-
CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
-
CPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024
ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024“Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to organise an online…
-
Research participants needed
The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…
-
Changing the definition of cerebral palsy
The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…
-
Cerebral Palsy Specialist-Cardiff
Good afternoon everyone. I'm Sara and I've worked for Scope for five years in the family services team. I wanted to introduce myself again as I have recently been appointed as Scope's Cerebral Palsy Specialist for Cardiff and surrounding areas. I'm looking forward to working with the cerebral palsy community. Online and…
-
Connecting the dots in an infant’s early development
REGISTER FOR THE WEBINAR Connecting the dots in an infant’s early development - Cerebral Palsy Scotland This webinar will provide Health Visitors and parents with practical ideas to support your baby’s development and milestone achievements. We will discuss strategies to support ongoing gross motor skill progression and…
-
'In horse riding I don't have to depend on anyone'
Govind, a 16-year-old dressage rider from south-east London, has found independence on the back of a horse. "I have to rely on a lot of people in my day-to-day life, but in horse riding I don’t have to depend on anyone," he said. He has cerebral palsy, and began riding on the advice of his doctor, to help strengthen his…
-
Discover Your Paralympic Potential events
Following a spectacular Paralympic Games in Paris where we saw so many inspirational performances from ParalympicsGB athletes, we are on a mission to bring sporting opportunities to as many disabled people as possible. We are excited to announce that each National Disability Sport Organisation and ParalympicsGB, are…
-
What's Life with Cerebral Palsy Like? My Neuro Survey 2024-2025
What's life with cerebral palsy really like? Share your experiences We're urging Scope supporters to fill out My Neuro Survey. Run by The Neurological Alliance, My Neuro Survey is the largest patient experience survey of people with neurological conditions in the UK. By filling in the survey, you will help to improve the…
-
Communicating with cerebral palsy: How Maddy found her voice
Maddy Norman says she was born without a voice, using technology to communicate since she was five - now she performs poetry recitals. Watch Maddie's interview on ITVX
-
Cerebral Palsy Therapy
SDR PROGRESSION SDR Progression offers therapy that is focused specifically for your child's capabilities and needs. This service is also extended to teenagers and adults. Therapy is offered to those suffering from Cerebral Palsy, and also those who have had SDR (Selective Dorsal Rhizotomy) surgery which attempts to remove…
-
Mum writes play about her battle for son's cerebral palsy support
Mumfighter-Swansea play review. Powerful play explores life bringing up a disabled child. Wales Online Mumfighter play review
-
My CP Webinar Series: Update on Dystonia and CP
On Wednesday, October 30 at 8 pm ET, Midnight UK time, our MyCP webinar will provide a broad overview of all the progress toward addressing the issues raised by the community including the development of new educational materials, improvements in dystonia diagnosis and plans to study the effectiveness of common treatments…
-
Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you!
Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you! The Department for Education has recently launched a Curriculum and Assessment Review and we would like to hear about your experiences and to know what you think needs to be changed in the current curriculum, its delivery and assessment to…
-
Hello to SDR Progression!
SDR PROGRESSION SDR Progression offers therapy that is focused specifically for your child's capabilities and needs. This service is also extended to teenagers and adults. Therapy is offered to those suffering from Cerebral Palsy, and also those who have had SDR (Selective Dorsal Rhizotomy) surgery which attempts to remove…
-
In Memory of Tina Sharp 1966 -october 2021
So, on the 17 October, it will be three years since my sister, Tina Sharp passed away at 55yrs . Whoever said time is a great healer, was wrong, as my grief for her, is stronger than ever. People do not understand how difficult it is to lose a disabled loved one. I was 5yrs when Tina was born, with quadruplegic cerebral…
-
Tune in to The One Show on BBC One tonight at 7pm to catch Emily's incredible story!
