Parents, carers and disabled parents
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New Grandparent

Hi,

My Name is Paul, and am about to become a grandparent for the first thing, so am so excited. My Daughter just had her 20 week scan today and was told their is excess fluid on the brain and the child would be born with moderate to severe disabilities.

Needless to say we are all devastated, how can we even register news like this. I honestly don't know what to do..

Paul


Replies

  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi Paul and welcome to the Community.  Congratulations on the upcoming birth of your grandchild.  That is exciting news!  I can appreciate how difficult the news you have received today must be for you and your family though and am sorry to hear of this.  We are here to listen and support you on the Community so please let us know if we can be of further help to you.  The following Scope video links may be of help in this situation:-

    How to process your child’s diagnosis - https://www.youtube.com/watch?v=hRz5qThPneM

    Getting a new diagnosis for your child

    How to avoid feeling overwhelmed - https://www.youtube.com/watch?v=HtFW6sQRX-A

    How to talk about your child’s impairment - https://www.youtube.com/watch?v=bxfGNtU8j08

    How to think positively about the future - https://www.youtube.com/watch?v=-JMi4dWqHwA

    I am sure that some other Community members or the community team will be able to offer advice/support also so please keep in touch and let us know how things are going.  All the best when the baby comes along.  @Ails  :smile:









    Winner of the Scope New Volunteer Award 2019.   :)
  • WendellGeeWendellGee Member Posts: 2 Listener
    Thank you, your support is much appreciated
  • AilsAils Member Posts: 2,268 Disability Gamechanger
    You are very welcome, Paul.  We are here if you need us.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Welcome to the community @WendellGee. It can be really tough to come to terms with any diagnosis. Ails has provided some brilliant advice, but if you need anything else, don't hesitate to ask. :smile:
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Connie00Connie00 Member Posts: 255 Pioneering

    Hello @WendellGee       :) 

     

    Hello My Name is Connie00

     

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community.

     

    Thank you for reaching out to us.  I trust you are having a good day today.

    We are always here to lend support when needed.

    Thank you for sharing you story, of course you are all devasted, how does one process that kind of news, especially when you haven’t met the child, @Ails has given you good advice I cannot add to that.

    But I would say to you when you meet your grandchild for the first time, everything will seem not that important, you will fall in love with them at first glance, the first hold of them, this will make you more protective. And together all of you will work through this. together you will support each other.

     

    If we can be of any further assistance to you please don’t hesitate to contact us

     

    Have a good day

     

     

    @connie00   :) 

     

     

    @connie00   :) 

     


  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Congratulations @WendellGee :)

    Navigate is a national mentoring service that provides emotional support for parents of disabled children, perhaps they would be helpful for you and your family?
    Scope
    Senior online community officer
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