreciate your help. 
  • reneerenee Member Posts: 7 Listener
    PaganLady if you need to have an assessment for PIP, ask for a home one. I did twice and felt so relieved to be in my own home with that kind of interview. I didnt get dressed, my pjs on and all my aids and bits around me. Meds at hand, my daily enviroment. Be the same for you. X
  • PaganLadyPaganLady Member Posts: 33 Connected
    Yes I've heard about that -  thank you Renee, am considering it but don't you have to get your Dr or Medical professional to apply on your behalf? That wouldn't be a problem if so but wouldn't that take a while to arrange? I really have no clue. Have also been told they can refuse a home visit but it would definitely be worth asking if I can x
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    If you go out to other appointments such as hospital and GP then they can refuse based on this.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    You will usually need a very specific letter from your GP stating that you cannot attend for whatever reason. If it is vague then it will likely be refused
    Be all you can be, make  every day count. Namaste
  • reneerenee Member Posts: 7 Listener
    I just phoned and explained why I would prefer this....because of one of my illnesses and it was never refused. X
  • PaganLadyPaganLady Member Posts: 33 Connected
    Got'cha! Thanks Poppy & CockneyRebel - Silly really 'cos hospital & Drs appointments are usually quite local, unlike where they expect you to travel to for a f2f the majority of the time x
  • PaganLadyPaganLady Member Posts: 33 Connected
    Oh and thank you too Renee - so sorry! Yeah I will try to protest against it if it's too far (nicely of course), I'll have to so we will see x 
  • reneerenee Member Posts: 7 Listener
    Theres no harm in asking...if thats better for you. Xx
  • PaganLadyPaganLady Member Posts: 33 Connected
    yeah - it certainly would be because I'm unable to walk or stand for very long. I need to use a walker but I can't grip it safely at the moment (fell over it while trying about a month ago because the wheel got caught on an uneven pavement and have tried to avoid going out since unless I absolutely have to (I have had many falls - balance isn't my strong point) x
  • reneerenee Member Posts: 7 Listener
    You can say that to them. Your just being honest and as I say, your not doing anything wrong in asking. Give them a phone on Monday to ask the bits that you would like x
  • PaganLadyPaganLady Member Posts: 33 Connected
    Hi all,
    Guess what happened to me today?! After umming & ahhing about contacting the DWP about details I'd forgotten to add to my review, I came across other supporting evidence which backs up part of what I said on the form and decided to phone them yesterday on the best way to submit. I also had a drs appointment this morning where he decided to add another drug to my already extensive list (oh joy - not!) and thought best to keep them informed so I called again today - both times I was advised to take the relevant pieces of evidence down to my local Job Center where they would fax it over to them so after having depleted energy from my Drs visit, decided to get a cab to drop it in. Got all the way down there only to be told that they don't do that and haven't done for a few years!! The nice people from the Job Center couldn't believe I had been advised to go there. I'm so annoyed, surely the DWP would know this but I can't believe they deliberately misinformed me because that doesn't make sense. The one good thing I guess is I was told during the phone call to PIP is that my review form and previously sent supporting evidence had been received and passed over for assessment (Atos).
  • reneerenee Member Posts: 7 Listener
    Thats such a pest!! I have new meds to add to my application so I phoned them yesterday and the guy said If I have any new meds or extra info then show it to the person who does my assessment. Hopefully wont be long now 🙄🙄
  • PaganLadyPaganLady Member Posts: 33 Connected
    Yeah that's what I'm going to have to do too I think. 1 good thing is the man at the JC photocopied and stamped my papers for me so at least I can show I tried to submit it beforehand. Do you have an assessment date yet? x
  • PaganLadyPaganLady Member Posts: 33 Connected
    Oh sorry!! You said 'hopefully won't be long now' silly me x

