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Hi, my name is sammy18!

sammy18sammy18 Member Posts: 3 Listener
I am 32 and with six month my mobility has gone completely down hill. I am in very dark place and it my kids and my job that keeps me going just want to know i am too young for premature aging or this is completely normal. I have dyskinetic ataxia cerebral palsy and walked all my life but now found it very hard to walk x

Replies

  • Ami2301Ami2301 Community Co-Production Group Posts: 7,471 Disability Gamechanger
    Hi @sammy18 welcome to the community! Sorry to hear this, I have sensory Ataxia and my mobility deteriorated rapidly throughout 2017. Intensive physiotherapy and occupational therapy has helped massively. Has your GP/consultant suggested anything?
    Disability Gamechanger - 2019
  • sammy18sammy18 Member Posts: 3 Listener
    Hey my gp be awful and had to argue to see a physio. I left in tears and with him saying you know what you have nothing they can do plus pills like tramadol naproxen and citalopram. Once I got to the physio i argue to see someone who has experience with cp so waiting half hour and saw top one. Anyway frist time months feel like i seen someone who know what they talking about and he rather to the neurologist and pain clinic but everything is waiting but last month i cant walk without and now using a crutch x
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @sammy18

    Welcome it’s great to meet you this evening.

    I am one of the “Community Champion’s”

    I do hope that some of our members can offer you some help.

    @steve51
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Hi @sammy18, welcome to the community. I'm really sorry to read how much you're struggling, but I'm glad you found us! Is there anything we can do to provide support to you here? :smile:
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Edster77Edster77 Member Posts: 162 Courageous
    Hi  @sammy18  Welcome to the community
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