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You've Got to be Ballsy to Have Cerebral Palsy
Online Campaign Launch: "You've Got to be Ballsy to Have Cerebral Palsy” Thursday 2 October 2025 11:00-12:00 On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and…
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7 Days to Go to World CP Day 6 October 2025
World CP Day is just around the corner, Monday, 6 October, and we need your voice to make this year’s campaign louder than ever! This year’s theme, #UniqueANDUnited, is about celebrating the power of our community while showing the world that cerebral palsy is not one story, but millions of unique ones. 👉 In the final…
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Ringing the NASDAQ Bell for World CP Day 2025
This World Cerebral Palsy Day, the Cerebral Palsy Foundation is honoured to take part in a very special tradition — the ringing of the NASDAQ closing bell in New York City. This year, Ila Eckhoff, Chair of the Cerebral Palsy Foundation’s Board of Directors, will lead the ceremony, joined by families, community leaders, and…
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Days out Lincolnshire Autism friendly
Hello! Does anybody have any recomendations for days out which are autism friendly? Thank you:)
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'She doesn't get another childhood': The lives on hold waiting for wheelchairs
Wren has cerebral palsy, affecting her speech, all four of her limbs and her posture, meaning she needs help with everyday activities. At home, the 11-year-old uses an NHS manual self-propelled chair. It took more than a year to get this chair, well over the NHS's official target of 18 weeks. While Wren's mum, Anna, says…
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Cerebral Palsy-Social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Cerebral Palsy and Stigma Study with the University of Surrey
The study has now been published in an academic paper, and I wanted to again express my thanks for all the support that you gave with the project. You have all been thanked in the acknowledgements for the project, as we couldn't have done it without you. Description of study A University of Surrey researcher and 2 adults…
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Chest health and cerebral palsy
Help improve chest health for children and young people with cerebral palsy. Here is a video that explains more about the research: Participants needed: • People aged 8-25 with cerebral palsy • Parents or carers • Health, social, and education professionals • Researchers Your input will guide crucial measures for research…
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CP - orthotics
Hi there My son who is almost 4, has cerebral palsy. His left leg is mainly impacted. He’s been referred to orthotics for a splint but this is taking a long time. Has anyone got experience of this and whether the splint helped, or whether anyone has gone private and what their experience has been, Many thanks
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Mother Heartbroken Over Parks Poor Accessibility.
A mum says she is "angry, upset and heartbroken" over the opening of a new play park that does not cater for her daughter's disabilities, despite it being described as an "accessible space." Rebecca said there "wasn't anything" her two-year-old daughter Hannah, who has cerebral palsy and is non-mobile, non-verbal and…
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Get involved in a new physiotherapy game!
We have an exciting opportunity! Please see below to get involved! Hello! We're Aaruni and Pranathi. We made Plia Therapy. It's a digital platform for children with neurological conditions like cerebral palsy. We use games and Augmented Reality to make exercises fun. Our AI personalises these exercises for each child. They…
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CP Sport's National Athletics and Activity Day!
With just over a week to go, we are so excited to see you all. We have 102 athletes competing this year! Plus, we have a host of other activities and sporting partners attending the day. If you haven't booked onto the free activities yet, please scan and book below or visit our website. With just over a week to go, we are…
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Creative Pathways is back for 2025!
Creative Pathways is back!! In association with Scope and The Rosie Jones Foundation. 28 & 29 August @ Here East, London. FREE!!! We’re back with another amazing lineup of creative professionals to move and inspire you!! Including the incredible Rosie Jones! If you’re between 11-19 (secondary & above) and have cerebral…
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Mild CP
My 2 year old has recently been diagnosed with mild CP. It causes her left arm and leg to be stiff but she can use them both. She has OT assessment tomorrow and physio assessment on Tuesday. She was born at 24 weeks and had 3 surgeries so far, so she’s already been through so much. Can anyone give me a sense of what’s to…
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🌟 Attention Parents of children with cerebral palsy! 🌟
You have asked, and we have provided! Join our session on Education, Health, and Care plans (EHCPs). Connect through our live Zoom session with SEND specialists IPSEA. They will share general advice about EHCPs. 📅 Thursday, 18 September ⏰ 11:30am until 1pm 🚨 Limited spaces available Very limited spaces available - book…
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Hi, my name is Jude_Cumbria_CP!
Hello everyone, My name is Jude, I am a family advisor for a charity called Cumbria Cerebral Palsy. We support individuals and families who have Cerebral Palsy. I am looking for people in my area to support and wondered if there may be people on here that may not know about us? We offer lots of support including help with…
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Hi - Building CP games
Hi everyone, I'm a bioengineer, building games to make physiotherapy more fun/easier :)
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Join us at CPotential for Intensive Therapy during the Summer Holidays:
Join us at CPotential for Intensive Therapy during the Summer Holidays: Weeks 1 and 2 – Monday 28th July to Friday 8th August Weeks 3 and 4 – Monday 11th August to Friday 22nd August. Summer intensives are generally 10-day blocks, starting Monday 28th July or Monday 11th August. However, if you are hoping to book a shorter…
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School Staff training
I'm a senco at a mainstream school. We have an 11 yr old in a wheelchair with cerebral palsy. New staff with no experience/training. Any idea where we can get staff training for moving and handling young adults and/or wheelchair training? He does not need a hoist - South west UK
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Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
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Government SEND Review
As part of their wider SEND review, the Government is considering reforms to EHCPs. This potentially could change how needs are identified and supported, particularly in mainstream schools. If you are a parent of a child with CP who has an EHCP or a young person with CP who has an EHCP, we would love to hear what your EHCP…
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Children with Speech Issues Risk Poor Mental Health.
Children struggling with their speech and language are at greater risk of developing mental health problems like anxiety and depression, the charity Speech and Language UK has warned in a report seen exclusively by the BBC. BBC News Speech and Language Issues Related to Poor Mental Health
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Children help develop 'fun' new physio aid
From BBC News An award-winning Loughborough designer has created a potentially life-changing physiotherapy aid to help children with learning and movement disabilities. Katie Michaels was inspired to create Moti Me - which uses animal characters, colourful lights and dozens of mini games to develop movement - when a family…
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Looking to connect with other who have similar questions
Hello Scope community, I want to introduce myself. I am the mum of a 9 year old with CP. It's relatively mild (GMFCS 2) so he can do quite a bit, and is at a mainstream school. I face a number of issues from to time regarding his development, and wondered if I could connect with others who have similar questions or…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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BBC Make a Difference Awards in Wales 2025
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Out Of My Mind’ Star Phoebe-Rae Taylor & Director Amber Sealey On Championing Disability Stories
The Disney+ original movie Out of My Mind, based on the novel of the same name by Sharon M. Draper, follows preteen Melody Brooks (Phoebe-Rae Taylor), a girl with cerebral palsy. Melody has a sharp mind, but due to her being non-verbal and using a wheelchair, she is not given the same academic opportunities as her…
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British Ice Skating's Let's Skate Project
British Ice Skating's Let's Skate project, launched in 2024 aims to grow the opportunities for disabled people to participate in ice skating. A number of ice rinks and clubs have signed up to the Let's Skate project to deliver new inclusive ice skating sessions. Watch this space as CP Sport are teaming up with British Ice…
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Para Ice Hockey - Sheffield
📣 CALLING ALL FUTURE STEELKINGS 📣 We're always on the lookout for the next Steelkings players to join our growing family! And that could mean you! 😊 On the 20th June, we are running an introduction to para ice hockey for those people who are interested in getting involved in the coolest team sport going! We're particularly…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
