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My sons new care package

PhilomenaPhilomena Member Posts: 5 Listener
hi I wrote on this about 2 months ago and I thought everything was sorted with his care he was getting 24 hour care but they came back last week social services and said he would only be getting 5 hours a day we refused they will be coming back tomorrow we are not sure of George’s rights as he can do nothing himself only use his phone or computer which all takes him a lot longer he can pick up small bite size food with his hand but he needs to be feed by carers he needs to be changed throughout the day as he where’s pads and is wheelchair bound not sure what to do now as george wants his independence and doesn’t want to live at home he wants to live in his new flat feeling safe with carers hope you can advise me in what to do .
Phil (George’s Mum)


  • Badgerfreedom60Badgerfreedom60 Member Posts: 26 Connected
    I've had experience of reduced hours when you know they need the full amount available. My grand daughter also wants to move out, her social workers are organising a shared lives household for her, this is great but they will pay someone else to take care of her whilst refusing to help my daughter? I think you have yo keep on requesting more hours, keep writing letters and also get some letters of support, doctor, physio, consultant, scope assessment maybe? Good luck I'm afraid the state are shrinking their care
  • PhilomenaPhilomena Member Posts: 5 Listener
    I’m Making appointment with citizens advice and maybe if I can get scope assessment thanks for the advice.
  • Ami2301Ami2301 Community champion Posts: 6,994 Disability Gamechanger
    Hi @Philomena I am sorry to hear what has been happening, sounds like a stressful time for you. Please keep us updated and let us know if we can be of any further help :)
    Community Champion
    Disability Gamechanger - 2019
  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Hi @Philomena
    It might help you to speak to someone on our helpline, you can call them on 08088003333
    Senior online community officer
  • Badgerfreedom60Badgerfreedom60 Member Posts: 26 Connected
    Good luck Philomena, I understand how exhausting and draining this stuff can be, x
  • ShaziaShazia Member Posts: 5 Listener
    Hi All
    This is my first time. I live in Manchester and I have a NHS Personal Health Budget that covers my care cost. I used to be with a care agency but hated it for years. I then had the opportunity to employ my own PA's which was grate as most of my carers from the agency came with me, until now when a few of them want to leave which is going to leave me seriously understaffed. I asked the budget people for help on recruitment but all they said was advertise which i tried but couldn't get anyone with experience. So i'm really stuck i don't know where to look for experienced carers. i don't want to go back to an agency.                                                                                                                                                                                                                                                              I was hoping if any one has been through this and is able to help. Any advice on where to look for carers/PA ie companies, online registers etc. Or if you know anyone looking for a PA/carers job I will be grateful.
  • Badgerfreedom60Badgerfreedom60 Member Posts: 26 Connected
    Hi Shazia, a previous client of mine has real trouble finding a carer who is committed, sure advertises on Facebook. Good luck.
  • ShaziaShazia Member Posts: 5 Listener
    Hi Badgerfreedom60
    Thanks for the suggestion I will definitely try facebook.
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