Autism and Aspergers
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In-patient surgery and reasonable adjustments for people with ASD

FlorineFlorine Member Posts: 43 Connected
edited March 6 in Autism and Aspergers

Hello, everyone.  This is my first trip to this part of the forum.  I "e-know" someone who has a number of complex conditions, including autism, and who needs to go into hospital for an operation, but is struggling to find a hospital - either private or NHS - which is prepared/able to make the necessary reasonable adjustments so that surgery and recovery can take place without the patient's condition deteriorating badly.  The adjustments would need to include low-light surroundings, no noise, a separate room/side room, a parent being able to stay over to supervise and deal with care needs and advocacy, and generally sensitivity of the staff to these needs and to the patient's condition.  But as yet it doesn't seem possible to find a hospital which can guarantee this and ticks all the boxes needed for the surgery.

Has anyone had experience of trying to get reasonable adjustments of this sort made?  Can anyone recommend any organisations etc. which might be able to help with advocacy/negotiating treatment, etc., or even, if the worst comes to the worst, trying to take some sort of legal action or similar to get the hospital to comply?

Many thanks. 

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Replies

  • mikehughescqmikehughescq Member Posts: 6,637 Disability Gamechanger
    At best you will get some of those needs met. You will not, for example, find any hospital which can guarantee quiet. Even with a quiet room they could not do so given the nature of the work being done. I doubt even a private hospital could or would offer any such guarantees. 

    A side room and a parent staying over should be achievable. 

    There are lots of ways to achieve low light and that includes thinking about filtered goggles for example. 

    However, you don’t have a leg to stand on as regards legal action until you choose a specific hospital and ask them to make reasonable adjustments in writing. 
  • FlorineFlorine Member Posts: 43 Connected

    Thanks, Mike.  If I've understood correctly, the last part of that has already happened, some time ago.

    So, has nobody had any similar problems to the ones I was describing, when trying to get in-patient treatment at a hospital?

  • OverlyAnxiousOverlyAnxious Member Posts: 1,443 Disability Gamechanger
    Florine said:

    So, has nobody had any similar problems to the ones I was describing, when trying to get in-patient treatment at a hospital?

    Not quite the same but I've had similar problems trying to get dental work done.  Even the specific clinic for vulnerable patients couldn't meet my needs.  I'm still stuck with the problems and don't see any way to have the treatment.  I also need a couple of minor ops (non-urgent) but again would have no chance in a hospital environment so am just stuck at the moment.

    I've been watching this thread with interest but sadly I think there are only a limited amount of adjustments which could be made.  Normal people, including health professionals, just don't seem to understand that we're not just being awkward and one bad event can cause months or even years worth of consequences.  We don't want to be causing all the hassle to them either and feel guilty for even asking.
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