If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
age of diagnosis
Options
Biblioklept
Community member Posts: 4,682 Disability Gamechanger
I know girls with autism or adhd statistically get diagnosed later in life than boys but wondered if that's true for those on here or people we care for? I didn't get my diagnosis of both ADHD and autism until I was in my early 20s and wish I'd know when I was at school or earlier. I think I would have more confidence if I had been.
Comments
-
Hi @Biblioklept. Great question. I can only talk for myself as a female with autism.
I can say I was diagnosed much younger than the statistical average for females - probably because I was always very poor at masking!
However, I had all the prejudice leading up to the diagnosis still (e.g., "the rude child")Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
Just sharing in case it makes you or others reading feel any better but I was diagnosed age 9 and it made absolutely no difference to me at school.
At my school they treated the situation based on the child’s needs and behaviour and not the condition. A bit like a PIP assessment where they look at how your condition affects you rather than your diagnoses. A diagnosis doesn’t automatically qualify you for help.The school said that because I was doing well academically and wasn’t disruptive there was no reason for them to offer me any assistance. Basically if I wanted help I needed to either fail my exams on purpose or start misbehaving in class!
Obviously other schools may have had different policies but that was my experience! -
Also as for confidence it actually knocked my confidence as as a child I thought there was something “wrong” with me; but again, that’s just my experience, it may well boost someone else’s confidence to know what their condition is!
-
L_Volunteer said:Hi @Biblioklept. Great question. I can only talk for myself as a female with autism.
I can say I was diagnosed much younger than the statistical average for females - probably because I was always very poor at masking!
However, I had all the prejudice leading up to the diagnosis still (e.g., "the rude child") -
66Mustang said:The school said that because I was doing well academically and wasn’t disruptive there was no reason for them to offer me any assistance. Basically if I wanted help I needed to either fail my exams on purpose or start misbehaving in class!
Obviously other schools may have had different policies but that was my experience! -
66Mustang said:Also as for confidence it actually knocked my confidence as as a child I thought there was something “wrong” with me; but again, that’s just my experience, it may well boost someone else’s confidence to know what their condition is!
So I assumed if I'd known as a child then maybe I could have not believed those things about myself for so long. But actually, that's just viewing it from adult perspective, as a child having a diagnosis could have made me feel 100x worse about myself. I've no way to know. -
Oh OK yes that makes sense. I think having my family understand that something was different did make a difference for me and enabled them to give me better support. My parents definitely pushed for support for me at school, though sadly it didn’t get anywhere!
-
My daughter finally had her diagnosis of ASD and a learning disability at age 17. I fought for 14 years for answers and no one ever believed me. She couldn't speak a single word until she started school and couldn't read, write, count or spell her own name at the age of 7.I was told many many times that i was being an over protective mother and the teachers at school knew her just as well as i did. They told me she was just a shy young girl who didn't speak to anyone and liked to spend her time alone, even at break times.CAMHS were as much use as a chocolate tea pot and we simply got no where. She went to school and completely hid everything until she came home. Every morning i would have screaming, shouting, throwing things around her room and other things (which i won't go into details with here because it could upset others). It was a complete nightmare and i was a single mother with 2 other children. I can't tell you the amount of times i would sit down and break my heart because i had no one to turn to and no family for support.I removed her from school at the age of 15 and she didn't sit any of her GCSE's. I home schooled her for 10 months. We moved 300 miles to a different part of the country and it was there that i finally started to get some help.I always knew in my heart that something wasn't quite right and wasn't going to give up until i had some answers. For this reason it didn't come as any surprise when the offical diagnosis came when she was 17. I even contacted her secondary school and made an official complaint about the way we were treated of course not much was done other than an opolodgy.I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
-
@poppy123456 definitely a case of mum's know best, it must have been very difficult for you.2024 The year of the general election...the time for change is coming 💡
-
That's made me so angry for you and her @poppy123456!!!! I think some people would give up and just think maybe they were wrong or there was no point. Schools are so quick to ignore what seems to obvious unless a child is causing the school issue too I've read that masking is why a lot of girls don't get diagnosed until later and because they don't typically cause trouble they go missed and under the radar!!
-
@woodbine thanks. Yes, it really was. @Biblioklept thanks. Giving up just wasn't even considered. I was asked a few times "what difference would a diagnosis make" well, it made a lot of difference and it gave me answers to all my questions. I'd advise anyone not to give up, if you think something is wrong then fight.When we had her diagnosis i was told that very often girls mask it really well.I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
-
I would say I probably carried it with me, unfortunately, @Biblioklept. However, these days I use it to challenge people and better other people's experiences!Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
that's so lovely @L_Volunteer
-
Thank you @Biblioklept!Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
Heya, I am new here. I got my ADHD diagnosis about one year ago and my ASD diagnosis about a week and a half ago. For context, I'm currently about 21 and a half.
-
Those are both pretty recent @NonbinaryCode. Getting a new diagnosis can bring about some mixed feelings for some people. How do you feel about being diagnosed with ASD and ADHD?
-
Biblioklept said:66Mustang said:Also as for confidence it actually knocked my confidence as as a child I thought there was something “wrong” with me; but again, that’s just my experience, it may well boost someone else’s confidence to know what their condition is!
So I assumed if I'd known as a child then maybe I could have not believed those things about myself for so long. But actually, that's just viewing it from adult perspective, as a child having a diagnosis could have made me feel 100x worse about myself. I've no way to know. -
So sorry @wendy41 I've only just seen your question!!
For ADHD I went through Right to Choose and was seen privately for free so in all it took about 6 months. https://psychiatry-uk.com/right-to-choose/ (Other places offer right to choose too, so worth searching online).
They now do autism assessments through right to choose as well but back when I had my ADHD assessment they only did ADHD. But they wrote back to my GP and said they also suspected autism, so GP referred me to local NHS autism provider, this was a much harder and longer process and took about 2-3 years because wait times were so long.
I'd definitely recommend right to choose for anyone that suspects they may be autistic or have ADHD
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.