-
Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
-
Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
-
Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
-
British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
-
Looking to connect with other who have similar questions
Hello Scope community, I want to introduce myself. I am the mum of a 9 year old with CP. It's relatively mild (GMFCS 2) so he can do quite a bit, and is at a mainstream school. I face a number of issues from to time regarding his development, and wondered if I could connect with others who have similar questions or…
-
BBC Make a Difference Awards in Wales 2025
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
-
Out Of My Mind’ Star Phoebe-Rae Taylor & Director Amber Sealey On Championing Disability Stories
The Disney+ original movie Out of My Mind, based on the novel of the same name by Sharon M. Draper, follows preteen Melody Brooks (Phoebe-Rae Taylor), a girl with cerebral palsy. Melody has a sharp mind, but due to her being non-verbal and using a wheelchair, she is not given the same academic opportunities as her…
-
British Ice Skating's Let's Skate Project
British Ice Skating's Let's Skate project, launched in 2024 aims to grow the opportunities for disabled people to participate in ice skating. A number of ice rinks and clubs have signed up to the Let's Skate project to deliver new inclusive ice skating sessions. Watch this space as CP Sport are teaming up with British Ice…
-
Para Ice Hockey - Sheffield
📣 CALLING ALL FUTURE STEELKINGS 📣 We're always on the lookout for the next Steelkings players to join our growing family! And that could mean you! 😊 On the 20th June, we are running an introduction to para ice hockey for those people who are interested in getting involved in the coolest team sport going! We're particularly…
-
Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
-
Hi, my name is VaniC!
Hello All.. I am looking for a support group for parents with children with Cerebral Palsy (CP). My son is 14 years old on the severe spectrum. I have never reached out to anyone or joined a support group. I live in Northwood, London.
-
British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
-
Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
-
Life Reimagined 1 Week To Go!
Our new webinar series Life Reimagined starts next Wednesday, 21st May. If you’d like to grab one of the last remaining places, you can register for free below. Life Reimagined is a new four-part series for parents of children with special or additional needs. Julian Fraser and Angelina Hynes will share their lived…
-
Webinar: See me, not cerebral palsy
This webinar was hosted by My CP Guide and presented by Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance of…
-
New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
-
Life Reimagined
Life Reimagined with Almond Tree Foundation Registration Dates: Wednesday, 21st & 28th May, 4th & 11th June 2025 Time: 7pm UK / 2pm ET / 11am PT, (click for your local time) Attendance is limited to 40 participants. To gain the full benefit, we recommend attending all four sessions live. To sign up, please Click…
-
Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.…
-
Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
-
Cerebral Palsy Cymru-Family Fun Fiesta
Cerebral Palsy Cymru-Family Fun Fiesta Looking for a fun activity in Cardiff this weekend. Follow the link above to buy tickets.
-
Barriers to accessing education-Free wellbeing session for parents of disabled children
FREE for Families in Wales Barriers to Accessing Education Is your child struggling to attend, or maintain attendance in school? Join our drop-in session for parents; a relaxed and supportive space where you can seek advice, speak to others, or simply listen. What’s It About? • Guidance and Advice: Get practical tips on…
-
For people with cerebral palsy, sympathy is slightly strange
From The Business Standard For people fighting cerebral palsy, sympathy may feel like underestimation; even when it stems from goodwill When I was 12, my classmates were assigned a task in geography where they had to colour the globe they drew. But I was excluded. One of my classmates pointed it out: "Why isn't Onira…
-
Dance Study for Children and Young People with Cerebral Palsy
If any parents and carers of children with CP live in East London or surrounding areas, this might be an interesting study to be a part of. Dance study for children and young people with cerebral palsy
-
‘Out Of My Mind’ Director Amber Sealey And Co-Star Luke Kirby Hope Movie Helps Normalize Disability
Article from Yahoo News The Disney+ original movie Out of My Mind, based on the book by Sharon M. Draper, is about a girl with cerebral palsy who cannot speak. In putting Melody Brooks (Phoebe-Rae Taylor) on screen, director Amber Sealey hopes to show viewers they can talk to people with disabilities, even if that…
-
Ice skating and cerebral palsy
Evie's Ice Skating Journey: Cerebral Palsy Awareness Month As part of Cerebral Palsy Awareness Month, we're delighted to share Evie's ice skating journey! ⛸️ Ice skating has given Evie the opportunity to do a sport which we never thought possible. Evie has gained confidence and the ability to push herself and improve at…
-
Teenager with cerebral palsy finds voice through his eyes
From Sky News Jonathan who has cerebral palsy was told he had learning difficulties and wouldn’t learn to read or communicate. His mum helped create a system where he can speak through his eyes and he is now a published author. Watch Jonathan's interview
-
Life Reimagined is a free 4-part wellbeing series for parents of children with additional needs
Life Remagined | Almond Tree The Almond Tree Foundation About the Series Life Reimagined is a free 4-part wellbeing series for parents of children with special or additional needs. In this series, we’ll explore what becomes possible when we look beyond the daily demands of parenting and reconnect with the wellbeing,…
-
Barriers to accessing education-Free drop session for parents of disabled children. Wales
FREE for Families in Wales Barriers to Accessing Education Is your child struggling to attend, or maintain attendance in school? Join our drop-in session for parents; a relaxed and supportive space where you can seek advice, speak to others, or simply listen. What’s It About? • Guidance and Advice: Get practical tips on…
-
Research into Quality of Life and Physical Activity in Children and Young People with CP
Research Opportunity This project aims to explore the link between physical activity and quality of life in children and young people with CP (ages 8-17). The study involves a short survey where children and young people with CP provide insights into their physical activity levels and well-being. Parents and guardians are…
-
Ageing Well with Cerebral Palsy: Dr Kirsty Colquhoun and CP Scotland
This webinar, which took place on 25 March 2025, was hosted by our friends at Cerebral Palsy Scotland as part of Cerebral Palsy Awareness Month. The webinar featured a presentation from Kirsty Colquhoun, Consultant Geriatrician, NHS Greater Glasgow and Clyde. Kirsty looked at how cerebral palsy can impact the ageing…
-
Are You a Premature/Pre-term, NICU Baby?
FROM NICU TO NOW YOUNG PEOPLE’S VOICE IN RESEARCH Were you in the NICU as a baby? We’d love to hear your story! The Neonatal Medicine Group at Imperial College London is looking to set up a group for young people (aged 17-24) to help shape neonatal research. Why join? Inform neonatal research Share your thoughts and…
-
How to Achieve Optimum Quality of Life for People Living with Dysphagia
This nutrition-themed blog has been written by Sophia Cornelius, Development Dietitian for Wiltshire Farm Foods, about improving life for people living with dysphagia. An alarming 51% of people living with swallowing difficulties – also known as dysphagia – are at risk of malnutrition1. The physical and psychological…
-
Naidex: More than a Convention
Naidex 2025, taking place on 19th-20th March at the NEC Birmingham, is more than just a convention—it's a vital gathering for disabled people, their families, professionals, and advocates. While it showcases the latest advancements in assistive technology, mobility solutions, and accessibility services, its true power lies…
