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Sudden Unexpected Death in Epilepsy SUDEP
Medical professionals need to be discussing SUDEP with their patients! The leading cause of death in epilepsy is rarely explained to patients by doctors, a grieving father has said. BBC News-SUDEP
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Degen disc in neck
Hi, I'm having trouble sleeping. I can't find a good pillow. Wondering if anyone can recommend one.
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Dry mouth - artificial saliva
Amongst my many more serious conditions (as a side effect) - I suffer from a dry mouth at night - I am forced to sleep on my back (due to arthritis) and my mouth stays open (snoring) - I wake up with a mouth like dry leather, many times each night - but when I drink water, I need the loo (extremely overactive bladder) - so…
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Hi there
For the Past 4 days i have been getting blood in my catheter bag every day ive put it on when i went to hosp on friday after ive seen about my endoscopy appintment i went accross and said to urology about this and they just said contact sheffield urology i cannot get hold of them so after ive been with my daughter in the…
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GP Query
Hi, can anyone confirm if this is now normal practise. I was involved in a serious RTC 2 years ago now, my GP has been prescribing amptyline for nerve damage to my leg. Unfortunately the drug didn't work. When I phoned the GP re: this I was told if it didn't work then don't take it. I was also informed, there's another…
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Fellow screen reader users - how to use the text box on this website?
Hiya, I hope this is allowed and if it is, it’s in the right section - I can’t see a section specific to visually impaired people anymore. Are there any other voiceover/NVDA users on this forum? If so, do you have any tips for using the text input box for making posts and replying to posts on here? I’ve just come back here…
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High blood pressure
Hi all im on medikinet adhd medication bloody pressure been normal but today its 131/110 is this normal
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How much pain is acceptable?
A few months ago I saw a neurophysio and an OT they didn’t examine me (not once) we discussed my pain level and their response was… “Well you need to accept that you have Cerebral Palsy and at 32 you’re going to be in pain” A few weeks later I was with the OT, again the subject of pain came up. My pain was that bad I was…
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Fit test
Hi to all ive had the result of my Fit test because mine came bk at >200 so doctor want colonoscopy test done i hate them really painfull. Blood in toilet bowl been ferling yuck for ages. I am really not looking forward to this test done at all. Amazingblazing628
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Diagnosed with GERD
Hello, hope everyone is doing well :) I have recently been diagnosed with GERD (I think I remember seeing a few posts about it here). For those of you who have it or know someone who does, what sort of things have been put in place to help with the symptoms? I have been put on medication and will be seeing a dietitian for…
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Hi, my name is laylabelle! hEDS specialist
I could really do with some advice, I have been recently diagnosed with hEDS, after years of back and forth to the doctors, physios, specialists and rheumatologists and was only diagnosed because I went to the doctors with the official diagnostic criteria all filled in which was then checked over by my GP and a specialist…
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Hip replacement with rrMS
I am a bit concerned about my up and coming hip replacement surgery. I have had MS for 25 years and take no big pharma drugs and eat the healthiest food…. this has kept me relatively relapse free, till now. I add in meditation, exercise and as much laughter as possible…. and I seem to be doing well. So now the arthritis……
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Pain on waking up
I often wake with considerable pain in my back. Sometimes my head is thrust back at an odd angle. Does anybody know how to make this better? It’s not a pleasant way to wake up.
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Giving up on getting better and/or acceptance of disability?
Hi. I have peripheral neuropathy in my feet that started in 2011 and has been getting worse overall and since 2-1/2 years ago I can barely stand or walk. The reason for the neuropathy is due to many different illnesses and treatments of those illnesses. I'm really in a confused state between giving up on getting better and…
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To Wheelchair or not to Wheelchair?
I'm 29 and it's becoming increasingly painful and tiring to stand and walk for long. Last year I started university (very late in life😅) with the help of my rollator. I find myself missing days as I just cant bare standing/walking as much as I need to even with my rollator or my crutches. I keep backtracking and talking…
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CIDP
Hi, I'm iya. i'm here to know other CIDP patients. I need someone who can understand my condition😔
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Hi, my name is Louise_14! Has anyone got advice for dealing with diverticulitis and IBS D?
I've had IBS D for years which I dealt with myself (ignored as much as possible and used loperamide) until it got an awful lot worse a couple of years ago and I eventually managed to get a face to face appointment with a doctor for a proper diagnosis. Turned out I also had a diverticulitis flare up which I didn't know I…
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Possible operations to improve movement /dexterity etc
Hi ,apologies first of all if this is it wrong **** category or already has been discussed. When I was 16 I had a tendon transplant which gave me me more pincher movement between my thumb and index finger. I was told by the surgeon at the time at the time (2001) that any further operations were 50/50 on improvement or could…
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CP and spasticity
I'm 66 and have left sided Hemiplegia. For about the last 10 years I've had increasing problems with weakness/ spasticity on that side of my chest. I call it a 'wraparound' pain. I slump to the left, the pain goes down my neck, under the bust, over the shoulder and up into my head. My chest feels like concrete. I don't…
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Hi, my name is Annie. Has anyone had experience of low dose SSRIs for ACC teenager?
I have a son of 17 with Acc. he is having some unregulated behaviour especially at school where he bangs his head etc. I have asked a doctor about medication before and they suggested a low dose SSRI. I'm starting to consider it. I'd love to hear of other peoples experience of their teenager on SSRI or other meds..
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Kafo talk
I wear a kafo and am getting a new one. I am used to the process but want to talk to another user. There are so many choices to make. Hoping for many replies,