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"I didn't even have a drink or a urine bottle." Nina's Law
"I didn't even have a drink or a urine bottle." In this powerful episode, Richard Luke, Cerebral Palsy and Membership Programme Lead at Scope, shares his experience of living with quadriplegic cerebral palsy after being diagnosed at the age of 3 following a negligent birth. It was the shocking reality of a hospital stay in…
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Cerebral Palsy Teens: Sheffield Summer Social
Our next in-person social is the Summer Social in Sheffield on Saturday 4th July. Bowling followed by food. 3:30 pm start. Changing Places facility available. Contribution towards travel costs for anyone outside a 25-mile radius. Last chance to register! Full info/sign up:
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National Epilepsy Week 2026.
Shout out to all those living with epilepsy and the support network around them.
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Fun and Engaging Fine Motor Activities for Children with Cerebral Palsy
Fun and Engaging Fine Motor Activities for Children with Cerebral Palsy Generally, fine motor skills are more complex than gross motor skills and require more practice to learn. However, it can be difficult getting children with cerebral palsy to practice tasks over and over again without getting bored. These 20 activities…
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Cerebral Palsy Scotland Community survey 2026
Got 10 minutes to help shape the future? We know completing surveys isn't at the top of your to-do list, but a few minutes of your time can make a real difference. Every response helps us understand what's working, what could be improved, and where we should focus our efforts next. The more people who take part, the…
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'Once I am on the bike it feels amazing'
From BBC News A teenager with cerebral palsy says she is "nervous and scared" but "excited" to be taking on a charity cycling challenge from Land's End to John O'Groats. Chloe Marriage, 17, from Newbury, sets off on her journey on 26 July and is expected to complete the 1,000-plus mile ride on 12 August. Her dad Tom said…
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Protecting the Past for the Future
Visiting the Wellcome Collection in London on behalf of Scope was a real privilege. I was there to support Dr Vicky Long with the important task of categorising years’ worth of Scope documents for a potential exhibition called Rights of the Disabled Child. It was one of those moments where history, activism, disability…
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Understanding and Managing the Emotional Impact of Cerebral Palsy
It is Mental Health Awareness Week. So I wanted to talk about the emotional impact of living with cerebral palsy. Living with cerebral palsy can affect much more than movement. For some adults, it can also have an impact on emotional well-being, confidence, relationships, work, independence and social life. This does not…
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10 month old -, seeking advice on early intervention & intensive therapy
Hi everyone, I’m a first-time poster and honestly don’t quite know where to start. Our daughter is 10 months old. From quite early on I noticed some things that concerned me — a very sensitive Moro reflex and very clenched fists — but I hoped she’d catch up. It wasn’t until 6 months that we were referred to paediatrics.…
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🌟 Are you looking for a free hand dexterity test? 🌟
We are inviting young people aged 12 to 21 years old with hemiplegic cerebral palsy to take part in a University of Leeds research project. This involves simple hand and arm activities in a friendly and supportive environment. The activities are designed to be comfortable, enjoyable, and easy to complete. We also offer an…
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Exoskeletons for people with cerebral palsy are now a reality
Exoskeletons for people with cerebral palsy are now a reality – but there’s still much to figure out Article by Stephen Khan, Editor-in-Chief of The Conversation UK Cerebral palsy is the most common disability that starts in childhood, affecting about 50 million people worldwide. Cerebral palsy can impact a person’s…
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Research to explore experiences of Botox treatment in upper limbs
The closing date for this is 26th June 2026.
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BBC The One Show. One Big Thankyou. Lily Blackburn
Lily Blackburn was recognised on BBC’s The One Show after raising more than £75,000 for Haven House Children’s Hospice through a series of inspiring fundraising challenges. As part of the programme’s One Big Thank You series, the 13-year-old received a surprise appearance from former One Direction star Zayn Malik in…
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Callout for parents of children with cerebral palsy
A researcher from Cardiff University is looking for parents to share their experiences. The study is about Kinesio taping used on the upper limbs (arms/hands) of children with cerebral palsy. The researcher wants to understand how this treatment is used and how it may affect children’s daily activities and play. Who can…
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I became my sister's carer at six - she amazes me every day
From BBC News Shannen Headley West Midlands Trigger warning - mention of sexual assault. One of Sarah Lilly's earliest memories is pushing her younger sister Vicky's wheelchair aged four. She became her second carer two years later. Vicky was diagnosed with both quadriplegic and athetoid cerebral palsy at birth, and Sarah,…
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Free Future Planning for Parents and Carers
Thinking about the future can feel overwhelming for many parents and carers who have adults with disabilities. Join Cerebral Palsy Midlands for a free, supportive webinar exploring wills, trusts, and future planning with Carol Dooley from Accord Legal Services. Date: Wednesday 20th May Time: 10:30 am – 11:30 am Location:…
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Mental health difficulties in cerebral palsy A qualitative study of young people
Study undertaken by: Manjula Manikandan, Jennifer Fortune, Jessica Burke, Aisling Walsh, Aoife Twohig, Ian McClelland, Amanda Breen, Meriel Norris, Jennifer M. Ryan, RELATE-CP study team This study emphasises the urgent need for integrated, person-centred mental health services for young people with CP. Addressing these…
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Mess Up the Mess Theatre Company in South Wales. Join our winter production.
