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My experience of a home assessment DLA to PIP

LoolooLindy54LoolooLindy54 Member Posts: 1 Listener
edited November 2018 in PIP, DLA and AA
Hi all
I have had my home assessment today to move from DLA to PIP. I have Multiple Sclerosis and am currently unable to get out of bed with heightened pain and fatigue from a joint bladder and skin infection, making my symptoms and mobility much worse. Mad high Blood pressure systolic readings of over 200 taken four times this morning. My daughter was with me and despite many obstacles was able to record the meeting after signing agreement to their rules to provide two identical copies of the recording which MUST be either on CD or Cassette (how many people would be able to meet that criteria in their homes????)
It is clearly purposely difficult to dissuade people from doing it.
Think the assessor was a bit thrown off and I feel without the recording, there would have been a much more pressing interrogation. As it was I felt completely worn down by this sort of question;  explain to me why are you unable to drive yourself anywhere now, when you drove yourself to the doctors only a month ago?
My reply was a simple question back to him asking if he knew anything about Multiple Sclerosis. Rather agitated he said yes, but I want you tell me so I can understand why your Multiple Sclerosis is any reason for this. 
I was and am baffled. That is how MS works for me, I can’t explain it. I only wish someone would explain that one to me! 
Not sure what the outcome will be but my advice would be to everyone to find a way to record their assessment so and notify in advance of 3 days to ensure compliance. 
The assessor was here for 1 hour 20 mins and I was exhausted when he left with his cd recording. I felt my condition was given no understanding, with questions I could not answer such as why I could do things one day and not the next, other than that this how MS is.
It already feels like an unfair and very judgemental system - the assessor did not ask for my d.o.b or offer to provide his own I.D, breaking their own codes of conduct.
I would love to hear from anyone with a similar experience. 
Very tired newbie. 😢


  • markyboymarkyboy Member Posts: 368 Pioneering
    I don't think the recording will do you any favours the PIP criteria is totally different than DLA as many people who were on lifetime DLA failed to get PIP
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @LoolooLindy54, and a warm welcome to the community!

    Thanks for sharing this with us, and I'm so sorry to hear your assessment was tough. I'm sure many other members here on the community will be able to empathise. Do let us know how you get on: fingers crossed for the outcome you're hoping for. Hope today's as kind as possible to you!
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