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Giving up on getting better and/or acceptance of disability?
Hi. I have peripheral neuropathy in my feet that started in 2011 and has been getting worse overall and since 2-1/2 years ago I can barely stand or walk. The reason for the neuropathy is due to many different illnesses and treatments of those illnesses. I'm really in a confused state between giving up on getting better and…
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To Wheelchair or not to Wheelchair?
I'm 29 and it's becoming increasingly painful and tiring to stand and walk for long. Last year I started university (very late in life😅) with the help of my rollator. I find myself missing days as I just cant bare standing/walking as much as I need to even with my rollator or my crutches. I keep backtracking and talking…
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CIDP
Hi, I'm iya. i'm here to know other CIDP patients. I need someone who can understand my condition😔
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Hi, my name is Louise_14! Has anyone got advice for dealing with diverticulitis and IBS D?
I've had IBS D for years which I dealt with myself (ignored as much as possible and used loperamide) until it got an awful lot worse a couple of years ago and I eventually managed to get a face to face appointment with a doctor for a proper diagnosis. Turned out I also had a diverticulitis flare up which I didn't know I…
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Possible operations to improve movement /dexterity etc
Hi ,apologies first of all if this is it wrong **** category or already has been discussed. When I was 16 I had a tendon transplant which gave me me more pincher movement between my thumb and index finger. I was told by the surgeon at the time at the time (2001) that any further operations were 50/50 on improvement or could…
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CP and spasticity
I'm 66 and have left sided Hemiplegia. For about the last 10 years I've had increasing problems with weakness/ spasticity on that side of my chest. I call it a 'wraparound' pain. I slump to the left, the pain goes down my neck, under the bust, over the shoulder and up into my head. My chest feels like concrete. I don't…
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Hi, my name is Annie. Has anyone had experience of low dose SSRIs for ACC teenager?
I have a son of 17 with Acc. he is having some unregulated behaviour especially at school where he bangs his head etc. I have asked a doctor about medication before and they suggested a low dose SSRI. I'm starting to consider it. I'd love to hear of other peoples experience of their teenager on SSRI or other meds..
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Kafo talk
I wear a kafo and am getting a new one. I am used to the process but want to talk to another user. There are so many choices to make. Hoping for many replies,
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Really worried
As well as copd on my lungs , I have scaring and a nodule, I think from covid in 2022, I have had ct scans check up. The one in July I had has shown a slight increase. Had to see the consultant yesterday. Soon as I walked in ,he asked have you got cancer in your family which is bad enough to panic , let alone as I am…
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Rheumatoid arthritis strange symptoms
Hi I wonder what unusual symptoms people experience. I have a strange very cold burning sensation along one side of my face snd throat. GP doesn't know what it is but is thinking it's trigeminal neuralgia. I don't think it because I haven't the pain you'd expect. Anyone else have this. I guess ot might not gave anything to…
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Hi,need some advise with my sons afo/splint - alternatives to NHS?
Any advise would be greatly appreciated
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Recommendations and experts for advanced multi level Spandylous
My wife has Advanced multi level Spandylous and is 68, she has neck pain and gets headaches, looking for recomondations and experts in Southampton & Bournmouth and Wincheste area who can help etc.
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diagnosed with a cervical spine condition
Dear Scope Online Community, I am reaching out with a heavy heart but also with hope to share my current health situation and seek advice, support and available resources. Recently, i was diagnosed with a cervical spine condition following persistent neck pain. My MRI report indicated a posterior disc - osteophyte complex…
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Spinal Stenosis
Heading back in to spinal stenosis territory….a successful op 8 years ago,the pain has returned. Had steroid injections which worked in my left leg,but still pain in my right leg.Am due a spinal fusion in 3 months….any help please? Thanks, Joolz.
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Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION)
Hi! My name is Craig. I’m married, 60 years old, and I am living in Florida. I just permanently lost most of the vision in my left eye to Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION), which means my optic nerve no longer works. So far, the right eye is 20/20 for now, but there is now a chance of losing it as…
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Liver trasnplant second hand smoking
I get that non smokers like myself are sensitive to smoke, but I had been wondering why I was constantly feeling unwell because my next door neighbours have been chain smoking on my fence. Vape and cigarette smoke come into my garden and into the house and unless I have all my doors and windows closed during summer, it has…
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Feeling overwhelmed and struggling to think straight
I'm a 38 year old female. Up until about 5 years ago I was fit and healthy- running around after my young kids, starting my own business, studying for a masters degree, taking regular 8 mile walks with my dog, enjoying daily yoga, running, enjoying life as a wife and mother. Then I started getting sick in one way or…
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Every Medication Failed so far
I think my crohns is starting to flare again, as been in quite some discomfort and pain the past week. But I'm without medication as everything has failed so far to work. Over the years I have tried various medications such as Pentasa (didn't work), azathioprine (which damaged my liver), adalimumab (which worked briefly…
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Hi to all
I have had my botox done on friday in hospital i came home Saturday and then Saturday I came out in a massive Red Area where my Spc is and below my Pelvis Also put cream on from doctors and it has not worked at all. Still really red and angry to say the Least the only thing that will clear this up is steroids but doctors…
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Blood Test
This was the result of part of my blood test that I had last Thursday. from medical notes "Serum lipid levels Report, Borderline, Other (qrisk 15% - primary prevention pharmacist please)." No idea what this means - is it bad ? Nothing heard from GP or pharmacist …
