If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

DLA Appeal

hazee85hazee85 Member Posts: 2 Listener
edited August 2018 in PIP, DLA and AA
My sons dla renewal was back in May. He is 12 and he has a diagnosis of adhd. He was diagnosed 6 years ago and we claimed dla from then. Still very much managing his condition on a daily basis, he struggles with toiletting issues still and needs additional care to what a “normal” 12 year old would need, both with personal care and when he is out and about in social situations. He can’t go out and play like most of his friends do without supervision. He’s 12 soon to be 13!!!!  They knocked back his dla and payments stopped. I appealed against they’re decision by letter, where I went to to greater detail than I did on the form as advised by citizens advice. I’m just wondering what happens next? I’m furious they’ve stopped his benifit, they stated he didn’t need any additional care or help that a normal 12 year old would need. He soils him self On a regular basis and bed wetting happens most nights, all of which should fit in to the 1 hour bracket for help with personal care!! I still need to help him with his hygiene and personal care each morning and at nights. How is this normal for a 12 year old? I’ve explained to them that he has a diagnosis of adhd which they already know and just because he’s 6 years older than he was when we first applied does not mean his condition has lessened any and he’s able to do it all by himself which is just not true, if anything it has become more challenging for both him and myself. He’s approaching his teanage years and all of the above knocks his confidence which he struggles with anyway. Thanks in advance x


  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @hazee85 Pleased to meet you welcome.

    Thank you for sharing your story. Understand how hard it is.  I do not have an answer. I wanted to welcome you to the community..

    I would add if a member of our team will be in touch. Also some on from our community will advise.

    I know the community is supportive and we are caring and concerned for all our members.

    All I do know many community members who have sons with similar conditions can identify what you are going through.  I would hope that they will be in contact with you. Have a look at our Specific Conditions posts Lots of information and advice from our community

    Wish you the best and hope you get an answer or the support you need.

    Hope that helps for now

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • Richard_ScopeRichard_Scope Posts: 2,731

    Scope community team

    Hi @hazee85

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!  
    If you need anything, just let us know. 

    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @hazee85 and a warm welcome to the community! Thank you for sharing this with us all and I am sorry you are having to go for an appeal. Are you being moved from DLA to PIP?
    You mentioned your sons ADHD, which of course is an important point when appeal. However, the benefit is awarded on how a condition affects daily life (which you have said) and this is what they look at when awarding. It is great that you went to citizens advice and they will have been a massive help. We wish you the very best of luck with the appeal and please do keep us updated!
    You may find the parents and carers, DLA and neurological conditions boards to be particularly useful :)
    Community Partner

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • hazee85hazee85 Member Posts: 2 Listener
    Hi @cloe_scope no not moving to pip. It’s just dla renewal think it’s because it’s been 6 years. Sent the letter last week, so not sure what happens next or how long it will take. Thanks for your advice, much appreciated 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    No problem at all @hazee85! I hope the community is able to answer this for you :)
    Community Partner

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    There's no timescales to decisions, even for a Mandatory Reconsideration. It maybe longer this time of year due to it being holiday time though. Most MR decisions remain the same so don't expect any change at this point. If the decision remains the same then the next step after this is Tribunal. For this you'll need to fill out a form and send the MR decision letter with the form. It can be a very long process. Good luck and hopefully a decision will go in his favour at the MR stage.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
Sign in or join us to comment.