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Newport woman with epilepsy has had 300 job rejections
Since being diagnosed with epilepsy at 13 years old, Sophie Morgan has tried everything to have a "normal" life, from invasive brain surgery to various medications. Now age 28 and despite having graduated from University with an undergraduate and masters degree, Sophie has received hundreds of job rejections. She is open…
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SAR request rejected
I made a SAR request on a hospital that treated me 32 years ago and it was rejected on grounds of time (they claim that my medical records were destroyed in the meantime) This is wrong - records are supposed to be held until 10 years after the patients death - and I am still alive !!
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Hi, my name is Michele2020! Lumbar spinal stenosis, feeling lonely
Hello! That may sound happy, but I am anything but. I have suffered from Lumbar Spinal Stenosis since 2022. I have gone from using a cane - to - a walker - to a wheelchair. I have every rotten problem that goes along with Lumbar Spinal Stenosis. Sometimes I am depressed - sometimes I am angry - sometimes I am bitter. But…
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Prolapse
This is a little embarrasing but I'm fairly certain I've got a prolapse and I'm so scared and worried what will happen. My GP can't see me until the 20th March so I've a long wait ahead but I was wondering if anyone else has had a prolapse and whether things worked out okay in the end? Can things ever be 'normal' down…
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Radio frequency denervation?
Hi, after nerve blocks didn't help me at all my pain doctor suggested radio frequency denervation, she didn't explain much and Google is a scary place, has anyone had this? if so what was your experience? Mine will be L4/L5 both left and right sides.
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Hi, my name is Stroke! Bacflofen affecting urinating
My husband has severe Spasticity He is taking Baclofen and suddenly it is affecting urinating, incontinence and his mind is wondering. Can anyone help
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Sewing machine for a disabled person with dexterity issues?
As most of y'all know, I'm a cosplayer, and I'd like to do alterations/repairs to some of my costumes. If I was to aquire a fairly cheap second hand Sewing machine, would I be able to safely use it due to my manual dexterity issues?
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Stenosis l4 l5 c5 c6
I have stenosis L4 L5 that makes walking difficult, since November I have pain radiating down my left arm, sometimes its like a lightening pain can last around 10 seconds, my shoulder is painful and neck is bad all the time, to the point I cant sleep on my left side, on my mri a year ago it said about a disc bulge in c5/6…
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Luja Female Catheter
Hi Been using Luja for a month or so now with a few issues utis etc, recently I have noticed my bladder is not voiding in one go as it was, I getting worried about this, any idea what I am doing wrong?
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I've just had a letter asking me for a stool sample to see if I'm at risk...
Of Bowel Cancer! And I'm currently worried sick because I can't get hold of my family to discuss it. I realise I turned 50 6 weeks yesterday ago and it's standard for a bloke my age, and there's family history of Cancer on both sides, Grandad died in August 1997, and he was a heavy smoker, and 2 out of 3 of Dad's sisters…
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National Epilepsy Week 2026.
Shout out to all those living with epilepsy and the support network around them.
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How would I get proof of my disabilties?
My Taekwondo Boss wants me to send medical proof of my disabilities to the British Taekwondo Council to support my entry to a Poomsae competition in Barnsley next month. How do I get these documents? They apparently have to be signed off by a registered Doctor/GP who sees me regularly. Can anyone help?
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Hi, I am darkdestiny i just been diagnosised with EDS
Hi everyone, Since August, I have been experiencing extreme pain in my hip, which eventually made it impossible for me to walk, work, or do daily activities. In February 2026, I was diagnosed with HEDS (Hypermobile Ehlers-Danlos Syndrome). Currently, I am seeing a chiropractor to help get my on my feet. I’m really…
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Ehlers-Danlos Syndrome (EDS) & Hypermobility Spectrum Disorders (HSD) Awareness Month
May is EDS & HSD awareness month. What does it mean to me? I had had problems since being a teenager (tho my Mum later told me she'd taken me to our GP when I was about 9; his diagnosis 'growing pains'). I don't think I thought much about the problems I had as they were just a part of me tho my Mum said don't mention these…
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Is there another item i could link to the mobile that works better ?
Hello folks. Im here in search of info as to help with phone calls. I have severe hearing loss and recently suffered a stroke that has affected my balance and appears to have made my hearing or lack of it worse. My main problem is answering phone calls. I have tuned my hearing aids (NHS) into the phone but still struggle…
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Hi, my name is HannahJanuary1! Has anyone had an open Heller Myotomy with thoracotomy?
Hello. I would like to discuss having an open Heller Myotomy with thoracotomy. I am almost two weeks postop.
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Hi, my name is Mother_of_Cats! Invisible disability
Hello everyone, i am someone who is struggling with autoimmune illness (sytemic sclerosis), also diagnosed with fibromyalgia. There are days i almost feel normal again, then i tend to overdo, and there are most days when i struggle with pain, stiffness in my joints, brain fog and exhaustion. When i was diagnosed doctors…
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How was your experience using a secure proof of disability card for discounts?
Been thinking about getting one of those secure proof of disability cards for discounts, but I keep hearing mixed stuff. Some folks say it makes things smoother, others say staff give them weird looks or act confused. I’m kinda tired of carrying piles of paperwork everywhere, and I’d love something simple that doesn’t make…
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Hi, I'm Dingledongle! Has anyone had successful surgery for back issues?
Hello, I am a 67 year old female, who up til 14 months ago used to run several miles daily with weekly long runs, cycle, walk and generally keep active Last march whilst out running the pain in my leg stopped me in my tracks, no warning just instant unbearable pain Long story short it took 10 months before I was given an…
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Worsening Arthritis in Spine (neck)
So back in 2013 after an MRI I was diagnosed with arthritis in my spine (neck) with a bulging disc, narrowing of the (something I can't remember), bone spurs etc. This has caused regular cervicogenic headaches across the right side of my head and down into my eye and jaw, referred pain to my shoulder/arm and mid back which…
