Hi, my name is Kate79! — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, my name is Kate79!

Options
Kate79
Kate79 Community member Posts: 2 Listener
in Start here and say hello!
Hi,
After a long few years, I have just been told that ME/CFS is responsible for my issues. I’m working out how to manage my role as a carer for my son and the diagnosis… it’s nice to have found this community x
· Share on FacebookShare on Twitter

Comments

  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 20,432 Disability Gamechanger
    Options
    Hi @Kate79 Welcome to the Community. It can sometimes take a while to get used to and adjust to a new diagnosis. Do you have any family or friends that could help you with this? Have a look around and join in when you are ready. You might like to start with the Games Lounge or the Coffee Lounge for chats. They are both under Categories. If you have any question please ask. Take care.
    · Share on FacebookShare on Twitter
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
    Options
    Hi @Kate79, welcome to our community :) Sounds like you've had a bit of a difficult time, but at least you have an answer to what is causing the issues?

    About helping with the care needs of your son, we have a section about getting help via Respite Care. You have a legal right to be assessed to see what the local authority can do to help with the carer duties. 
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
    Want to give us feedback? Complete our feedback form now.
    Opinions are my own, such as mashed potato being bad.
    · Share on FacebookShare on Twitter
  • Kate79
    Kate79 Community member Posts: 2 Listener
    Options
    Thank you so much for this. I appreciate it so much. I do have a very supportive family but it’s getting my own head into the space of being the caree rather than the carer. Apparently I am not so good at asking for help! 
    · Share on FacebookShare on Twitter
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
    Options
    @Kate79 I was the same, it can take time and it still doesn't always feel right when I do ask for help. I'm so glad you have found the community <3 Hope you have been keeping well? 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.