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Hi, my name is peachysaryna
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peachysaryna
Community member Posts: 4 Listener
Hello,
I'm 18 years old with ehlers danlos syndrome and other comorbid disorders!!
I'm 18 years old with ehlers danlos syndrome and other comorbid disorders!!
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Hi @peachysaryna and welcome to the Community. How are you? It's nice to meet you. I hope you enjoy your time with us on the forum and find it helpful. If you have any questions for us or would like some help/support with anything then please just let us know.
Meantime, I believe that one of our members, @chiarieds, has knowledge of ehlers danlos syndrome, so I will tag her in to connect with you and I'm sure she will get in touch with you. All the best.
Hi @chiarieds, I thought you may be the best person to support/advise this new member, if ok? Thanks, @Ails.Winner of the Scope New Volunteer Award 2019. -
Hi @peachysaryna - Welcome to the community. I've also got Ehlers-Danlos Syndrome (hypermobile type, or hEDS) & Chiari 1 Malformation, hence my user name (Chiari +eds = chiarieds)!Have you joined our EDS Support group? See: https://www.ehlers-danlos.org/Here we have a very friendly & supportive community, with quite a few members with EDS, so I hope you enjoy joining in with any discussions, or just chatting here. Please let us know if we can help in any way too.Thank you @Ails; we were both replying at the same time!
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Thanks @chiarieds for that. Great minds think alike, lol!Winner of the Scope New Volunteer Award 2019.
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Welcome to the community @peachysaryna. How are you doing?Community Manager
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