Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.

Seizure diary? Yes or no

Options
bluefox
bluefox Community member Posts: 636 Pioneering
My review for PIP is only months away and I have a loop recorder in because they thought my seizures might be cardiac related. However it’s not. I haven’t kept a seizure diary because of 
a) my mood
b) I’m disorganised with my ADHD
c) I thought with me having a loop recorder in, that even though I’ve missed episodes to record, it’s always recording and would be useful. 

So my question is. Will not having a seizure diary go against me at review? I didn’t use one for my initial award but then most of my award is aimed at depression/mood and anxiety. 

Comments

  • poppy123456
    poppy123456 Community member Posts: 56,060 Disability Gamechanger
    Options
    bluefox said:


    So my question is. Will not having a seizure diary go against me at review?
    No.

    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Options
    You can always start one now before your review comes through if you think it will be relevant 
  • bluefox
    bluefox Community member Posts: 636 Pioneering
    edited November 2022
    Options
    janer1967 said:
    You can always start one now before your review comes through if you think it will be relevant 
    Good idea. My doctor today was mentioning going back to a neurologist, so not sure I’ll have his evidence in time but I could definitely do a diary and see if the NEAD team can help. 

    If I am collecting evidence for a review. Would a letter from April time saying I’m under the care of the Neighbourhood mental health team be of any use?
  • poppy123456
    poppy123456 Community member Posts: 56,060 Disability Gamechanger
    Options
    bluefox said:

    Would a letter from April time saying I’m under the care of the Neighbourhood mental health team be of any use?

    If you think it will help there's no harm in sending any evidence you have.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.