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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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Bicep Tendonitis
I have this extremely painful condition - to start with, everybody assumed that I had revolver cuff problems but after 3 years (misdiagnosed by consultants etc) - it was finally correctly diagnosed as arthritis of both shoulders - with associated bicep tendonitis - which is caused by the tendons swelling up and catching on…
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Anxity and mentel health
I feel so down because I have disability mentel health myself also anxity I look after my partner I used to work but now I dont. I think there no one that understand what I an going throw never had support in my life
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Hi, my name is JackieLynn! I am an amputee and it was tough at first. Was in the dumps at first...
Hello, I am an amputee and it was tough at first. Was in the dumps at first and it took one step to accept my lower left leg was gone in 2005. I am an US Marines veteran losing my lower left leg after being shot there twice doing major damage to the bone during my 3rd tour in Iraq. I do have my life back wearing a…
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CANNOT WALK STRAIGHT
Hi Folks I am in my late 50s and have right hemiplegia from birth. I also cannot walk in a straight line , so a person(s) walking towards me from the opposite direction can easily get confused. Is there anything I can do in order to improve my walking, or is it too late considering my age? Thanks for your responses.
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Is FND a disability?
Just diagnosed with FND. Waited year for neurology appointment. What is difference with ME and this. Feel like not believed. Can hardly walk and speech and sight affected. Is FND a disability?
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Occupational therapist help
Aids for dressing upper body due to shoulder injury does anyone use upper body aids for washing and dressing? If so what please and how does it help have a ot assessment in a few weeks, last time I got grab rails and bath seat, I need help with things like lightweight pans and I nearly drop kettle right handed just doesn't…
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Abdominal fistula
hi all, Ten years ago I had serious complications during a hysterectomy resulting in a perforated bowel which developed into a fistula. It’s a rare condition and pretty awful, I have 2 stoma bags, it’s a very long story. I’m frequently unwell but have learnt to manage it as best I can. It cannot be fixed as it’s too…
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Neuropathy in the feet
I am hoping I can get some advice, thoughts or recommendations. My husband had a near fatal motorbike accident last May . He survived the inevitable and throughout his ongoing road to recovery, his GP told him he had diabetic neuropathy as he is a type one diabetic and his blood sugars were not easy to control whilst he…
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CPAP machine
Hello all, I was diagnosed with obstructive sleep apnoea in October last year and my appointment has come through to be fitted with a CPAP machine in a few weeks. I've been warned it could take as much as 6-8 weeks to get used to it. I just wondered what other peoples experiences using the machine was like. Also, if you…
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Hi, my name is bella57! I’m brand new here but after some advice from others going through the same.
Hello, I’m brand new here but after some advice from others going through the same if possible? I have Spina Bifida, kyphosiscoliosis, a badly tethered spinal cord and issues with my bladder and bowel which all cause chronic pain daily and I was given a hospital bed at home and have been bedridden for the last 6yrs for…
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Flexible Cystoscopy
I had a flexible cystoscopy - in 2023 - without any form of pain relief - no "gel" and definitely no Entenox - I was in so much pain during the procedure that I almost blacked out !! The results were clear - but the consultant at the post procedure meeting told me that he would contact me in 3 months to update me - he…
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Care Support Plan. Do I sent this information back to the Ombudsman or challenge the social again?
Hi, My son has a Care Support Plan. The council decided to take funding away before the annual assessment was completed. I took the case to the Ombudsman and won, The council had failed. Now, the support plan is back and running, but the council/social will not support the Physiotherapy my disabled son desperately requires…
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Hi, my name is tonykaren64! Hi I am due to have this implant very soon I have undergone 16 spinal...
Hi I am due to have this implant very soon I have undergone 16 spinal operations now have spinal surgery failure this is my last option I have been told it can cause very back electric shocks is this going to make my sciatica worse as I suffer with bad spasms I have copd and arthritis any feed back would be brilliant thanks
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Hi to all
I would like to say Thankyou for my Silent night throw i am going to use it later on. I went back to hosp yesterday I couldn't take my urine input sheet and output urine sheet back as I didn't find it till after I came home. I have another appointment in 2 weeks time. Still in servre pain *& more bleeding they R saying…
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Radiofrequency ablation
I have been offered Radiofrequency ablation on my lower back I wondered if anyone had had experience of this and was it worth it?
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CIDP AND KNEE REPLACEMENT. Did you have any problems? Suggestions welcome.
Hi. I have CIDP & am getting IVIG monthly. I need a knee replacement & am wondering if anyone on here with CIDP has had a knee replacement. Did you have any problems? Any suggestions? Thanks
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Hi, my name is Traceyyyy! I’m new here and had emergency CES last August...
Good morning everyone, I’m new here and had emergency CES last August. I have a claim in and a chiropractor did a manipulation on my neck and hips on 24 July op was August 12 next morning after manipulation my legs were in severe pain lower back pain hip pain I to groin , heavy legs, worsened bilateral sciatica . Can it…
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Any tips on coming to terms with new acquired disability?
Hey Just wondering if anyone can offer me advice on how they have come to terms with an acquired physical disability? (I need a tilt and recline wheelchair out of the house now, can't walk far or sit upright). I think to myself "what is, is what is, so don't add to your suffering by comparing it to what you had before or…
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Disabled due to Cauda Equina
I am disabled due to Cauda Equina im now classed as partially paralysed with all the pain and other problems that go wit severe nerve damage now classed as cauda equina syndrome. Tbis came on suddenly its hard to come to terms with the change from being in a good job that i loved to living in constant pain and relaying on…
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Scoliosis!?
hello, Sorry, I am new here and I don’t know if I’m even posting in the right place 🙈 About 10 years ago I had an unrelated xray that picked up a “slight scoliosis” nothing more said, I only noticed reviewing notes on X-ray and I forgot about it. Fast forward a few years, my natural stand is very apparent, I have uneven…
