Paralysis in legs starting in mid twenties now in wheelchair
my dad was able to walk perfectly fine until his early twenties, his ankles began to turn in and he had poor balance. This continued until he had to walk w a walker, in which he did for yrs but bc he was basically walking on his ankles they became very swollen and is now in a wheelchair in his 50s. He had multiple test done 20 year ago including Blood test, mri, cat scans. They ruled out most things such as MS. He has two brothers. He is the oldest, his middle brother is in his 40s and walks fine, his younger brother in his 20s began the same symptoms as my dad and is now wheelchair bond. The dr said it hasn’t progressed any further. They believe it’s a missing protein or enzyme my grandparents are missing and wanted to do more testing on him, his parents and the younger brother in which my grandmother refused. He was told over twenty years ago that it could not be passed on to his children, but without the help of his brother or his mother there was no more testing that could be done. His dad passed away 5 yrs ago, him and his mother no longer speak, and the youngest brother suffers from some sort of mental retardation that his mother denies he has and refuses to do any testing... I have two siblings we are in our 30s and 40s and walk just fine. Is there a new/old name for this or anything anyone has experienced that is similar?