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Risk of depression and anxiety higher in people living with Cerebral Palsy
Relatively little is known about the mental health of adults with cerebral palsy as it is often considered to affect only children, despite many living with the condition into adulthood. Risk of depression higher in cerebral palsy patients: Study | Photo Credit: Thinkstock London: People living with cerebral palsy face a…
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Medication advice please
Hi I was discharged from the pain clinic medication doctor & now have to use my GP who refuses to do a home visit & only a telephone appointment as housebound, so now need to come off the morphine patches that never really worked & go back onto dihydrocodeine also Pregabalin 75mg capsules up the dosage by 50mg will my GP…
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Opinions
I'm having a bit of a dispute with the medical centre that I go to. They seem to forget that I have severe anxiety which means I cannot keep going into the surgery because it makes both my anxiety and FM worse then I'm ill for days, I also cannot swallow meds properly due to swallowing problems. My FM is under minor and…
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Medical intervention in adulthood
Hi there, I was hoping to get some advice on medical intervention for cp in adulthood. I'm 25 and was diagnosed with cp when I was 3. I had quite a bit of medical input as a child but as soon as I turned 16 I've had nothing. I was discharged from physio, my speciallis and any investigationI I was having at the time…
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Carer for my partner with CP, we need some guidance
hello everyone, I have been a carer to the same man for 33 years and we are more like brother and sister, especially with the teasing of each other, he was 16 and I was 18. he is having issues with his hip and his tailbone as his butt isn't as rounded as mine. he has cp and all 4 limbs are affected and is non verbal. the…
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Hi, my name is lisajmcgee!
Hi all. I have fibromyalgia and all the lovely things that go with it. I don't like using the word fibromyalgia because it's still not a real condition to a lot of people. Being embarrassed by my disability does make life tough sometimes. I rather tell people I have cfs, ibs, rls, arthritis, restless bladder, anxiety,…
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CP and Narcolepsy
Hi My 18 year old has just been diagnosed with narcolepsy and has had CP from birth. There seems to be almost no precedence for this, narcolepsy being extremely rare and even rarer combined with CP. We no longer have a CP consultant and the sleep disorder consultant only sees his bit. I think we need some help on…
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Clubs and social groups for my daughter- CP
I have a 24 yr old daughter who has cerebral palsy she feels very alone as there are no clubs where she can meet others with the same condition. She is very bubbly and wants to meet young people but our local council have said they can put her in a day centre with people over 60 yrs. She wants to meet people in her age…
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Dealing with the frustration that can be caused by disability
Hi I'm Barry and I want to share a post about: * What is Cerebral Palsy and * What most people do when they are very upset with Cerebral Palsy and why is this What is Cerebral Palsy and how do you get this: Many people who got Cerebral Palsy to get it from birth, or soon after they are born, it is because air is stopped…
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Special needs childcare support and hiring help
Hi all, I am looking to hire some home help as my daughter is now 16 months old and does not yet have head control. Has anyone else followed a similar route and if so could you pass on any tips / advice? I would be very grateful to hear of others experiences. Wishing you wonderful weekends,
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Does pain medication affect immune system / increase infections?
Hi there fellow Scope community members! So something I've wondered for a while and I'd appreciate all input even 'just' your own experiences.... Do you think that opiate medications like codeine, oramorph can affect how many minor illnesses you get. I've noticed I've definitely had a massive increase of infections that…
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Pyschosomatics
Can anybody tell me what this is absolutely floored today by neurologist have to have another mri scan to determine what part of my brain has been damaged so may not have cerebral palsy after all confused is an understatement to how I'm feeling I feel as if I'm a hypochondriac don't get this it at all :(
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22 years old and newly diagnosed mild Cerebral Palsy
hi all, I’m Elle, I’m 22 years old and since 18 I have had a diagnosis of Hypermobility syndrome, as of 21 I was diagnosed with hip dysplasia and as of 26th October this year I was diagnosed with mild cerebral palsy. Im wondering if anyone else has had a late diagnosis and how I go about fighting my decline for PIP
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Pain thresholds
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New Initiative on CP and Pain
Cerebral Palsy Alliance Research Foundation (CPARF) in the USA, is announcing a bold mission to alleviate and treat chronic pain without opiate based strong painkillers. This new and unique approach to the pain often associated with cerebral palsy will devise tailored treatments to reduce or eliminate chronic pain for both…
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What would you tell your parents now?
Hi all, My daughter has recently been diagnosed with CP (mixed spastic and dystonic, all 4 limbs) and it struck me recently I have been trying myself up in knots trying to work out the best things I can do for her. These range from purely physical therapies all the way through to ensuring I have a positive attitude about…
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Functional Sensory Symptoms
Hello, I recently have been diagnosed with Functional Sensory Symptoms. These are symptoms such as burning feet, a buzzing sensation in my limbs, with alot of twitches. There is no real explanation for these symptoms and i am really depressed about it. I have been thinking about jumping in front of a train, but i am…
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Help with feeding
I have a 3 year old who is severely disabled with cerebral palsy he currently drinks from a bottle perfectly I have tried him with beaker but he gets upset as cannot find the spout. His speech therapist has introduced a thickner with a open cup he's getting very frustrated and to stop it from washing him out i feel it…
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Tricompartmental osteoarthritis
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Chronic pain and the weather. I would love to communicate with new people
ood afternoon, My name is Darren It is a pleasure to be part of this community it is very much my wish to be part of the conversation and if I can help someone along the way and reach out and make some social connections, this would make for a lovely experience. I suffer from Cerebral Palsy and the associated difficulties…