Hi, my name is ezzy! — Scope | Disability forum
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Hi, my name is ezzy!

ezzywilson
ezzywilson Member Posts: 1 Listener
Hi my name is Ezzy! I have EDS and very little support around me. Sometimes I just want someone to understand how much I have no control over. Things like this scare me but I'm trying to be open.

Comments

  • janer1967
    janer1967 Member Posts: 16,509 Disability Gamechanger
    Hi and welcome to the community Feel free to join in or ask any questions 

    We have other members with the same condition who hopefully will be able to help you
  • Ross_Scope
    Ross_Scope Posts: 7,507 Scope online community team
    Hi @ezzy and welcome to the community, good to see you join us. 

    You've done great in speaking about hwo you feel, sometimes it can help to get it off your chest and have conversations with people so I'm glad you've taken this step. 

    You said you have little support around you at the moment, are you just referring to people outside of your GP or health professional? I do hope you are receiving all the support you need to manage your EDS from those health professionals.

    I'm sure being on the community will benefit you, this is a very supportive and welcoming place.
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  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Welcome to the community @ezzywilson :)
    Disability Gamechanger - 2019
  • Tori_Scope
    Tori_Scope Posts: 9,682 Scope online community team
    Welcome to the community from me too @ezzywilson :) Have you had a chance to take a look around yet? There's no pressure, but please just give us a shout if you need anything. 

    You might like to start by taking a look at our list of the most recent discussions on the community, or by viewing the list of categories of discussion we have here.
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  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    Hi @ezzywilson - & welcome to this friendly & supportive community. I also have EDS (the hypermobile type), as do my children & grandchildren. There are quite a few of us with EDS in the community, so you will find myself, & others will have some understanding. Very nice to 'meet' you. :)

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