Looking for support and advice

pearlydoll

I have been suffering with chronic pain for nearly two years. It’s an intense abdominal pain which really restricts my movements. I wear Butrans patches and have liquid morphine but every days a struggle. I have lost so much weight that people don’t recognise me and I am exhausted all the time. I’ve been tested for so many things including lots of cancer scars but still no answers. 
I have applied for PIP as we are gradually getting more and more in debt and I’m limited to what hours I can work. I’m scared I won’t get the support and don’t know if I met their requirements. My poor partner and mother care for me and keep me going but I feel like such a burden and my mental health has suffered. 

Can anyone help? Or offer me any other financial or medical advice?
Thank You  😔

poppy123456

We can’t give you any medical advice because we are not medical professionals, unfortunately. 

Have you had an assessment for your PIP claim?

Tori_Scope

Welcome to the community @pearlydoll Thank you for joining us!

Firstly, I just wanted to reassure you that you're not a burden. Something I find helpful is to think about how I'd feel if the roles were reversed, and ask myself whether I'd see that person as a burden. The answer is usually no!

It sounds as though things have been very difficult for you lately. Do you mind me asking whether you claim any other benefits at the moment? PIP isn't about your ability to work but, as you've mentioned being limited in what hours you can work, you might like to look into the work-related benefits too. 

Are you receiving any support for your mental health at the moment? 

pearlydoll

Thank you for reaching out. That’s an inlightening perspective, I have actually cared for them both in the past. However, it’s hard to see this as temporary when there’s no end in sight. I’ve never claimed anything before, this is my first time attempting to get help. I’m terrified that if I lose this job (had to give up my last one) we won’t be able to pay our mortgage. Is there something you think could help me?
Ive had no support for my mental health. I was referred to the chronic pain team and I thought they might offer this but they wouldn’t help at all. As my pain is still technically undiagnosed so referral denied, instead they think up a new scare each month to test me for 😔

pearlydoll

Sorry I don’t know how to respond individually. I had my phone assessment on Tuesday Poppy, I was a mess and broke down in tears a few times. I’m worried I didn’t answer my questions clearly as I’m used to trying to say what I can do not can’t do. It’s the opposite of how most of us manage pain 😳
I hope I didn’t mess it up!

Hannah_Alumni

Hello @pearlydoll

I wanted to message to check in. How have you been? Don't worry about getting upset, as you've said, things have been very stressful, and it is your first time claiming anything. Were they able to answer any questions you had? 

I do hope the Chronic Pain Team has been able to help you. You can always be referred through your GP for mental health support