"Being young and disabled": free snack box to the first 30 who register for the Members Social event — Scope | Disability forum
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"Being young and disabled": free snack box to the first 30 who register for the Members Social event

Giovanni_Scope
Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
edited January 2023 in Community updates
Hi everyone,

I’m excited to invite you all to the second Members Social event, which will take place online on Monday 9 January 2023, from 6.30pm to 8pm.

The theme of this event is: "Being young and disabled".

Please note: you need to be a Scope member to participate - which is not the same of being a user of the online community.

You can become a Scope member for free now

The first 30 people to register will get a vegan snack box. Please note: in the spirit of sharing, we will prioritise people who have not received a snack box yet.

Read more about the event and register now




[Alt-text: a collage of the speakers' photos]
Giovanni Gaetani (he/him)
Membership Programme Lead
Here East Press Centre, 14 East Bay Lane
E15 2GW, London (UK)
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Comments

  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
    edited December 2022
    Please leave a comment if you have any questions about the event or if you have any issues signing up as a Scope member. :smile:

    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • durhamjaide2001
    durhamjaide2001 Community Co-Production Group, Scope Member Posts: 9,804 Disability Gamechanger
    I have signed up 
  • Elysium
    Elysium Scope Member Posts: 98 Pioneering
    What’s your definition of ‘young’? 
    They/them, Autistic, Vegan, Pan/Demi, Teacher, Antiracist, Artist
  • Lisa82
    Lisa82 Scope Member Posts: 201 Pioneering
    Thank you for the invite to become a member, however, unfortunately am unable to as I don't think I will remember all of the rules linked to it (ie attending the meetings regularly but can only attend online events anyway) and I don't want to let the group down. Just in case you notice I put in my details but then decided not to submit the form, that's why. Have a lovely safe day everyone 😀
  • Puja
    Puja Community Volunteer Adviser, Scope Member Posts: 104 Courageous
    Elysium said:
    What’s your definition of ‘young’? 
    I also questioned this to Gio and he said 18-25 but everyones invited to watch no matter age 🙂
    My Pronouns are (She/Her & They/Them)

    I have lived experience of ND conditions, chronic pain, mental health & well-being, PIP, ESA, employment and benefits. 

    😊 Why not fundraise for SCOPE for free while you shop online 💜💛 🎅🏻 💷💸 🍯💻 📱🛒 🛍️ 📦 

    SCOPE ebay shop (online)
  • Puja
    Puja Community Volunteer Adviser, Scope Member Posts: 104 Courageous
    Hi @Lisa82 I have been a member for a few months and all the events have been online and theres no expectations, they send a email newsletter and record the roundtables etc
    so you can catch up definitely a nice thing to join up as a member if you enjoy scope online community etc and want to be more involved in their work and socialise to meet other members virtually I would recommend it 🙂
    My Pronouns are (She/Her & They/Them)

    I have lived experience of ND conditions, chronic pain, mental health & well-being, PIP, ESA, employment and benefits. 

    😊 Why not fundraise for SCOPE for free while you shop online 💜💛 🎅🏻 💷💸 🍯💻 📱🛒 🛍️ 📦 

    SCOPE ebay shop (online)
  • Elysium
    Elysium Scope Member Posts: 98 Pioneering
    PSp27pe2 said:
    Elysium said:
    What’s your definition of ‘young’? 
    I also questioned this to Gio and he said 18-25 but everyones invited to watch no matter age 🙂
    Well I’m waaaay past that but would still say I’m young…tbh I’ll probs still class myself as ‘young’ well into my 90’s lol… :D
    They/them, Autistic, Vegan, Pan/Demi, Teacher, Antiracist, Artist
  • Lisa82
    Lisa82 Scope Member Posts: 201 Pioneering
    PSp27pe2 said:
    Hi @Lisa82 I have been a member for a few months and all the events have been online and theres no expectations, they send a email newsletter and record the roundtables etc
    so you can catch up definitely a nice thing to join up as a member if you enjoy scope online community etc and want to be more involved in their work and socialise to meet other members virtually I would recommend it 🙂
    Thank you. This is useful to know 😃. I will definitely think about it. I am past 25 though although I would still consider myself as young 😊. Have a lovely safe day 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    I can hear how people are past 25 but would still consider themselves young. It might be worth having this conversation with @Giovanni_Scope

