Hi, my name is peachysaryna — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.

Hi, my name is peachysaryna

peachysaryna
peachysaryna Member Posts: 4 Listener
Hello,
I'm 18 years old with ehlers danlos syndrome and other comorbid disorders!!

Comments

  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Hi @peachysaryna and welcome to the Community.  How are you?  It's nice to meet you.  I hope you enjoy your time with us on the forum and find it helpful.  If you have any questions for us or would like some help/support with anything then please just let us know.

    Meantime, I believe that one of our members, @chiarieds, has knowledge of ehlers danlos syndrome, so I will tag her in to connect with you and I'm sure she will get in touch with you.   All the best.  :smile:

    Hi @chiarieds, I thought you may be the best person to support/advise this new member, if ok?  Thanks, @Ails:smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    edited April 2020
    Hi @peachysaryna - Welcome to the community. I've also got Ehlers-Danlos Syndrome (hypermobile type, or hEDS) & Chiari 1 Malformation, hence my user name (Chiari +eds = chiarieds)!
    Have you joined our EDS Support group? See: https://www.ehlers-danlos.org/
    Here we have a very friendly & supportive community, with quite a few members with EDS, so I hope you enjoy joining in with any discussions, or just chatting here. Please let us know if we can help in any way too. :)
    Thank you @Ails; we were both replying at the same time!

  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Thanks @chiarieds for that.  Great minds think alike, lol!  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Adrian_Scope
    Adrian_Scope Posts: 8,572

    Scope community team

    Welcome to the community @peachysaryna. How are you doing?
    Community Manager
    Scope

    Tell us how to make the community better for you. Complete our feedback form.

Brightness

Complete our feedback form and tell us how we can make the community better.