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SAR request rejected
I made a SAR request on a hospital that treated me 32 years ago and it was rejected on grounds of time (they claim that my medical records were destroyed in the meantime) This is wrong - records are supposed to be held until 10 years after the patients death - and I am still alive !!
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In hospital and not for mental health this time
hi every one I have been having seizures since Friday the hospital admitted me there gonna get me to see a specialist .
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Hi, my name is bon_gil!
I was diagnosed and have lived with ET first in my RH and now both hands plus internal tremors. Add to the mix type 1 diabetes and having to inject insulin multiple times a day and a chronic eye condition caused by diabetes in both eyes with ongoing treatment over the next three months. I am 62 and a carer for my 84 year…
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Good support for your ileostomy
Hello, I want to share my experience with ileostomy support pouches. About 7 months after my operation to remove my bladder, prostate, and a couple of other bits and pieces, and after starting work again, I started to experience some discomfort around my stoma - it felt a bit like groin strain. I received a "belt" to…
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Hi to all,
I had my operation on Friday I was the first to go down but had to get changed into gown so I didn't go down till 11 am I was anxious about having it done anyway I had epidural and some sedation I am pleased I ve had it done but it's very painfull I don't know about 10/10 more like 20/20 the amount of pain & antibiotics I…
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Hi to all
I woke up went into the hallway to go to loo last night lost my balance knocked cat water dish over and went into the wall. Then today I went to put Rug on line felt lightheaded and decked the decking outside couldn't get up my Son had to help me up. Just comming on out of nowhere I phone neurology up and they said I will…
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Functional neurological disorder help and support
Hi, I’m new to the site so do t know how to navigate it yet. But I was diagnosed with Functional neurological disorder in May this year and still trying to come to terms with it but would love any advice from anyone that suffers from this condition. Would really appreciate any help and support x
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Hi, my name is BigE!Thinking of starting Advanced biomechanical rehabilitation. Has anyone tried it?
I've been thinking of starting Advanced biomechanical rehabilitation is there anyone on here that has tried it and does it work?
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capsaicin cream
Anybody tried this for osteoarthritis ? I believe, 2 years ago - there was a shortage in the UK ?
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When you think it can't get worse and you are proven wrong!
I haven't posted on her for a long while but need to offload. I am a full-time wheelchair user, I get a lot of pain in my hips, legs and feet but I have been coping with it quite well recently, I even announced I was happy. And then I wasn't! I get stiff hands if I do something like weeding in the garden. My hands, wrists,…
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Ehlers Danlos Syndrome & use of aids.
Hello, I have Ehlers danlos syndrome and have recently started using a walking stick which hurts my hand something terrible. I have had a distinct lack of support surrounding it, and was wondering how everybody manages their condition themselves, including the timing and use of aids. Have you paid for aids privately? I…
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Help maintaining health diet with Chronic Kidney Disease
Hi, I was told yesterday off my GP that i have CKD stage 2. Apperently i have had this since being very young. I am 56 yrs now, female. My kidney readings have always been at CKD stage 2. I was a premature baby and the doctor thinks that what has caused this. I am worried sick now even though my GP said whatever i have…
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Exercise with shoulder arthritis
I was (finally) diagnosed with shoulder arthritis yesterday - after years of "it's rotator cuff" or "it's nerve impingement" Caused by overuse of my shoulders (I also have bad knees and back - and cannot mobilise as a "normal" can do…..) I was not told what exercise I could do I am in a lot of pain, virtually constantly…
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Physical "disability" REVOLUTION
Hi guys, [Image removed by moderator - No Advertising] My name is Ricardo Intriago, I am 20 and I was born without my left hand and pectoral. Poland syndrome, to be precise. I had been working on a project for changing how people with physical disabilities or physical differences as I like to call it, feel about themselves…
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Amputee with impairment to "good" leg
I had a below knee amputation to my left leg last year in unplanned emergency surgery following SEPSIS. I already had Osteoarthritis in the right knee, and it is completely unable to take my weight standing. Therefore, the prosthetics team said I was not a candidate for an artifical limb until the knee was repaired.... so…
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Hi, I'm sonk1968! Looking for others with a Spinal Cord Injury to chat
Hi I'm Sonja a 54 year old mum to my daughter who is 18 in 2025. I had a urostomy fitted in 2000 due to bladder cancer.Last year I had a blockage in my left kidney which needed resctioning the bowel and making a new stoma. Surgery was successful and was due home after 6 days in hospital. When they removed the pain epidural…
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im 58 year old woman ,just dx with Adhd ,full spine scoliosis both should have been dx in childhood,
sufffering severe depression and anxiety and totally isolated with no family ,, ,in factbparents emotionally abusive ,feeling despair and overwhelmed esp due tomfrailty and vulnerabity hypertension live opposite council estate pub very noisy,and garages under me ,noisesbsensitivity have been stuck herr
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Tethered Cord
Hello. My name is Mark, I’m 53 year old male. I’m looking for advice/ other adults with TCS. As an infant I was diagnosed with tethered cord, a deep sacral dimple, scoliosis and Sprengel’s deformity/scapula hypoplasia. At 9 years old I had left scapula surgery to reduce the should height. At 11 (1982) I was scheduled for…
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Anyone here have a cvst / occlusion of a venus sinus?
As per title, just wondering if anyone here has had a cvst? The title the Dr's gave my condition was an Occlusion of right posterior transverse venus sinus. Honestly, I thought I was a goner. Main symptoms at time were confusion, slurring to the point nobody could understand me, pain worse than anything I'd ever…
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Ruptured Archilles tendon
Hello, 4 months ago, I fell over in my garden and landed on my hip, the left side that I have osteoarthritis. Luckily the grass was soft and wet, it didn't affect my hip. My right ankle felt like I had sprained it. It hurt but also felt very stiff. I never bothered going to my GP which I now regret because I left it too…
