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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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In Memory of Tina Sharp 1966 -october 2021
So, on the 17 October, it will be three years since my sister, Tina Sharp passed away at 55yrs . Whoever said time is a great healer, was wrong, as my grief for her, is stronger than ever. People do not understand how difficult it is to lose a disabled loved one. I was 5yrs when Tina was born, with quadruplegic cerebral…
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World CP Day and Disney+ Collaboration
I don't know if you have seen but Disney+ has adapted the book, "Out of My Mind" for World CP Day 2024. This is huge! WorldCPDay.org says: Our exclusive partnership with Disney+ for World Cerebral Palsy Day has received global recognition. On Friday, October 4 we launched the trailer for Out of My Mind - a new film telling…
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I'm a disabled beauty Queen raising Awareness of Cerebral Palsy
“In pageants, beauty queens don’t speak about disabilities or health conditions. But that’s not real. I want to show that this happens, and we can be a part of something.” One of the reasons I had to leave school was because of negative attitudes. Through primary school, I used a lot of different aids and was constantly in…
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Veezu partners with Cerebral Palsy Cymru for October Fundraising
Veezu partners with Cerebral Palsy Cymru Jack Price, Regional Director at Veezu, added: “We’re excited to partner with Cerebral Palsy Cymru and support the incredible work they do for children and families across Wales. Our team is proud to be part of an initiative that will make a real difference in the lives of those…
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Mowgli Street Food Cardiff Raise 75K for Cerebral Palsy Cymru
Mowgli Street Food Fundraisers The Cardiff branch of the popular Indian Street Food Restaurant has raised £75,026 for Cerebral Palsy Cymru to date. @SaraC_Scope
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The countdown is on! World CP Day 2024
The countdown is on! There are now just ten days to go until we celebrate World Cerebral Palsy Day on Sunday 6 October 2024! Every year, 6 October is an opportunity to come together in a global day of action and celebrate the resilience, diversity and vibrancy of people with CP. In 2024, the theme of World CP Day…
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Cerebral Palsy and puberty
Hi I am a SENDCo at a primary school supporting a young girl in Year 4 who has cerebral palsy and we think is starting to go through puberty. We have heard it can happen earlier in children with cerebral palsy is this right? Are there any organisation out there that can support? We are in Tameside. Thank you
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New Boccia Club in Bolton
CP Networker, Carla is starting a new Boccia club in her home town of BOLTON. If you, or anyone you may know, would be interested in going along on a Friday afternoon to play or even to try the game - please click the link and join her new Facebook group, Bolton Boccia
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Meds and Moves: The art & science of living well with cerebral palsy
You are invited to attend our upcoming webinar Meds and moves: The art & science of living well with cerebral palsy on Friday 11 October at 7 am UK time Join us for this insightful webinar exploring individual experiences with medication. Each person from this group of presenters with diverse lived experience—Madison…
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CP Football starting in Leicestershire
Leicestershire & Rutland County FA have been supporting local grassroots football club, Wigston Foxes, to set up CP football sessions for children aged 5 - 11 years old. Wigston Foxes are a disability specific football club, who have been running PAN-Disability football sessions for a number of years. The club committee…
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My Son has cerebral palsy and looking for support groups!
HI all My Son has cerebral palsy he is only 16 months old..however I want to support him as much as possible and would love to get help from others in a similar situation or help other families. Can anyone point me in the right direction, or shall I create my own!! Thanks Dale
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Boccia UK. Have you got what it takes to be a Paralympian?
Boccia UK Are You Competitive? Thrive Under Pressure? Good At Strategy Games? A Creative problem Solver? To play boccia at international level, we are looking for people in BC1-4 classification. Athletes in these classifications are QUADRIPLEGIC, as a result of: Hypertonia Ataxia Athetosis Limb deficiency Impaired muscle…
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New research explores the causes and consequences of falls in adults with cerebral palsy
A new study exploring the causes and effects of falling for adults with cerebral palsy (CP) throughout their lives, has found there is a lack of appropriate support from health agencies in helping to manage or prevent them. The findings of the research, which are published in the International Journal of Disability and…
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The Royal College of Podiatry issued a policy document concerning Cerebral Palsy
The Royal College of Podiatry issued a policy document concerning Cerebral Palsy. In the July/August edition of The Podiatrist, there was a 3-page learning module about CP The RCPod publishes a new policy statement about the podiatric management of children and adults with Cerebral Palsy
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Understanding and Addressing Behaviours of Concern in CP
Understanding and Addressing Behaviours of Concern This online session will help parents, carers and other adults to make sense of what a child, young person or adult’s behaviours mean and explore ways of reducing behaviours of concern. Focus will be placed on practical assessment and intervention tools that can be used in…
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An inspiring story about football, fitting in and true friendship
An brilliant new upper Middle Grade novel…Raz Beri by Matt Stephens Publication Date: 29th August 2024 9781915444615| £7.99 | Paperback | 10 years + available to order now on Amazon: An inspiring story about football, fitting in and true friendship Billy has cerebral palsy and he’s had enough of his classmates treating him…
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Clothing for Children Disability Research
Hi fellow community members! I’m a PHD student researching the lack of choice for children’s clothing for those with disabilities. My little brother had CP and we had a nightmare buying right fitting clothes for him. Hoping to shine a light on the issues our community faces. Would you be so kind as to share your child’s…