Be part of a bold, creative, reimagining of a Christmas classic. Welsh playwright Ciaran Fitzgerald is very privileged to be writing a show for The Rising Stars Theatre Company and Mess Up The Mess Theatre Company this Christmas. We’re looking for more young people to get involved, and are especially interested in hearing…
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Cerebral Palsy and Incontinence: What’s the Link?
Incontinence (difficulties controlling bowel and bladder movements) in children and with cerebral palsy is very common. Most individuals with cerebral palsy eventually learn to avoid bowel and bladder-related accidents, but at a slower rate than the general population. This article will explain why people with cerebral…
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Yoga and Cerebral Palsy
Are there any benefits to practising yoga for cerebral palsy? Cerebral palsy refers to a range of motor disabilities caused by damage to the brain before, during, or shortly after birth. Yoga is an ancient practice that focuses on strengthening the mind-body connection. This article will explain how practising yoga can…
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'We don't keep score of who's caring for who - we just do it together'
A teenage couple have told how their serious health challenges have helped them to form "a bond for life". Ethan, 17, from Teesdale, County Durham and Abbie, 19, from Darlington, met at college more than two years ago. Abbie found out she had multiple sclerosis (MS) when she was just 17, a condition most commonly diagnosed…
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Cerebral Palsy Football Challenge Trophy 🏆
It’s a rare opportunity for junior footballers with cerebral palsy to get together to play and compete. This is for players under the age of 16 We welcome entries from Cerebral Palsy Clubs or individual players with Cerebral Palsy. Scan the QR code to apply or email: jbswcp@gmail.co.uk
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HEREFORHEMI by Cianna Howard
Hi everyone 💛 I’m Cianna, a mum to a child with hemiplegia, and I’ve recently started a community called Hereforhemi 🫶 After diagnosis, I found it really isolating not knowing anyone going through the same thing, so I wanted to create a space where families could connect, feel understood, and support each other. In just…
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Abbreviation for Cerebral Palsy (CP)
Please do not use the two-letter abbreviation for cerebral palsy. Meta and Facebook will permanently disable your account! There is no real appeals process, and you have more chance of winning the lottery than speaking to a human being who can help you. #cerebralpalsy#cerebralpalsyawareness#meta#facebook
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Autism Acceptance Month and Cerebral Palsy
Cerebral Palsy and Autism: Coexistence. Bridging the gap between two seemingly disparate neurological conditions, researchers unravel the enigmatic dance of autism and cerebral palsy within the human brain. These two conditions, while distinct in their primary characteristics, often intersect in ways that challenge our…
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My son can barely walk but officials say he must attend mainstream school
Ami Phillips said it has been a 'constant battle' to try to get her son the support he needs My son has cerebral palsy and I'm fighting for his education (Wales Online)
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The Palsy Podcast 2026
What a month! The Palsy Podcast Project is now complete. Thanks to everyone who took part. You can still listen on Apple Podcasts, Spotify, or watch on YouTube! Apple Podcastshttps://podcasts.apple.com/.../the-palsy.../id1881241822 Spotifyhttps://open.spotify.com/show/2I3mFYLGsA0kMKjM0SnkKR...…
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Naidex,community,and the joy of not pretending you can do everything the hardway
There is something about Naidex that feels a bit like stepping into a very specific kind of family gathering. Not the stressful kind with overcooked buffet food and one relative asking inappropriate questions. The good kind. The kind where people just get it. Where nobody blinks at a wheelchair, a walking aid, adapted…
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CP Teens: From Memory Books To Future Boxes A Creative Arts Workshop
Register at: From Memory Books to Future Boxes - Creative Art Workshop | CP Teens UK A creative arts workshop offering the opportunity to capture precious memories, hopes and dreams for the future in beautiful handmade books and boxes. Thursday 28th May 2026 (half term) Chesterfield - exact location only given to those…
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Cerebral Palsy Awareness Session in School
The CP Network recently received a request from Pencoed Comprehensive School, near Bridgend in South Wales, to deliver an awareness session on cerebral palsy and ableism. As part of a social studies competition in Religious Studies, the class are participating in a project where they research and engage with social issues.…
