Hi, my name is ezzy!

ezzywilson

Hi my name is Ezzy! I have EDS and very little support around me. Sometimes I just want someone to understand how much I have no control over. Things like this scare me but I'm trying to be open.

janer1967

Hi and welcome to the community Feel free to join in or ask any questions 

We have other members with the same condition who hopefully will be able to help you

Ross_Alumni

Hi @ezzy and welcome to the community, good to see you join us. 

You've done great in speaking about hwo you feel, sometimes it can help to get it off your chest and have conversations with people so I'm glad you've taken this step. 

You said you have little support around you at the moment, are you just referring to people outside of your GP or health professional? I do hope you are receiving all the support you need to manage your EDS from those health professionals.

I'm sure being on the community will benefit you, this is a very supportive and welcoming place.

Ami2301

Welcome to the community @ezzywilson

Tori_Scope

Welcome to the community from me too @ezzywilson Have you had a chance to take a look around yet? There's no pressure, but please just give us a shout if you need anything. 

You might like to start by taking a look at our list of the most recent discussions on the community, or by viewing the list of categories of discussion we have here.

chiarieds

Hi @ezzywilson - & welcome to this friendly & supportive community. I also have EDS (the hypermobile type), as do my children & grandchildren. There are quite a few of us with EDS in the community, so you will find myself, & others will have some understanding. Very nice to 'meet' you.