New Grandparent
Hi,
My Name is Paul, and am about to become a grandparent for the first thing, so am so excited. My Daughter just had her 20 week scan today and was told their is excess fluid on the brain and the child would be born with moderate to severe disabilities.
Needless to say we are all devastated, how can we even register news like this. I honestly don't know what to do..
Paul
Comments
-
Hi Paul and welcome to the Community. Congratulations on the upcoming birth of your grandchild. That is exciting news! I can appreciate how difficult the news you have received today must be for you and your family though and am sorry to hear of this. We are here to listen and support you on the Community so please let us know if we can be of further help to you. The following Scope video links may be of help in this situation:-
How to process your child’s diagnosis - https://www.youtube.com/watch?v=hRz5qThPneM
Getting a new diagnosis for your child
How to avoid feeling overwhelmed - https://www.youtube.com/watch?v=HtFW6sQRX-A
How to talk about your child’s impairment - https://www.youtube.com/watch?v=bxfGNtU8j08
How to think positively about the future - https://www.youtube.com/watch?v=-JMi4dWqHwA
I am sure that some other Community members or the community team will be able to offer advice/support also so please keep in touch and let us know how things are going. All the best when the baby comes along. @Ails
Winner of the Scope New Volunteer Award 2019. -
Thank you, your support is much appreciated
-
You are very welcome, Paul. We are here if you need us.Winner of the Scope New Volunteer Award 2019.
-
Welcome to the community @WendellGee. It can be really tough to come to terms with any diagnosis. Ails has provided some brilliant advice, but if you need anything else, don't hesitate to ask.Community Manager
Scope -
Hello @WendellGee :)
Hello My Name is Connie00
I am one off the community Champion’s here at Scope. it’s really nice to meet you.
A very warm welcome to the Community.
Thank you for reaching out to us. I trust you are having a good day today.
We are always here to lend support when needed.
Thank you for sharing you story, of course you are all devasted, how does one process that kind of news, especially when you haven’t met the child, @Ails has given you good advice I cannot add to that.
But I would say to you when you meet your grandchild for the first time, everything will seem not that important, you will fall in love with them at first glance, the first hold of them, this will make you more protective. And together all of you will work through this. together you will support each other.
If we can be of any further assistance to you please don’t hesitate to contact us
Have a good day
-
Congratulations @WendellGee
Navigate is a national mentoring service that provides emotional support for parents of disabled children, perhaps they would be helpful for you and your family?
Scope
Senior online community officer
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions