Hi, my name is jayrimm! I suffer from Systemic Lupus — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Hi, my name is jayrimm! I suffer from Systemic Lupus

jayrimm Member Posts: 3 Listener
edited August 2021 in Start here and say hello!
Hi I suffer from Systemic Lupus & I am really struggling with it at the moment 


  • Ross_Scope
    Ross_Scope Posts: 7,507 Scope online community team
    Hi @jayrimm

    Welcome to the community, good to see you join us. 

    I'm sorry to hear that you are struggling with your lupus at the minute, have you spoken with your GP about this to see if they can support you in any way? 

    Is there anything in particular that you are struggling with? 

    I know of one of our members, @lisathomas50, who has experience of lupus so maybe she will be able to offer some insight :) 
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
  • janer1967
    janer1967 Member Posts: 16,509 Disability Gamechanger
    Hi and welcome to the community 

    Sorry to hear you are suffering with your condition and hope other members can offer some advice 

    But as above the best option would be to discuss this with a medical practitioner 

    Hope you feel better soon 
  • jayrimm
    jayrimm Member Posts: 3 Listener
    thank you for the message back 
  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    Hi @jayrimm - Just adding my welcome to the community. As above, do talk to your GP/specialist to see if they can advise as you're struggling with your SLE currently. Is this due to a flare do you think?
    I don't know if you've come across this site before, but I've found it quite informative. Please see: https://www.lupus.org.uk/
    Kindly let us all know how you get on, thank you. Take care. :)
  • jayrimm
    jayrimm Member Posts: 3 Listener
    Yes thanks I have an appointment with my rheumatologist next week as it seems to be a really bad flare up. I am a member of Lupus UK also & many thanks for replying. Makes me feel like people are listening which is a huge help mentally 


Complete our feedback form and tell us how we can make the community better.