-
Looking for advice
Hi all I’m in my mid 20s and currently seeking a Cerebral Palsy diagnosis. I was born 3 months early weighing 2lbs, I couldn’t walk til I was 2.5 years old, had abnormal posture and exotropia. For as long as I can remember I’ve had tremors, back pain and terrible coordination and balance. I was told by my parents that…
-
Fragile X Syndrome
Hello all. I’m looking into genetic testing for my child, including testing for Fragile X, to better understand whether there may be an underlying genetic cause for her learning disability. For anyone whose child was later diagnosed with Fragile X Syndrome, would you feel comfortable sharing whether the diagnosis made a…
-
Undiagnosed hip and leg pain
hi, I just thought I’d reach out on the off chance someone else has experienced same symptoms as I have been. For the last 4 years I’ve been struggling with hip and leg pain and have not been able to get any answers. Things started quite suddenly, my legs started to ache then I had swelling on both ankles and I was…
-
Hi, my name is Sonnyboo17! I am a female with a permenant end Colostomy
I am a female with a permenant end Colostomy ... this came about after 3 major abdominal operations, my last in 2017 was over 10 hours long in which I had to have a large pelvic mass removed as well as an emergency Hartmann's procedure ( Stoma). My bladder was also fused as well as my bowel to my pelvic area due to stage 4…
-
ADHD Referral Assessment Questions
Hi all! My referral has gone through for my ADHD Assessment (March this year) which is good but the organisation I have chosen can't say when I'll have an appointment for the assessment even with Right To Choose. I knew the waiting times would be long but I'm honestly getting a bit desperate, I've felt like this for so…
-
Lymphodema
Does anyone else here suffer and live with this painfull swelling in legs and feet ?
-
Does anyone else have a Listening Disability?
Hi all I have a life long Listening Disability, or the brain not being able to effectively process sounds and sound based communication , speech. The technical term is Auditory Processing Disorder. I was the first adult in the UK to be clinically diagnosed a having an auditory processing disorder, back in 2003, which was…
-
Hi, I'm tom9437! Does anyone else have Dercum's disease?
Waiting diagnosis of Dercums disease. Does anyone else have this.
-
Congenital Hemiplegia mild
Hi , I have recently requested my summary care plan to make a pip application (Charcot Marie Tooth disease) I was shocked to discover that I was diagnosed with congenital hemiplegia but at the same time it answered many questions to the weaknesses I have on the left side of my body. Unfortunately during my childhood my…
-
Is anyone else actually scared of Escalators?
Above. A few years ago I went Bowling in the Arcade at Meadowhall, I got a rather good score and was a bit excited/not concentrating, and had a nasty fall on the Escalator down to the foodie area, and ever since, I've been terrified of Escalators in general. Has anyone experienced anything similar?
-
Is lack of eye contact an actual thing in Autism?
Back in 2007, I had an interview at Remploy in Town, and this woman kept passing comment on my lack of eye contact, among other issues including accusing me to my face of LYING about every word of what was on my CV! You what?! Anyway, is the lack of eye contact an actual thing in Autistic folk or was she just being…
-
Do you have problems processing the sounds your ears hear
Hi all, Many can have problems with their brain processing the sounds that their ears hear, this can be a genetic issues and is an Auditory Processing Disorder (which is a life long set of issues and symptoms which can include developmental dyslexia), and there are acquired causes such as brain injury, stroke, and dementia…
-
ADHD diagnosis..Do you work…how do you manage?
With a recent diagnosis of ADHD Inattentive type my adult daughter really wants a part time job. The medication prescribed doesn’t help and I’m worried what she will be able to do work wise in the future. Anyone out there who is going through/has been through this?
-
Nimbus asking for evidence I don't have - has anyone else experienced this?
Hi All, I'm hoping someone here might have come across something similar or can point me in the right direction. I’ve been diagnosed with anxiety, and my doctor has documented the symptoms it causes. One of the key issues is that my anxiety is significantly heightened in busy environments, particularly when queueing. This…
-
Functional vomiting syndrome
Hi there I'm just wondering if there is anyone else who suffers from this rare condition, I've had it for 7 years now often vomiting upto 20 times aday with no warning when an episode starts.ive had lots of scans and seen a few specialists and still get no where.ive been diagnosed with this but dealing with it is hard
-
Pip Review Claim
We have received your PIP review form. We may contact you for more information or you may need an assessment with a health professional before we make our decision. We will contact you again if you do. You will continue to get PIP while your award is being reviewed. You only need to contact us if your circumstances change.…
-
Functional Vomiting
Treatments for hospitals for treating in UK good doctors current research Link to B12 deficiency tests for B12 deficiency
-
Fnd
Fnd
-
Myasthenia Gravis
MG is a rare condition.In layman's terms,the messages between nerve and muscle are destroyed by antibodies .The sufferer experiences severe weakness of skeletal muscles. The symptoms can vary minute by minute and is extremely unpredictable.My greatest symptom (Today at least !) are choking on food and a closed left…
-
Fibromyalgia osteoarthritis
I don’t understand what this means
