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In hospital and not for mental health this time
hi every one I have been having seizures since Friday the hospital admitted me there gonna get me to see a specialist .
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Hi, my name is edmundo!
I’m 41 years old and I have mild cerebral palsy. Up to the age of 11 I could walk and run unaided, at this point I developed generalised Dystonia and although I was still able to walk shorter distances unaided I started using a wheelchair for longer distances. I attended university, live independently and work full hours…
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Ruptured Archilles tendon
Hello, 4 months ago, I fell over in my garden and landed on my hip, the left side that I have osteoarthritis. Luckily the grass was soft and wet, it didn't affect my hip. My right ankle felt like I had sprained it. It hurt but also felt very stiff. I never bothered going to my GP which I now regret because I left it too…
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help with hormone-based migraines
any advice for hormone based migraines ? 🧠 plus bloating? 🤔🤷♀️ love Mary
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Hi to all
I have a Urology appointment on Monday in the afternoon time about my Spc i have a small split in where the tube is to the left I might have to have glue or a stitch in it will see what they say when I go back. amazingblazing628.
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SAR request rejected
I made a SAR request on a hospital that treated me 32 years ago and it was rejected on grounds of time (they claim that my medical records were destroyed in the meantime) This is wrong - records are supposed to be held until 10 years after the patients death - and I am still alive !!
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Tethered Cord
Hello. My name is Mark, I’m 53 year old male. I’m looking for advice/ other adults with TCS. As an infant I was diagnosed with tethered cord, a deep sacral dimple, scoliosis and Sprengel’s deformity/scapula hypoplasia. At 9 years old I had left scapula surgery to reduce the should height. At 11 (1982) I was scheduled for…
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Hypermobilty Syndrome
Hello I am still quite new to using the forum and I am so grateful for the advice and information I have been given since finding Scope. I wasn't sure where to post this - but I am wondering if there is anyone who experiences hypermobility syndrome with joint and body pain and boom and bust type tiredness? or maybe…
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Hi to all
I was back @t the doctors yesterday I have been cleaning my superpubicatheter all the time like I was asked to and it's still inflamed where my drain is so was given naproxen and fucidin cream and still getting yucky stuff comming out of it. The district nurse is comming tommow she what she says I think I need referral…
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Myasthenia Gravis
has anyone been diagnosed with Myasthenia Gravis or know anything about it ?
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Telephone
Does anyone know what equipment or apps I can use for listening and conversing on the phone when I have a hearing impairment? I know there is something called Captioned telephone has anyone used it
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Hi, my name is bon_gil!
I was diagnosed and have lived with ET first in my RH and now both hands plus internal tremors. Add to the mix type 1 diabetes and having to inject insulin multiple times a day and a chronic eye condition caused by diabetes in both eyes with ongoing treatment over the next three months. I am 62 and a carer for my 84 year…
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Good support for your ileostomy
Hello, I want to share my experience with ileostomy support pouches. About 7 months after my operation to remove my bladder, prostate, and a couple of other bits and pieces, and after starting work again, I started to experience some discomfort around my stoma - it felt a bit like groin strain. I received a "belt" to…
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Hi to all,
I had my operation on Friday I was the first to go down but had to get changed into gown so I didn't go down till 11 am I was anxious about having it done anyway I had epidural and some sedation I am pleased I ve had it done but it's very painfull I don't know about 10/10 more like 20/20 the amount of pain & antibiotics I…
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Hi to all
I woke up went into the hallway to go to loo last night lost my balance knocked cat water dish over and went into the wall. Then today I went to put Rug on line felt lightheaded and decked the decking outside couldn't get up my Son had to help me up. Just comming on out of nowhere I phone neurology up and they said I will…
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Functional neurological disorder help and support
Hi, I’m new to the site so do t know how to navigate it yet. But I was diagnosed with Functional neurological disorder in May this year and still trying to come to terms with it but would love any advice from anyone that suffers from this condition. Would really appreciate any help and support x
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Hi, my name is BigE!Thinking of starting Advanced biomechanical rehabilitation. Has anyone tried it?
I've been thinking of starting Advanced biomechanical rehabilitation is there anyone on here that has tried it and does it work?
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capsaicin cream
Anybody tried this for osteoarthritis ? I believe, 2 years ago - there was a shortage in the UK ?
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When you think it can't get worse and you are proven wrong!
I haven't posted on her for a long while but need to offload. I am a full-time wheelchair user, I get a lot of pain in my hips, legs and feet but I have been coping with it quite well recently, I even announced I was happy. And then I wasn't! I get stiff hands if I do something like weeding in the garden. My hands, wrists,…
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Ehlers Danlos Syndrome & use of aids.
Hello, I have Ehlers danlos syndrome and have recently started using a walking stick which hurts my hand something terrible. I have had a distinct lack of support surrounding it, and was wondering how everybody manages their condition themselves, including the timing and use of aids. Have you paid for aids privately? I…