  • reneerenee Member Posts: 7 Listener
    Thats good he did that. It all makes a difference towards our assessment. Hope its not long as the waiting is awful isnt it x
  • PaganLadyPaganLady Member Posts: 33 Connected
    Yeah that's what I thought, he gave me a prepaid envelope and tips on posting to them as well but I decided to just wait until I see them now. I hope the extra evidence does make a difference - I've read too much about how the DWP rarely contact your Drs and specialists to get up to date info so without as much evidence as is possible, it's extra worrying. The waiting is definitely awful, It's a stressful time - I think the whole process is. Fingers crossed we get our dates (or decision) soon x
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    If you have extra evidence then don't wait, send copies now as some assessors will not accept it on the day and many won't read it
    Be all you can be, make  every day count. Namaste
  • PaganLadyPaganLady Member Posts: 33 Connected
    So many do's and don'ts - don't get me wrong it's all valuable advice and I do appreciate it, I just wish it could all be straightforward. Wouldn't the evidence be sent any way to the decision maker even if the assessor doesn't read it? Mine's only a letter proving the elevated inflammation in the joints I mentioned in the form and a prescription showing extra tablets I was told to take today (I asked the receptionist to copy it before I went to the pharmacy to get them as they won't be added to my repeat until the dr has checked how I get on with them) x 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Very often they will refuse to accept any extra evidence on the day of the assessment, it's happened to me twice.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • PaganLadyPaganLady Member Posts: 33 Connected
    It's so wrong that they do that especially when they advise you to do this as in Renee's comment above - the fella I spoke to when I called said that that would be an option for me too. No wonder people become disheartened with this whole process  :( x
  • PaganLadyPaganLady Member Posts: 33 Connected
    UPDATE:  I've just had my review assessment at home..Which they just decided to offer me due to the worsening of conditions I think but I had still been feeling anxious not knowing what to expect of if the assessor would decide for whatever reason to recommend my payments be stopped and they, like for so many if not all of us, are my lifeline.  I needn't have worried, the young gentleman that did the assessment was a kind and gentle soul, very empathic and understanding.  I believe that each visit can last up to an hour and a half but he was only here for about half an hour and said that he wasn't going to carry out a medical because he could see I was in too much pain for one (which I was, due to it being ealy in the morning which is my very worst time - not that the rest of the day is massively better!.)  I told him I felt anxious of my pip being stopped but he reassured me that wasn't going to happen and he accepted extra medical evidence I had acquired as well which I'd been worried they might not.  It was a very positive experience and has renewed my faith in the process.  My message to anyone about to go through this process is to just be yourself and tell them everything - Us Brits have a way of playing down our pains and ailments don't we, stiff upper lip and all that so put any embarrassment or shame aside and let them see a clear picture of your life on a day to day basis.  I pray for everyone to have an assessor as lovely as mine was, lot's of love to anyone about to go through this daunting process <3 x
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger

    Thank you for a positive post. In a few days time you should ask for a copy of the assessment report

    Be all you can be, make  every day count. Namaste
  • PaganLadyPaganLady Member Posts: 33 Connected
    You're most welcome CockneyRebel! And, yes, I will do  :)  x 
  • [Deleted User][Deleted User] Posts: 587 Listener
    Nice to see a positive post for once, thanks for posting @PaganLady :D I had my assessment last week and I'm obviously pretty worried.
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Hi @PaganLady, I'm glad to read about your positive assessor experience, it's great your assessor was so considerate. Thank you so much for sharing it with us. :)
    Senior Community Partner
    Scope

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  • PaganLadyPaganLady Member Posts: 33 Connected
    You're very welcome WF2k! I think all of us at some point have read the horror stories &/or worry that we are going to lose what we depend on or will benefit from, it's only natural.  Obviously I can't promise you things will turn out to be positive for you but hang in there.  It's tough I know. I can tell you though that generally, they do seem to process things quite quickly after the interview now so hopefully you won't have to wait too long.  Wishing you every success x
  • PaganLadyPaganLady Member Posts: 33 Connected
    edited April 2019
    Thank you Adrian, no problem.  I know how stressful and worrying these things can be to face, I'm truly grateful to have had the assessor that I did.  He seemed to want to truly help me in the questions that he asked and that I hadn't mentioned (when there's lots going on medically, it's so easy to forget some things, especially when in pain) x
  • [Deleted User][Deleted User] Posts: 587 Listener
    Thank you very much for those nice words @PaganLady :D You sound like a lovely person. I was awarded enhanced/enhanced the first time around, the report was pretty much what I said in the assessment with just a few small fibs (nothing major), but not all assessors are the same are they.

  • PaganLadyPaganLady Member Posts: 33 Connected
    Thank you @WF2k, that's kind of you to say  :)  No, indeed they are not.  I was awarded standard for both components my first time around and the assessor made judgements on things I was not asked or was but was relayed inaccurately/totally ignored.  I didn't have the strength to challenge it despite being told by certain health professionals I should have been awarded the enhanced rate on both x
  • [Deleted User][Deleted User] Posts: 587 Listener
    Hopefully you'll get the proper award this time :)
  • PaganLadyPaganLady Member Posts: 33 Connected
    edited April 2019
    @WF2k who's to say? I have done these descriptors myself and it also scores me higher than what the HP & DM surmised previously but I wasn't asked a lot at yesterday's reassessment which I don't know is a good or bad thing and I had neither the inclination or the energy to point this out to him. Although, I did mention how tired I was after undertaking certain activities, how some things take me longer to carry out and how I am unable to do things safely.  But, as previously mentioned, the things I was asked seemed to be geared towards genuinely helping me.  I decided to phone the DWP for a copy of my report this morning and was told that sometimes it's best to wait until I receive my decision letter as the DM can often (but not always) refer back to the HP for more info/clarity before deciding which threw me a bit but I asked her if I could request what they have now then request it again after I'd gotten the decision letter if needed and she said I could so that's what I did.  Just throwing that out there for anyone who might benefit x 
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