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Wrexham Meet Up with CP Network and Cerebral Palsy Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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The amputation of my lower left leg below the knee in 2005
The amputation of my lower left leg below the knee in 2005 was tough and I overcame it. It was during my 3rd tour in Iraq during combat which there was heavy firing. Was with the unit running around and then felt one bullet hit me, then a 2nd one finally following the final 3rd one which I did fall. It did hurt and I was…
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Tendonitis - has anyone successfully applied for "Continuing Health Care"?
I was wondering whether any of you lot had successfully applied for "Continuing Health Care" ? I have been told by my surgeon that despite my shoulder arthritis causing me intense pain and locking up and getting worse - tendonitis. The option of an operation is not there, because of the recovery being hindered by overuse…
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Spina Bifida and just had a stroke.
Hello all, I am looking to connect with anyone born with Spina Bifida who's also had a stroke. I had my stroke 2 months ago and I feel like I'm experiencing some after affects that are completely unique and would like to chat to anyone in the same boat. 😊
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Vasodilater tablets and periphal artery disease
Does anyone take vasodilater tablets for PAD and have they helped
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Hi, my name is marcol! I am a widow of 4 years now and disabled … I need to exercise as so unfit...
hello, I am a widow of 4 years now and disabled … I need to exercise as so unfit! But as my legs and hips object strongly to moving and holding me up I need advice on what to do to build up my upper body!
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Hi, my name is Lainy7! I had my total knee replacement 4 weeks ago and really struggling...
Hello Im new to this group, I had my total knee replacement 4 weeks ago and really struggling with it all, trying my best to do exercises, bending it is a nightmare the pain is sickening Im managing to walk with crutches, sleep is almost impossible, Im going for a bit of extra physio again as told it would help but am…
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Extra Virgin Olive Oil Benefits.
I have suffered with right knee pain for at least 18 years and ultimately I discovered after trying various ointments one that was beneficial. The pain was noticed more accessing my stairs in both directions and using my indoor cycle. But this particular glucosamine gel is readily absorbed and it relieves the pain for a…
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Alpha-Stim machine for ME/CFS Insomnia Anxiety and pain
Hi all, I’m wondering if anyone has tried the Alpha Stim machine and how you got on with it? It says it has had positive trails on the NHS for all symptoms related to ME/CFS but as of yet I don’t think it’s available on the NHS and incredibly expensive to buy or even rent. Reviews I’m seen on Trustpilot are mostly positive…
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Prostate Problems
Hopefully You may have read my 4 articles about "Prostate and Catheta Problems" Part 1, part 2, part 3, part 4!!!!!!. Before I could be fitted with any kind of catheter, the consultant from Urology needed to have a one-to-one with me to discuss the diagnosis and to put forward a treatment. Because my prostate had enlarged,…
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Hi, my name is davidsmall! Would like advice on how to deal with arthritis in lumbar fcet jointsn
I am suffering arthritis in lumbar fcet joints
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Hi, my name is Jayne56! Worried about bile acid malabsorption
i had y gallbladder out last October and now I feel I have bile acid malabsorption. I’m taking physillium husk capsules once a day because of daily and evening meds I have to take. I’m in the UK and would like to speak to people in the same situation as I am. It’s effected my mental health as well I have terrible anxiety…
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Prostate and Catheta problems (part 1)
Hello. I am bryan777123, age 73. I will keep this article as concise as possible. Now that I am one year into my situation. JUST over a year ago, I began to have serious and painful problems not being able to "pee" even though I was desperate to go, but couldn't. My GP sent me to the hospital for a water test. On the day,…
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Worsening back and neck pain
Got so bad yesterday at work was in agony with my neck and me being terrified of ringing in sick at Easter as i work in a supermarket asked my dad to ring up work for me ,I never used to be so anxious, prescription painkilkers are not doing much
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Confirmation I'm deaf finally
I had a ent appointment and hearing test I'm kinda pleased and also kind of distress about fact they have said I've lost most hearing in right ear, awaiting operation for tube removal, which will then lead to no hearing aid apparently on that side, and left side moderate hearing loss and hearing aid I already have a great…
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My Hydrocephalus Difficulties
I developed a condition called Hydrocephalus (also referred to as water on the brain) three months after I was born. Not only this, but a whole developed in my heart and I suffered multiple seizures in the incubator. As a child, I found it difficult to make friends, I was held back in Year R, and I received a lot of…
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Your Challenges with the Length and Number of Subjects involved in Community Posts.
Everyone in the Scope Community is very aware, of course of their limitations with their health condition(s) I personally believe that with us only being able to write down what we want to express here, it can be a challenge to realize that the people you are friendly with and genuinely supportive of may be struggling with…
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Hi, my name is lorwinter! I am concerned the the job centre staff have little understanding of ...
I am concerned the the job centre staff have little understanding of autism my adult son is seeking work but due to having panic attacks on public transport we have asked if we can look for work in walking distance which is do able as we live in a town. His work coach got pushy with him today arranging an Interview 11…
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Autism awarenesss
I wish the job centre would have some empathy and awarenesss, as a health professional all levels have specific training on this to make the patient are for these individuals more focused on their needs. My son has had bad experience with job centre staff basically their not understanding his autism and the way he had been…
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Diazepam long term use
Ive had radicular nerve pain in left limb and back pain for over 6 years. Long story short, had epidural injections, nerve blocks and microdisectomy on L4/l5 with no reduction in pain or symptoms. I have lumbar scoliosis, stenosis, arthritis throughout lumbar spine, impinged compressed nerves, dehydrated discs, bulging…
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Hi, my name is AN972! Anyone suffer from tremors? How did you cope?
I have an undiagnosed tremor (although my GP thinks it's Benign Essential Tremor). It worsens the more I move. But when I'm relaxed it feels more like fluttering, with the occasional jerking. Any advice? Or anyone else who is going through this, how did you cope? Also, my partner of 31 years has lung cancer and is fighting…
