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Cerebral Palsy and Fatigue Video
The Neurological Team at UCLH has released a very helpful video to help people understand the relationship between fatigue and cerebral palsy. https://youtu.be/Yhe0OOYZ_1I If you need more information about cerebral palsy and fatigue, we have fatigue advice pages for you.
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Made to feel more disabled
Our friends at Bobath have done excellent work in investing the effect of the pandemic on the CP Community Over the past year, we have been investigating the impact of Covid-19 on adults and families of children with cerebral palsy. Our findings highlighted that the pandemic caused a large number of daily life changes that…
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SDR dangers?
I'm a very concerned dad who has a 3 year old son with cerebral palsy. Is there any way of knowing how many of these SDR operations have gone badly wrong?
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APPG Report into the barriers for adults with Cerebral Palsy on achieving full life participation
We are delighted to share with you that the All-Party Parliamentary Group (APPG) on Cerebral Palsy, which Scope sponsored together with Adult CP Hub, has today published the final report into the barriers for adults with Cerebral Palsy on achieving full life participation in healthcare and the workplace. Commenting on the…
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Pains, Trains and Cerebral Palsy
As part of Cerebral Palsy Awareness Month, our guest this week is Cerebal Palsy Campaigner, Richard Luke, who shares yet more public transport horror stories, employment, disabled sex and relationships. Available now! https://labledpodcast.co.uk/
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Have you tried these 5 accessibility apps?
If you have accessibility requirements, it can be useful to plan ahead for new journeys to make sure that the trip goes as smoothly as possible. One great way that you can do this is by using mobile apps. Mobile apps can help make our everyday lives much easier – from finding accessible shops and restaurants to requesting…
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Exploring the effects of growing older with cerebral palsy and use of healthcare services
ALTHEA StudyLiving Healthy Lives: Exploring the effects of growing older with cerebral palsy and use of healthcare services across the life course Online Survey for Adults with CP Are you an adult who identifies as having Cerebral Palsy (CP)? Please share your experiences with us. This will help us to improve our…
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Minefield
Hi everyone, I hope you are well. I appreciate this is a charity website and not a medical advice service. I apologise if this does not fall under your remit and will as previously advised, seek medical advice. My problem being, I was born at home, after a difficult birth. I was breech and facing upside down. Unbeknown to…
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Hi, my name is Right_sidekick0! I have CP. Is it possible to have fibromyalgia?
Hi, I hope everyone is OK and looking forward to the summer! I have cerebral palsy, not diagnosed until 2017. I have been feeling less and less energised. Pain, spasms, aches which affects my sleep. Is it possible to have fibromyalgia? If so, how do I get a diagnosis? Many thanks.
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6 Easy Ways to Celebrate Cerebral Palsy Awareness Month
March is Cerebral Palsy Awareness Month — the chance to celebrate the 17 million people that are living with cerebral palsy (CP). There are many ways you can celebrate cerebral palsy awareness month, and here are a few of my favourites. 1. Wear green for Cerebral Palsy Awareness Month. Wearing green — the cerebral palsy…
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Why Cerebral Palsy Awareness Is Vital This Month (and Every Month)
March is an especially important month for those of us who live with and are affected by cerebral palsy. It is a month in which we share all the intricate parts of us that come together to make us individualistic and unique. It is a month in which we strive to inform others about our disability. We are striving for…
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I Have Cerebral Palsy and I Deserve Acceptance
Alyssa Brown Yes, my disability is physical, but there are things you don’t see. There are days that I don’t want to leave my bed for reasons that do and don’t have to do with it, but I do because I have dogs that count on me every morning. I’ve lost many opportunities with jobs because my physical appearance scares…
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Action Cerebral Palsy launches Five Year Strategy at the House of Commons
On Monday evening, 21st March 2022 at the House of Commons, Mary Kelly Foy MP, Co-Chair of the All-Party Parliamentary Group on Cerebral Palsy welcomed fellow politicians and policymakers, specialist educators and therapists, leading clinicians and healthcare professionals, local government representatives, leading funders…
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Woman with cerebral palsy 'crying for help' over energy costs
A woman living with cerebral palsy who finds winter "really hard" because of her condition has said she has to go to a day centre three days a week to keep warm because of rising energy costs. Janice Hall said she also uses a centre in Wythenshawe, Manchester, "to get a main meal" as her bills have increased. The…
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Hi, I'm M4RYB! Does anyone else have a similar experience of CP and the natural ageing process?
Good morning, I’ve just joined your community. I was diagnosed with CP when I was 10 months old - I am now 73. I was 3 months premature and weighed two and a half pounds. The CP affects my left side. My left arm is at 90 degrees - it won’t straighten. My left hand is smaller than my right. Now my left hand is becoming…
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Cerebral Palsy Awareness Month 2022
What is Cerebral Palsy (CP) Awareness month? March is Cerebral palsy awareness month, which is dedicated to the 17 million people diagnosed with Cerebral palsy around the world. Let’s shed some light on cerebral palsy, shall we? It’s a condition that affects the movements of the limbs and overall body. It can also affect…
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wanted to help with cerebral palsy month
richard layla did not get back us about both things we offer to for cerebral month loraine with knowlegh of traveling and my life storey looking to sharring but seems scope does cerebral palsy anymore
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Swallowing Awareness Day and Cerebral Palsy
Why Swallowing Awareness Day is so important Eating, drinking and swallowing is an essential part of most people’s day and is often taken for granted, but for some people, it is not that easy. Dysphagia, or eating, drinking and swallowing difficulties, can affect a person’s quality of life and can lead to other health…
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Hi, my name is brian1958! I've just found out I have ataxic cerable palsy
I am 63,and just found out I have ataxic cerable palsy.
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Poem called My experience Living with Cerebral Palsy
A poem called My experience Living with Cerebral Palsy A young man called Jay. He remembers the negatively that used to surround him about having cerebral palsy. I am proud to say I have cerebral palsy have still been able to achieve glory as I look to tell my story. People use to tell me I would not achieve because have…
