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Creative Pathways is back for 2025!
Creative Pathways is back!! In association with Scope and The Rosie Jones Foundation. 28 & 29 August @ Here East, London. FREE!!! We’re back with another amazing lineup of creative professionals to move and inspire you!! Including the incredible Rosie Jones! If you’re between 11-19 (secondary & above) and have cerebral…
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Mild CP
My 2 year old has recently been diagnosed with mild CP. It causes her left arm and leg to be stiff but she can use them both. She has OT assessment tomorrow and physio assessment on Tuesday. She was born at 24 weeks and had 3 surgeries so far, so she’s already been through so much. Can anyone give me a sense of what’s to…
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Hi, my name is Jude_Cumbria_CP!
Hello everyone, My name is Jude, I am a family advisor for a charity called Cumbria Cerebral Palsy. We support individuals and families who have Cerebral Palsy. I am looking for people in my area to support and wondered if there may be people on here that may not know about us? We offer lots of support including help with…
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Hi - Building CP games
Hi everyone, I'm a bioengineer, building games to make physiotherapy more fun/easier :)
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Join us at CPotential for Intensive Therapy during the Summer Holidays:
Join us at CPotential for Intensive Therapy during the Summer Holidays: Weeks 1 and 2 – Monday 28th July to Friday 8th August Weeks 3 and 4 – Monday 11th August to Friday 22nd August. Summer intensives are generally 10-day blocks, starting Monday 28th July or Monday 11th August. However, if you are hoping to book a shorter…
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School Staff training
I'm a senco at a mainstream school. We have an 11 yr old in a wheelchair with cerebral palsy. New staff with no experience/training. Any idea where we can get staff training for moving and handling young adults and/or wheelchair training? He does not need a hoist - South west UK
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Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
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Government SEND Review
As part of their wider SEND review, the Government is considering reforms to EHCPs. This potentially could change how needs are identified and supported, particularly in mainstream schools. If you are a parent of a child with CP who has an EHCP or a young person with CP who has an EHCP, we would love to hear what your EHCP…
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Children with Speech Issues Risk Poor Mental Health.
Children struggling with their speech and language are at greater risk of developing mental health problems like anxiety and depression, the charity Speech and Language UK has warned in a report seen exclusively by the BBC. BBC News Speech and Language Issues Related to Poor Mental Health
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Children help develop 'fun' new physio aid
From BBC News An award-winning Loughborough designer has created a potentially life-changing physiotherapy aid to help children with learning and movement disabilities. Katie Michaels was inspired to create Moti Me - which uses animal characters, colourful lights and dozens of mini games to develop movement - when a family…
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Looking to connect with other who have similar questions
Hello Scope community, I want to introduce myself. I am the mum of a 9 year old with CP. It's relatively mild (GMFCS 2) so he can do quite a bit, and is at a mainstream school. I face a number of issues from to time regarding his development, and wondered if I could connect with others who have similar questions or…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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BBC Make a Difference Awards in Wales 2025
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Out Of My Mind’ Star Phoebe-Rae Taylor & Director Amber Sealey On Championing Disability Stories
The Disney+ original movie Out of My Mind, based on the novel of the same name by Sharon M. Draper, follows preteen Melody Brooks (Phoebe-Rae Taylor), a girl with cerebral palsy. Melody has a sharp mind, but due to her being non-verbal and using a wheelchair, she is not given the same academic opportunities as her…
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British Ice Skating's Let's Skate Project
British Ice Skating's Let's Skate project, launched in 2024 aims to grow the opportunities for disabled people to participate in ice skating. A number of ice rinks and clubs have signed up to the Let's Skate project to deliver new inclusive ice skating sessions. Watch this space as CP Sport are teaming up with British Ice…
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Para Ice Hockey - Sheffield
📣 CALLING ALL FUTURE STEELKINGS 📣 We're always on the lookout for the next Steelkings players to join our growing family! And that could mean you! 😊 On the 20th June, we are running an introduction to para ice hockey for those people who are interested in getting involved in the coolest team sport going! We're particularly…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
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Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
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Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Hi, my name is VaniC!
Hello All.. I am looking for a support group for parents with children with Cerebral Palsy (CP). My son is 14 years old on the severe spectrum. I have never reached out to anyone or joined a support group. I live in Northwood, London.
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Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Life Reimagined 1 Week To Go!
Our new webinar series Life Reimagined starts next Wednesday, 21st May. If you’d like to grab one of the last remaining places, you can register for free below. Life Reimagined is a new four-part series for parents of children with special or additional needs. Julian Fraser and Angelina Hynes will share their lived…
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Webinar: See me, not cerebral palsy
This webinar was hosted by My CP Guide and presented by Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance of…
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Life Reimagined
Life Reimagined with Almond Tree Foundation Registration Dates: Wednesday, 21st & 28th May, 4th & 11th June 2025 Time: 7pm UK / 2pm ET / 11am PT, (click for your local time) Attendance is limited to 40 participants. To gain the full benefit, we recommend attending all four sessions live. To sign up, please Click…
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Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.…
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Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Cerebral Palsy Cymru-Family Fun Fiesta
Cerebral Palsy Cymru-Family Fun Fiesta Looking for a fun activity in Cardiff this weekend. Follow the link above to buy tickets.