    I am sure everyone has valuable contributions, though the target group are up to 25. If anyone has any other questions, please don't hesitate to ask away  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • chiarieds
    chiarieds Community member Posts: 15,902 Disability Gamechanger
    It seems like Psp27pe2 has already questioned Giovanni about this @L_Volunteer - &, by the reply they received, it seems everyone is welcome. I therefore feel it's erroneous to say the 'target group' are those up to 25, & wouldn't want you to put members off from joining the event.
    I would be interested in hearing one of the speakers in particular as they suffer from Hypermobility Spectrum Disorder, whereas myself & family (shhh.....don't tell anyone, including 2 grandchildren in the 18-25 year age bracket) have the hypermobile type of Ehlers-Danlos Syndrome, so, a very similar disorder.
    P.S. @Giovanni_Scope - one of the speakers has the more correctly spelt 'facioscapulohumeral muscular dystrophy.'
  • Lisa82
    Lisa82 Scope Member Posts: 201 Pioneering
    @Giovanni_Scope Hi. I hope you are well and keeping warm 😃. Just to clarify, are people allowed to join your 'being young and disabled members group', I'm not a member of it but am just curious to know because of what I hear on the platform. Thank you in advance 
  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
    Elysium said:
    What’s your definition of ‘young’? 
    We define young members any member aged 18 to 25 years old, but being young is something different - I am 34 years old and I dare anyone NOT to consider me young!   :pensive:

    I hope it helps!
    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
    Lisa82 said:
    @Giovanni_Scope Hi. I hope you are well and keeping warm 😃. Just to clarify, are people allowed to join your 'being young and disabled members group', I'm not a member of it but am just curious to know because of what I hear on the platform. Thank you in advance 
    Hi Lisa,

    The event is for members only, of all age!

    Becoming a member is free and easy, you simply need to fill in a sign up form.

    You can read more about our membership on our website

    And then you can join our family for free

    Looking forward to welcoming you on board!

    Giovanni
    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • Lisa82
    Lisa82 Scope Member Posts: 201 Pioneering
    Lisa82 said:
    @Giovanni_Scope Hi. I hope you are well and keeping warm 😃. Just to clarify, are people allowed to join your 'being young and disabled members group', I'm not a member of it but am just curious to know because of what I hear on the platform. Thank you in advance 
    Hi Lisa,

    The event is for members only, of all age!

    Becoming a member is free and easy, you simply need to fill in a sign up form.

    You can read more about our membership on our website

    And then you can join our family for free

    Looking forward to welcoming you on board!

    Giovanni
    Thank you for confirming this 😃
  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
    chiarieds said:

     I therefore feel it's erroneous to say the 'target group' are those up to 25, & wouldn't want you to put members off from joining the event.
    Hi @chiarieds,

    there is no "target group" for this event, where did you read that?

    We want members of all age to join, because everyone has something to say about this theme!

    And thanks for pointing out the typo.

    I hope to see you at the event,

    Giovanni
    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • Lisa82
    Lisa82 Scope Member Posts: 201 Pioneering
    Lisa82 said:
    @Giovanni_Scope Hi. I hope you are well and keeping warm 😃. Just to clarify, are people allowed to join your 'being young and disabled members group', I'm not a member of it but am just curious to know because of what I hear on the platform. Thank you in advance 
    Hi Lisa,

    The event is for members only, of all age!

    Becoming a member is free and easy, you simply need to fill in a sign up form.

    You can read more about our membership on our website

    And then you can join our family for free

    Looking forward to welcoming you on board!

    Giovanni
    Hi Giovanni. I have became a member of Scope now and joined the event. Thank you 😃
  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
    This is great news, Lisa!  <3

    Welcome to the family, and I'm looking forward to meeting you at the event!
    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • chiarieds
    chiarieds Community member Posts: 15,902 Disability Gamechanger

    I am sure everyone has valuable contributions, though the target group are up to 25.
    Hi @Giovanni_Scope - this was mentioned above, which you have confirmed isn't correct as I thought.

  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 147 Pioneering
    Apologies for the confusion, @chiarieds, and thanks for understanding :-)

    Laura was referring to another initiative in fact - we are focusing on recruiting young disabled members 18 to 25 years old, because at the moment this demographic is one of the most underrepresented group in our membership.

    I hope this helps, and see you at the event,

    Giovanni
    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • chiarieds
    chiarieds Community member Posts: 15,902 Disability Gamechanger
    Thank you for the explanation @Giovanni_Scope - I hope you can recruit younger disabled members. However, from the notes I made at the time, Scope identified in the 'Theory of Change' for the online community workshops that younger disabled members (as well as parents of disabled children) join looking for information, but don't stay in the community long nor contribute to it in a significant way.

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