Hi, my name is Ozziekaila! — Scope | Disability forum
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Hi, my name is Ozziekaila!

Ozziekaila
Ozziekaila Member Posts: 1 Listener
I’m an 18 year old Non-Binary person from the UK. I suffer with a lot of mental health issues such as CPTSD, Anxiety, Depression, EUPD and DID. 
I also have undiagnosed problems with the joints in my legs. They originally thought it was Marfan’s Syndrome but wouldn’t diagnose it.
I’d love to make new friends and hopefully raise awareness and educate people. 

Comments

  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @Ozziekaila

    Good Afternoon it’s great to meet you today.

    We have got a number of members who are also having problems with their “Mental Health Issues”

    Here’s a link below for you:

    https://community.scope.org.uk/discussion/63664/mental-health-anxiety-and-sleep

    I do hope that this is okay for you???

    @steve51

  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    Hi @Ozziekaila - Welcome to the community. My family has Ehlers-Danlos Syndrome, which is also a hereditary connective tissue disorder like Marfan Syndrome. The geneticist said he couldn't rule out Marfan's in our son. It seems there can be some overlap with these connective tissue disorders!
    Please have a look around & join in any discussions.
    I'll ask my friend @thespiceman to come & advise, as he has a wealth of information on mental health issues that should be helpful. The link given above is one of his posts.
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @Ozziekaila     Pleased to meet you.

    Thank you for joining and sharing.


    I am one of the team of community champions .  We guide, advise and help members of our community.


    Thank you for my friend @chiarieds   for mentioning me.

    Please if I can suggest and consider using mental health charities.

    These are worth looking at as many have the experience and knowledge to help those like yourself.

    I used all three of the links , I have provided for you.

    I do understand every day is a struggle, by accessing support, guidance and advice on your mental health.

    You can get floating support, help with benefits, much need knowledge, education on your issues.  Including medications, sleep. Well being health diet and anything they can help with.

    Also importantly using coping methods to make sure you can deal with anything you have difficulty with.

    https://www.richmondfellowship.org.uk

    https://www.mind.org.uk

    https://www.rethink.org.

    All charities do take those clientele with additional problems and conditions as well mental health.

    You can self refer of you can contact your Doctor. 

    Please if I can help with anything or ask anything please contact me.

    Happy to be supportive, listen have compassion, empathy.

    Please I hope you enjoy your time with us.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Connie00
    Connie00 Member Posts: 252 Pioneering
    Hello @Ozziekaila              :)

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. Thank you for reaching out to us, I think you have been given good advise by @steve51  

    @thespiceman  

    @chiarieds     I just wanted to drop in and say hello

    We are always here to lend support, help, and advise where we can,

    If we can be of any assistance to you please don’t hesitate to contact us

    @connie00         :)                         

     



  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Hi @Ozziekaila and welcome to the Community.  It is great to have you on board and I'm sure you will make a very valuable contribution to the forum.  I hope you enjoy your time with us and meet some new friends along the way.  It is a lovely, supportive space full of great people.  There is always someone on here to chat to.  I look forward to seeing you on the Community and reading future posts from you.  If there is anything we can help/support you with then please just let us know.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Welcome to the community @Ozziekaila! :)
    Disability Gamechanger - 2019
  • emmarenshaw
    emmarenshaw Member Posts: 711 Pioneering
    Welcome to the community @Ozziekaila . I’m Emma, one of the Community Champions. Happy to help if you need anything.
  • Adrian_Scope
    Adrian_Scope Posts: 8,576 Scope online community team
    Hello @Ozziekaila and a warm welcome to the community. It's great to have you with us. :)
    Community Manager
    Scope

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