Emily and the BBC Children in Need Challenge Squad Home > News > Emily and the BBC Children in Need Challenge Squad The One Show welcomes back the epic fundraising challenge, The Challenge Squad for BBC Children in Need, and we’re so excited to announce that Emily – a long-standing CPotential friend and service user – is…
-
Research participants needed: Yoga to support children/young people with physical health conditions
Hi there, I am a trainee Clinical Psychologist at the University of Exeter and I am researching the use of yoga to support the mental wellbeing of children/young people with physical health difficulties. I am looking to interview children/young people and/or their parents/carers about their experiences of yoga. They only…
-
The joy of accesible sport and CP
Paul McAuley Community reporter for Liverpool Echo Ellis Palmer is now working alongside British Power Hockey Association.(Image: Ellis Palmer ) A man is doing the “unimaginable” after “giving up” when he was a teenager. Ellis Palmer, from Birkenhead, has been a wheelchair user for most of his life, having been diagnosed…
-
NIHR Imperial Biomedical Research Centre awarded over £1m for vital research equipment
The National Institute for Health and Care Research (NIHR) Imperial Biomedical Research Centre (BRC) has been awarded more than £1 million by the NIHR for cutting edge equipment that will support vital translational research across the BRC partnership. This funding is in addition to more than £100m awarded since 2022 to…
-
Power hockey taster session
The British Power Hockey Association is having a taster day on 2nd November between 11AM - 14PM For more information go to British Power Hockey Association Website Image description: Full shot of a poster promoting a "Power Hockey Taster Day." The top portion of the poster features three images, each showing multiple…
-
The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
-
Inexpensive drug can prevent cerebral palsy in premature babies
A study from the University of Bristol found that giving women at risk of premature birth a magnesium sulphate (drip) can help prevent their babies from developing cerebral palsy. The first major review in 2009 showed this treatment was effective, and new research continues to confirm it. Since 2015, the World Health…
-
A future of inclusion for disabled children
Sophie talks about her son who has cerebral palsy and why more needs to be done to improve disability inclusion in schools. "Children and young people are our future. The way we raise our children shapes the world they’ll grow up in. "Our world is made up of people with all sorts of characteristics and personalities. We…
-
Hi, my name is Lucy_Scope!
Hi, my name is Lucy, and I’m the new Cerebral Palsy Specialist for Leeds and The North. I live with spastic hemiplegia and I am really excited to work with the CP Network, and everyone else. I’m looking forward to meeting you all, please say hi 😀
-
David Cameron opens up on the death of his son aged 6 as he leads push for treatments
From LBC Former Prime Minister Lord Cameron told LBC's Nick Ferrari at Breakfast that his son Ivan, who lived with an extremely rare condition called Ohtahara syndrome, and quadriplegic cerebral palsy, might have lived longer if he had been born today - such are the improvements in medical science.
-
The Sunflower Conversations Podcast: cerebral palsy
To mark World CP Day 2024, the Sunflower Conversations Podcast spoke with Richard Luke from Scope and Karen Watson from Cerebral Palsy Adult Advice UK (CPAAUK) about cerebral palsy: The Hidden Disabilities Sunflower is a simple tool for you to voluntarily share that you have a disability or condition that may not be…
-
New Boccia Club in Bolton
CP Networker, Carla is starting a new Boccia club in her home town of BOLTON. If you, or anyone you may know, would be interested in going along on a Friday afternoon to play or even to try the game - please click the link and join her new Facebook group, Bolton Boccia
-
Children in England waiting years for autism and cerebral palsy diagnoses – data
Years-long waits for diagnoses and support for autistic young people in England and others with conditions including cerebral palsy is “robbing” them of their childhoods, the Children’s Commissioner has warned. Children with cerebral palsy faced the highest wait of all for diagnosis through community health services, at…
-
I want to contribute to society-19 year old young man
This young disabled man dreamed of having a job-The system had other ideas BBC In depth
-
Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
-
Please join us for our Instagram Live with Eva Abley from BGT
Please join us for our Instagram Live with @Eva_Abley this evening at 5 pm on our UK Instagram @sunflowerlanyardscheme ⠀ Eva has cerebral palsy and has just finished her GCSE's and joins us to talk about her experiences so far. She has achieved an awful lot already!⠀ We will put the recording on The Sunflower Conversations…
-
World CP Day and Disney+ Collaboration
I don't know if you have seen but Disney+ has adapted the book, "Out of My Mind" for World CP Day 2024. This is huge! WorldCPDay.org says: Our exclusive partnership with Disney+ for World Cerebral Palsy Day has received global recognition. On Friday, October 4 we launched the trailer for Out of My Mind - a new film telling…
