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Spinal stenosis & SEL spinal epidural lipamatosis, I'm in so much pain, need people that understand
I have spinal stenosis and also SEL spinal epidural lipamatosis I do know I am overweight but I need people that understand where I am coming from I’m in so much pain.
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Spina Bifida and just had a stroke.
Hello all, I am looking to connect with anyone born with Spina Bifida who's also had a stroke. I had my stroke 2 months ago and I feel like I'm experiencing some after affects that are completely unique and would like to chat to anyone in the same boat. 😊
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Why can't we have nice things? Re: medical negligence discussion
The previous discussion about medical negligence has vanished, I clicked on my notification and it's missing. Interesting timing. I almost never speak on here and now I have, it disappears. Maybe I will just go back to being quiet. That post would have been helpful to so many people, now it's gone. We have all gone through…
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Is anyone on here severely sight impaired (blind)
Hi im Seeking for sight impaired people on here? Anyone
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Is anyone on here hearing impaired? (Totally deaf without Aids)
Above.
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Xbox headsets that work with digital hearing aids?
Above. Over the years I've tried conventional headsets, even though I almost never game online, and they tend not to be compatible with my hearing aids. I've looked into hearing aid specific headsets on the RNIB etc, and they tend to be prohibitively expensive. Can anyone advise? I am aware of Google.
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Baclofen for foot spasms, any natural alternatives?
my adult daughter has recently developed spasms in her right foot which causes her a lot of pain these can last from a few hours to over 48 hours we have been advised to start her on baclofen 3 times daily I am very concerned about the side affects of this medication and would like to try a more natural alternative? Any…
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Medical Records - altered/missing
My GP records are missing heaps of (previously there) attachments and worryingly - An important event - in which I attended the surgery and was sent straight to A&E with "heart failure" in July 2024 is completely missing ! The records are still there in NHS records to a limited extent - so I am copying them all to my PC -…
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Med neg and capacity
Hi - new here 👋 Looking for others who have been through med-neg capacity assessments. Help needed from those with lived experience. Thanks in advance.
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My Lumbar Spinal Stenosis Journey, flare ups?
Hello My Lumbar Spinal Stenosis Journey Hello everyone. I thought I'd share my story in case anyone has had a similar experience. I am a 67-year-old male with Charcot-Marie-Tooth disease (CMT1A), which already causes numbness and weakness in both feet. Because of this, it can sometimes be difficult to distinguish between…
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Tingling in back
Hey guys I have been getting tingling in back iv reduce alchol and got b12 tablets incase thats it? I still seem to be getting it. Its not in the bones feels like skin. Any ideas i go dr tomorrow?
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Hearing aid problems! The NHS won't do anything!
Above. Both my hearing aids are now coming apart most of the time, one of the staff rang the Hallamshire Hospital a couple of weeks ago, they won't see me as an appointment till around this time next year! As is the state of our oh so wonderful National Health Service. Is there any LEGAL way I can force the issue? I cannot…
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1990 — The Year My Body Broke and My Life Changed
I don’t remember the exact moment I collapsed on the night of 24 May 1990. What I remember is the feeling that had been building all day — a kind of internal trembling, as if something inside me was loosening, slipping, preparing to give way. I was twenty‑six, trying to keep up with the demands placed on me: the Civil…
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National Epilepsy Week 2026.
Shout out to all those living with epilepsy and the support network around them.
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Arm useless due to frozen shoulder and fractures
i developed frozen shoulder about 18 months ago. I had just started physio for it then i broke it in multiple places last August. As a result i have lots of fresh titanium there to go with the replacement elbow i got twenty years ago. Sadly I’m the only adult who never liked super hero movies (even as a kid) so i can’t…
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Hi, my name is Michele2020! Lumbar spinal stenosis, feeling lonely
Hello! That may sound happy, but I am anything but. I have suffered from Lumbar Spinal Stenosis since 2022. I have gone from using a cane - to - a walker - to a wheelchair. I have every rotten problem that goes along with Lumbar Spinal Stenosis. Sometimes I am depressed - sometimes I am angry - sometimes I am bitter. But…
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Hi, my name is octo! im wondering what people think of their services...
Hey im wondering what people think of their services in their area around BPD CPTSD AD Manic Depressive disorder Dissociation Disorder
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Anyone obtained supportive expert opinion?
Has anyone obtained a supportive expert opinion in a case involving post-surgical necrosis, delayed treatment, no antibiotics, and later sepsis? What evidence convinced the expert that earlier intervention would have changed the outcome?
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Right ear hearing aid keeps coming apart - No appointments at RHH till next year
Above. A staff member rang the Audiology Dept at Sheffield's Royal Hallamshire Hospital yesterday when I told them about the problem, apparently she was told there were no appointments available till circa this time next year because our oh so wonderful National Health Service is skint! You what?! I am painfully aware the…
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Peripheral neuropathy progressing
Hi. I've had symptoms of peripheral neuropathy since 2011, only in my feet (pain, numbness, and pins and needles). But the last two months the numbness in my feet has increased, and the pins and needles have advanced to my calves. In the last two months I also have a new symptom of burning in my feet and calves. Like a…
