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Hi, my name is Painfullyme68! chat about spinal stenosis
Is this the chat group for spinal stenosis? Then I am in the right place. I've had this horrible debilitating pain for over a year now. I've heard of others having it; however, they are still able to get around fairly well. I am not. I've been on Norco while in the hospital recently. The hospital beds must have helped…
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NEW MS LESIONS
I’m writing on here, I don’t even know why. My best friend and I fell out 4 years ago and usually I’d tell him this, but he probably wouldn’t care anyway. Today my neurologist told me I have two new MS Lesions in my brain. So now I have 12 in my brain and one in my spine. It was a shock and I feel weird about it. It’s a…
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No contact for a time
I received a note from our wonderful administrators telling me I had not been in touch for a while. It made me think. I am struggling with life in many ways. My mental health has been made worse because I am struggling to come to terms with my neurologist giving me no hope for the future. My last CT scan showed neural…
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Can Osteoporosis be cured?
Hello Everyone :) Just wanted to know your thoughts on the subject Osteoporosis. I have had this problem myself for many years, so its nothing new to me. However I do read alot of conflicting information about whether Osteoporosis can be cured. I have read that it can not be cured and medication will only help strengthen…
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Touch starvation
Hi guys, I hope you well, i've recently found out I have touch starvation due to Hemiparesis, do you have any suggestions for that? The practical one I've heard something about root chakra in you is weak and so on. Thanks for you attention
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Hi, my name is MarkB! I'm here mainly to read about epilepsy and discuss it
Looking after a friend with Epilepsy... I have migraines myself but only once every 2 or 3 years... But bad when they happen and I just had one 4 weeks ago and I can remember it! I'm here mainly to read about epilepsy and discuss it.... We need as much ammo and information we can get our hands on against this horrible…
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Anyone else have psoriasis like this? CW: Photos of skin condition
This discussion was created from comments split from: Hi, my name is wiggy1976! what benefits are you able to claim.
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Sleep paralysis
Hi, first time ever posting on one of these and im hoping it helps me. I've been suffering from sleep paralysis since I was a child, it started when I was 4 when my grandad died and just progressed from there. It used to happen to me mid sleep like when I was in my deepest sleep, I'd fall asleep normally around 10 or 11pm…
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Need Some Advice Please
Hi Everyone im after some advice please if possible does anyone have any idea what this means.mild centrilobular emphysematous changes predominantly in the upper lobes?be grateful for any advice Thanks Caroline
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Cochlear Impants
Hi there, I have just had a Cochlear Implant fitted and I am not switched on yet and I need to get hold of PIP to make a change of circumstances. Is there an email address available to email them directly?
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Hello, new to this
Hello, my name is Courtney and I’m 23 years old. My head is all over the place at the minute I’m riddled with anxiety. Shortly after having my first baby last year, I had a seizure suddenly. It’s really strange and the neurologist is confused because my husband who was luckily there and saved my life, reported that my body…
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Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION)
Hi! My name is Craig. I’m married, 60 years old, and I am living in Florida. I just permanently lost most of the vision in my left eye to Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION), which means my optic nerve no longer works. So far, the right eye is 20/20 for now, but there is now a chance of losing it as…
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Hi, new diagnosis and new here...
Hi all, My name is Jimmy and I've very recently (finally) been diagnosed with Psoriatic Arthritis. I'm 37 with 2 very young children, and up until 2 years ago I was very fit and active, so this has really hit me like a ton of bricks (as I'm sure it does every one). I've started on methotrexate (which sucks) and had a…
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Hi, I'm johnstle! Experiences of parastomal hernia?
Hello everyone. I have had a stoma for nearly 4 years and have developed a large parastomal hernia. I had unsuccessful surgery in September to correct the problem and over the last month or so I have got 2 ulcers one of which is discharging puss. Has anyone else had this problem and if so how was it treated
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Living with Dysphagia after 7.5 years
Hello and good evening, I been living with dysphagia since Nov 2015. Initially I had a tiny of piece of meat stuck between the bottom of oesophagus and intestine, which I had to rush to A&E, since I could not even swallow my saliva as I would suffocate. Since that I recommended to see a specialist and had endoscopy every 3…
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First appointment with neurology- what to expect?
Hi, after being diagnosed with long Covid 2 years ago I’ve been referred to a neurologist to help understand the pain/ loss of feeling in my hands and feet. Whilst I’m excited that something is finally happening I feel apprehensive as to what to expect. Basically the long Covid clinic won’t accept me till all other avenues…
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News report someone stole an oxygen bottle of a wheelchair.
Hi isn't ridiculous that someone has gone purposely to steel someone's life just so they can have a nice time. source I listened to capital North East on my way to work and heard this on the news.
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FND & BOTOX FOR LIPS
Hello hope somebody can help me I am considering having botox in my bottom lip as it is Turn inwards do you think it is is a good idea with my medications or that I need to avoid to have Botox
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My health issues, and issues with nhs
Hello, I did post on here last year, about my health, and work issues, and yous was very helpful, At present I am on long term sick from work, have been off since end of august last year. I have a lot of issues with my back, I have multiple herniated disc’s . 7 in total. , facet hypertrophy on some of them, mild…
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Rare, disheartening and complex-And that's before I discuss my condition!
Hi- I've had increasing leg/arm and (overwhelmingly) back pain for 20 or so years. Also punishing fatigue, intolerance of heat etc-essentially all the neuro goodies. Various MRI's have shown considerable Cerebellar atrophy, again getting progressively worse. I was misdiagnosed with ME/CFS in 2015, having been (finally)…
