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Exercise with shoulder arthritis
I was (finally) diagnosed with shoulder arthritis yesterday - after years of "it's rotator cuff" or "it's nerve impingement" Caused by overuse of my shoulders (I also have bad knees and back - and cannot mobilise as a "normal" can do…..) I was not told what exercise I could do I am in a lot of pain, virtually constantly…
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LBBD Council
Anyone had or is currently having really bad problems with the LBBD. They are refusing to accept that what they are doing to us is totally wrong but no one seems to know how to stop them, including the next to useless Ombudsman
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Tethered Cord
Hello. My name is Mark, I’m 53 year old male. I’m looking for advice/ other adults with TCS. As an infant I was diagnosed with tethered cord, a deep sacral dimple, scoliosis and Sprengel’s deformity/scapula hypoplasia. At 9 years old I had left scapula surgery to reduce the should height. At 11 (1982) I was scheduled for…
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Anyone here have a cvst / occlusion of a venus sinus?
As per title, just wondering if anyone here has had a cvst? The title the Dr's gave my condition was an Occlusion of right posterior transverse venus sinus. Honestly, I thought I was a goner. Main symptoms at time were confusion, slurring to the point nobody could understand me, pain worse than anything I'd ever…
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Ruptured Archilles tendon
Hello, 4 months ago, I fell over in my garden and landed on my hip, the left side that I have osteoarthritis. Luckily the grass was soft and wet, it didn't affect my hip. My right ankle felt like I had sprained it. It hurt but also felt very stiff. I never bothered going to my GP which I now regret because I left it too…
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MUSCLE SPASMS!!!
Hi my name is Laura. Just joined this forum. I have HSP and my main problem is muscle spasms which cause me to have many sleepless nights. I'm waiting to see a new neurologist who might listen to me. Does anyone else here suffer from horrible things as well? If so what do they take as a muscle relaxant? Ta
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Wheelchair accessories?
Hi everybody! I tried to see if this could be posted under “Wheelchair” but I think that might be just a tag rather than a category. Anyhow, I purchased the KWK D09 and electric wheelchair and was wondering if anyone has purchased accessories for it. If so, what was your experience? I’m a tall person and feel like the…
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"Am I happy with the way that I am - and if not - what can / will I do about it ?"
This is a question put to me by my wife/carer this morning and to be honest - I don't know where to start …. Anybody got any ideas ?
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Getting support (physio, OT etc)
Hello Our 10 months baby is significantly delayed. Motor and cognitive. We've been told since he was a few weeks old by all the specialists we have seen privately that physio is absolutely key. We've also been told in the past 2 or 3 months that he should see an OT. We are getting nowhere with the NHS. We are on a waiting…
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How do you identify
Throughout large anonymous organisations we get asked this question a lot. I find it intrusive personally. Skin colour, gender, religion, age and sexual orientation. Sometimes I feel like saying why? I understand that it’s supposed to show the demographics of today, but it doesn’t ask if you have a disability. So do you…
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Abysmal NHS
My local NHS is poor - such things as WAITING 12 weeks to hear the result of a 5day Heart monitor test or waiting 8 weeks to hear the results of a bowel cancer CT scan…….. and ABSOLUTELY no response at all to emails sent regarding accessories available to allow me to carry a cup of tea, from the kitchen to the living room…
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Alexander's Lucodisraphy
Hello all I am 30 year old and I have a rare condition called Alexander's Lucodisraphy.
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My council are breaking the law and ignoring my complaints
This has been going on since February 2015 and there's no sign of them budging on the issue at all. Short version: - Registered partially sighted with them since June 2007 - Moved out of parents house in February 2015, which now makes me liable for council tax - I asked the council for all letters to be in large print -…
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Hi, my name is Temitopeakanbi_1982! Lumbar Spinal Stenosis, any advice about treatment?
Curious!! About what may happen to me ; if should go for lumber spinal stenosis surgery as the only option for me . In brief. I have been suffering from a severe back pain since two and a half years ago. I was diagnosed with lumber spinal stenosis (L4 and 5) I have done two infiltration ( injection of steroid into my…
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Ankle Fusion Surgery
I would be interested to hear peoples views/ experiences about this surgery , the positives and negatives. I had a discussion with my consultant at Royal National Orthopaedic hospital about this on Monday this week. Although the team at Royal National Orthopaedic feel this is not an option for me now it could be in the…
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Scoliosos and Spinal Fusion Surgery Help
Hi! Does anyone know anything about scoliosis and spinal fusion surgery please? I have had scoliosis for most of my life. It’s a condition that can affect areas of the spine usually during the formative years. I was diagnosed in my early teens and regularly monitored. Years later, having grown up without it affected me…
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Hi, my name is SallyEuston! Spinal Stenosis, is it worth having the operation ?
Just been diagnosed with Spinal Stenosis, is it worth having the operation ?
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For people with physcial disabilities
Hi guys, my name is Ricardo (20). I was born with a condition called Poland Syndrome. I don’t have a left hand nor a left pectoral. I am working on developing a website for empowering and supporting people with physical disabilities. The target audience is mainly teenagers and young adults and the goal: to accompany them…
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dealing with spinal stenosis pain. Does anyone have any tips?
I'm not sure if I am in the right place but I hope so. Please let me know after my post if I am in the right place. I have been searching for someone who is suffering like me or has experienced what I am going through with a possibility of hope to be able to be pain free, Well here goes. About 2 and a half years ago I was…
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Aquired Brain Injuries and Rehabilitation
Have you been to rehab for aquired brain injuries, how are you coping???