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Do you have cerebral palsy?
Did you know that exercise is vital for cerebral palsy? Just like a car needs fuel (or electric!), if a car hasn’t got any fuel, it simply won’t start! Or if it has limited fuel, it simply won’t get very far! Cerebral palsy is a neurological condition, but it is also known as a motor disorder affecting movement! So the…
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Launch of new national council to shape wheelchair provision
Wheelchair users in the UK are being invited to join The Wheelchair Collective – the first national council of wheelchair users. Led by the Wheelchair Alliance, the initiative will give wheelchair users with lived experience the power to influence how wheelchair services are designed, delivered and improved. Backed by…
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Kerry Evans on transforming accessibility at Wrexham AFC
In 2021, Kerry Evans’ dream became reality when Ryan Reynolds and Rob McElhenney invited her to join Wrexham AFC as a full-time employee. Today, she’s helping raise the bar for accessibility in football. Kerry will be speaking at Naidex on 25-26 March 2026 at the NEC Birmingham. Read the full story
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Opportunities to Try a New Sport in 2026. Disability Sports Wales
Opportunities to try a sporting activity are limited for me. Contacting a group and telling them I have Cerebral Palsy makes it difficult for sporting groups and gyms to find a way to adapt their services for a disabled person. I want to try something new in 2026 and have found Disability Sports Wales are hosting three…
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London to host major exhibition celebrating the work of disabled artists
A major international exhibition marking the 70th anniversary of the disabled artists movement is to be held in London in the spring, The Standard reports. The event, called 'Defying Limits, Defining Art: 70 Years of the Mouth and Foot Painting Artists', will give visitors a rare opportunity to meet some of the world’s…
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‘You just feel so light!’: two wheelchair users – one 81, one 25.
‘You just feel so light!’: two wheelchair users – one 81, one 25 – on welfare cuts, housing and the joy of swimming – The Guardian A lot has changed for people with disabilities since the 1950s, when the then seven-year-old Alice Moira was given her first wheelchair – not least the fact that it was made of wood and she…
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'I'm just a disabled kid but I could change the law'
A 17-year-old boy with cerebral palsy said it was a "surreal moment" to have his petition on fire safety debated in Parliament. Lucas has been campaigning for evacuation chairs to be compulsory in schools after being left "petrified" on his own in his wheelchair in an upstairs room when a fire broke out. His experience at…
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Extra Help at School in Wales. Individual Development Plans
A new education law came into force in Wales on 1 September 2021. The Additional Learning Needs and Education Tribunal (Wales) Act 2018 changes how children and young people aged 0-25 years with additional learning needs (ALN) will have their needs assessed, planned and monitored. These changes have been gradually…
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What to do when you receive your draft EHC plan
What to do when you receive your draft EHC plan If your local authority decides to issue your child with an EHC plan following an EHC needs assessment, the first step is for your local authority to send you a draft version. This is an opportunity for you to check whether the draft EHC plan contains everything it should…
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Increasing arthritis pain
How to cope with ever increasing arthritis pain
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Three-year outcomes of repeated botulinum neurotoxin in Children
This study aimed to evaluate the effectiveness of repeated botulinum neurotoxin A (BoNT-A) injections on gross motor function over 3 years in ambulant children with spastic cerebral palsy (CP). Results indicated that repeated BoNT-A injections over 3 years were not associated with improvements in gross motor function or…
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Weight Issues in People with Cerebral Palsy: Understanding Sarcopenia
By Stephen A. Dantzig, Psy. D., Education and Outreach Program Manager, United Cerebral Palsy Association of Hawai’i Weight concerns are a significant public health issue in the United States. The Centres for Disease Control and Prevention reports that from 2017-2020, 41.9% of adults were living with obesity, and 9.2% with…
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Anyone been to the Peto Institute?
Hi I was looking to get advise from anyone who has taken their child/grandchild to the Peto Institute in Hungary? My grandson has cerebral palsy diplegia and I’m looking to do the best for the poor little sole, hopefully to help him walk.
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Rosie Jones says she carried ‘a lot of guilt’ in her twenties
Holly Bishop | Wednesday 26 November 2025 08:26 GMT Rosie Jones has shared a message to ableists as she reflects on her personal journey of learning to own her disability. Appearing on Katherine Ryan’s What’s My Age Again? podcast on Monday (24 November), the 35-year-old comedian said she “carried a lot of guilt” during…
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MyCP Webinar: Inside the Making of the First Adult CP Toolkit
This webinar from the U.S. features CP Research Network co-founder Michele Shusterman and Mary Gannotti, PhD, Jensiné Clark, MD, and Cristina Sarmiento, MD, four leaders from the CP Research Network, discussing the creation of the Adult CP Toolkit—the first comprehensive, evidence-based health and wellbeing resource…
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CP Network Wales winter meetings moved online. Please join us In One Month.
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
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Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
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So happy to have joined the CP Network Meeting ..... First Time
Thank you for having me on the zoom call meeting, at first i felt very nervouse to speak to everyone so decided to message in the chat and it helped me feel less nervouse and included and made me laugh smile and be more happy, so tank you and i will definately be joinging more.
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Interview with Zach Eagling. Pride of Britain Winner 2025
Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…
