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Hi, my name is peachysaryna

peachysarynapeachysaryna Member Posts: 4 Listener
I'm 18 years old with ehlers danlos syndrome and other comorbid disorders!!


  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @peachysaryna and welcome to the Community.  How are you?  It's nice to meet you.  I hope you enjoy your time with us on the forum and find it helpful.  If you have any questions for us or would like some help/support with anything then please just let us know.

    Meantime, I believe that one of our members, @chiarieds, has knowledge of ehlers danlos syndrome, so I will tag her in to connect with you and I'm sure she will get in touch with you.   All the best.  :smile:

    Hi @chiarieds, I thought you may be the best person to support/advise this new member, if ok?  Thanks, @Ails:smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • chiariedschiarieds Community Co-Production Group Posts: 8,124 Disability Gamechanger
    edited April 2020
    Hi @peachysaryna - Welcome to the community. I've also got Ehlers-Danlos Syndrome (hypermobile type, or hEDS) & Chiari 1 Malformation, hence my user name (Chiari +eds = chiarieds)!
    Have you joined our EDS Support group? See: https://www.ehlers-danlos.org/
    Here we have a very friendly & supportive community, with quite a few members with EDS, so I hope you enjoy joining in with any discussions, or just chatting here. Please let us know if we can help in any way too. :)
    Thank you @Ails; we were both replying at the same time!

  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Thanks @chiarieds for that.  Great minds think alike, lol!  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,955

    Scope community team

    Welcome to the community @peachysaryna. How are you doing?
    Senior Community Partner

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
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