Hi, my name is Kate79!

Kate79
Kate79 Online Community Member Posts: 2 Listener
in Start here and say hello!
Hi,
After a long few years, I have just been told that ME/CFS is responsible for my issues. I’m working out how to manage my role as a carer for my son and the diagnosis… it’s nice to have found this community x

Comments

  • Jimm_Scope
    Jimm_Scope Posts: 5,409 Scope Online Community Specialist
    Hi @Kate79, welcome to our community :) Sounds like you've had a bit of a difficult time, but at least you have an answer to what is causing the issues?

    About helping with the care needs of your son, we have a section about getting help via Respite Care. You have a legal right to be assessed to see what the local authority can do to help with the carer duties. 
  • Kate79
    Kate79 Online Community Member Posts: 2 Listener
    Thank you so much for this. I appreciate it so much. I do have a very supportive family but it’s getting my own head into the space of being the caree rather than the carer. Apparently I am not so good at asking for help! 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    @Kate79 I was the same, it can take time and it still doesn't always feel right when I do ask for help. I'm so glad you have found the community <3 Hope you have been keeping well? 

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