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Struggling to get my doctors to take my condition seriously
I’m looking for someone who can help me with a situation concerning my condition and not getting anywhere towards a proper diagnosis and treatment plan. Back in 2016 I had an injury from a bad fall in which I landed down hard on my tailbone / bum. The pain did not go away with rest and my symptoms were sever pain around my…
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Shocking behaviour towards a person with disabilities
Hello. Just wanted to share my recent encounter of the situation, where I was mocked and made fun of because of my disabilities. I am 40 smthg single female, divorced 3 years ago, raising an 8 y.o. daughter. I have multiple neurological, physical and mental health conditions, most of which are invisible but are very…
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have lots of aches and pains and finding climbing the stairs q difficult:(,,, thanks for reading
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belly pain for 3 years, no diagnosis
Hello Everyone! I'm new here :) Wanted to share my story, hoping maybe someone would have an advise or something... I've been in pain and undiagnosed for 3 years now and not sure what to do anymore, so I'd appreciate any feedback. My story started when I was 16-17, once a year I'd get episodes of a very painful attacks on…
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Multiple Chemical Sensitivity/ Fragrance Intolerance
Hey I wonder if others in here also experience an intolerance to Fragrance? It appears to be the synthetic derived kind mostly from petrochemicals (as does petrol/gloss/paints/adhesives/solvents mess me up also) Ive had it since around 2016 , im 33 years old but it just gets worse and worse, to the point if i walk along…
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ME/CFS - It's In The Genes?
I was just looking through The Guardian as usual, and I thought some of you might be interested in this. https://www.theguardian.com/society/2025/aug/06/genes-me-chronic-fatigue-syndrome
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Hernia Advice
Hi, Does anyone have any advice for an Umbilical Hernia? I am 26 year old female with other health issues. One of these being gastrointestinal related. The GP has prescribed me some Codeine but I just wondered if anyone knew of anything else that could help? Thanks in advance :)
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Hi, my name is Stav! I have just been diagnosed with Dercum's disease
Hi, I have just been diagnosed with Dercum's disease after having an ultrasound and examination by a dermatologist in hospital. I have pain in all my joints along with fatigue, any advice would be most helpful.
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IBS and uncertainty
Hi Can anyone help or had similar experience with worrying about diagnosis. I guess pain can make you worry, but before i was diagnosed IBS i tolerated pain dull on and off long time. I had a bad flare up and had call 111 prior. I wasnt diagnosed then but the other day. I was worried the pain was bad i decided to look and…
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Did being sick help my PoTS? Looking for others with experience!
Hiya :) Long story short, four weeks ago I began having an allergic reaction to a new medication. I was sick almost every day for 2 weeks, 8 days of that was spent in the hospital. I was released from the hospital 2 weeks ago, but my PoTS hasn't been bothering me so much since the reaction! At first I thought it could have…
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not sure if i should get a wheelchair?
Hi! so for as long as i can remember I have had some problems with walking, my knees hurt and click, same with my hips, my feet turn in and i stumble quite a bit. I don’t think I look obviously disabled from the way I walk however my parents would comment on me walking weird and yell at me to correct it. I haven’t got any…
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Help with disability aids
Hi, sorry if this is the wrong category I'm very new here (made an account only a few minutes ago) I've gotten a diagnosis last year and have only just warmed to the idea of using an aid, I feel a bit anxious about it and worried people in my life will think I'm exaggerating. I ideally need a cane or a wheelchair but I'm…
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Anyone else with mastocytosis and able to offer some advice?
Hi all I am quite new my name is Stuart I was diagnosed with mpn I recently had a bone marrow biopsy my results I was told yesterday by the haemotologist I have mastocytosis which is a form of leukemia so not good they have ask for specialist advice from other hospitals so you can emagine my head is all over the place is…
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False memories
I have a head full of things that never happened to me I used to drink quite heavily but an accident 35 years ago put paid to that – I fell in the road and damaged my basal ganglia which affected my movement and memory as well as speech – at least this is what I have spent the last 35 years believing – but the truth is…
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Undiagnosed condition causing anxiety
it’s been a while since I posted on Scope forum which I see as a positive. But I am anxious and want to share and see what advice people may have I have had medical issues all my life, currently diagnosed as anxiety and depression, dyslexia, a rumbling disk, and no diagnosis for chronic pain, low energy, and poor mobility.…
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Low folate
I've now had low folate levels 3 times. I'm calling the doctors this morning to ask why this keeps happening. My liver results are raised and my folate level is 2.3 all other blood results are normal. I eat a varied diet and I know your body needs folate as it doesn't store it for long. I've read folate can affect liver…
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NHS Refuses to treat me
Hello I have just joined after finding out about Scope on goggle. I have lots of chronic pain following a serious car crash 24 years ago, ostperousis server and mental health issues. I keep getting sick and food gets stuck in my throat from scar tissue from the traciostamy I had after my car crash it saved my life. The…
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Atypical cases in medicine and when the 'experts' are wrong
A discussion about scientific evidence. What we know and when clinicians are wrong. Owning up to limitations and what can be done about it.
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Terrible experience with health service
Just here so people can share their experiences. The previous discussion was closed on account of supposedly giving medical advice. Had ongoing problem for ten years that related to a dodgy cosmetic product that was some microbial substance. Thanks
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Deregistered from practice
Reopened this as closed on account of 'veering on medical advice', helpfully. In the world of never use your brain and seek out 'experts' to think for you. Never endeavour to learn anything. Sorry, to say that this specialism and how its practised isn't hard to understand. It's plainly about observing 'known conditions'.…
