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Is there support groups that I can join? Looking to meet new people with disabilities, I have CP
Hey everyone! I’m new to this, I’m looking to meet new people with disabilities, I have cp
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Looking for likeminded people
Hi everyone, I have a couple of disabled friends dating back to schooldays but in more recent times the mojority of connections I have made have been able bodied people this has led to me struggling with loneliness and isolation I would like to get to know likeminded people with cerebral palsy that have a greater…
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Whose Voice Is It Anyway? Channel 4 Breakthrough Film
“Whose Voice Is It Anyway” is a darkly funny mockumentary, commissioned by Channel 4 Random Acts, through Little By Little Films, and was written and directed by Kate (who has lived experience of athetoid cerebral palsy). It was filmed over the summer in North London and challenges perceptions of those with athetoid…
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As a person with disability, these are the types of comments that "frustrate" Hannah Diviney
Gleeks everywhere (guilty) won’t soon forget the moment when Artie Abrams stepped out of his wheelchair and boogied to The Safety Dance by Men Without Hats. While us able-bodied folk laughed at the ridiculousness that was Glee, relishing momentarily in the actor’s under-utilised dancing skills, for someone like 10-year-old…
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Amy Winehouse Music Therapy Room
Children at CPotential are making sweet music thanks to yearly funding from the Amy Winehouse Foundation for our Music Therapy programme. During November, Amy’s parents, Janis Winehouse-Collins and Mitch Winehouse attended a music therapy room naming event at the Centre, with Trustees from the Foundation and friends, all…
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How I Mange My CP and Spasticity
My name is @Globster, I have Cerebral Palsy (CP). Cerebral palsy can cause spasticity (tightness) of the muscles in my hands, arms and body, this tightness causes me pain and discomfort. To help manage this, I was prescribed an oral medication called Baclofen, which helps to relax my muscles and makes movement a bit…
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#BackThe1in6 on 22 Nov 2022
Join us for a day of action to #BackThe1in6 on 22 Nov 2022 Thanks to your support, the back the one in six petition has over 14,000 signatures. But we're not done campaigning yet. Please join us in a day of action tomorrow, Tuesday, 22 November 2022 to #BackThe1in6 and help reach new signatories. The more people who sign…
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APPG ON CEREBRAL PALSY
The appg on cerebral palsy was marvellous once again.
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Update! Cerebral Palsy diagnosis
Hello everyone, it’s been a long time since I gave an update and now I finally can. As you were aware from my previous posts I was having a lot of problems with my health. I was referred to a Neurologist from the Musculoskeletal Team for findings of an abnormal neurological examination. I have now seen the neurologist and…
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Hi, my name is Alastair - looking for insight into CP care in the UK
Hi everyone. My wife, daughter and I currently live in Germany, but we consider returning to the UK for work reasons. My daughter (now aged 10) was born 10 weeks early, and shortly thereafter suffered PVL, as well as West Syndrome. As a result of these problems she has tetraplegic CP, is almost completely non-verbal, and…
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Mara Ba (My Mother in Gujarati)
Admission free, advance booking is required
1 hour 20 minutes plus 20-minute interval
For ages 16+ Book Now Mara Ba (My Mother in Gujarati) is a multilingual, semi-biographical play, written in English, Gujarati and Swahili. Jump through time and across continents with Rupa, a young Gujarati woman, as she seeks her…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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Vegetarian/Veganism and CP
Today I'm talking with Ally about her experiences living with CP and how she has found that diet has had a positive impact on her impairment. When not working as a Bursary Administrator, Ally is a member of Scope's CP Network. [Ally is standing wearing a floral blouse with a light brown skirt and blue shoes by the edge of…
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The Bobath Centre wants to know how the cost-of-living crisis has impacted you and your family.
As a result of rising prices on many essentials such as energy, fuel and food costs, the country is currently facing a cost-of-living crisis. Action is needed to support working people, including those living with cerebral palsy and other disabilities. Have your voice heard To ensure we can address the issues, The Bobath…
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I have CP and have a sensation of falling.
Hello, My name is Donna and I have CP. I use a wheelchair 24/7, but am able to transfer to attend to my needs. Ever since I was born, I've had this sensation of falling in certain situations. When I get them, it feels like I am either free falling, or I'm on the edge of a cliff ready to fall. They seem to be triggered when…
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Woman with cerebral palsy laments cost of adaptive shoes that Wakefield's NHS trust won't pay for
A woman with cerebral palsy says being disabled shouldn’t end up costing more through high prices for suitable footwear. Bianca Raven, 36, said Mid Yorkshire Hospitals NHS Trust, at Pinderfields Hospital in Wakefield, would provide orthotics – the adjustments within shoes for people who have difficulties walking – but not…
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Hi, my name is SusiA! I'm finding out ways to help my friend with CP
I'm here to find out more about ways of working with IT for my friend living with CP + progressive restrictions from age and injury. He's writing a book, with support from various friends including me; and I'll be searching around for ideas like text/audio software and such. Now to scoot around your site - but good to say…
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International Day of People with Disabilities roundtable 6th December 2022 4.00pm-5.00pm
Dear all, I hope you are well. 3 December 2022 marks International Day of People with Disabilities (IDPWD). IDPWD is a time for celebration, learning and action. It is a time to recognise and value the diversity of disabled people worldwide. While disability is our day-to-day work at Scope, the Day is important across the…
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Work Capability Assessment
Hi, I have been trying to help my brother, who is on Universal Credit after losing his job during Covid, to have his status changed to Limited Capability for Work. He had a telephone assessment in June. His application was turned down in October, and I asked for an explanation of their decision, followed by another request…
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The Beauty of Being a Dancer with Cerebral Palsy
"I am communicating freedom," says Jerron Herman, 31, a professional dancer. BY ALEX GARDNER PUBLISHED: NOV 14, 2022 Men's Health U.S. NOAH BENUSSixty-one million Americans—one in four of us!—live with some form of what’s usually called a disability. Men's Health talked to nine people who show that the things that might…
