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Cerebral Palsy and Stigma Study with the University of Surrey
The study has now been published in an academic paper, and I wanted to again express my thanks for all the support that you gave with the project. You have all been thanked in the acknowledgements for the project, as we couldn't have done it without you. Description of study A University of Surrey researcher and 2 adults…
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CP - orthotics
Hi there My son who is almost 4, has cerebral palsy. His left leg is mainly impacted. He’s been referred to orthotics for a splint but this is taking a long time. Has anyone got experience of this and whether the splint helped, or whether anyone has gone private and what their experience has been, Many thanks
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Mother Heartbroken Over Parks Poor Accessibility.
A mum says she is "angry, upset and heartbroken" over the opening of a new play park that does not cater for her daughter's disabilities, despite it being described as an "accessible space." Rebecca said there "wasn't anything" her two-year-old daughter Hannah, who has cerebral palsy and is non-mobile, non-verbal and…
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Get involved in a new physiotherapy game!
We have an exciting opportunity! Please see below to get involved! Hello! We're Aaruni and Pranathi. We made Plia Therapy. It's a digital platform for children with neurological conditions like cerebral palsy. We use games and Augmented Reality to make exercises fun. Our AI personalises these exercises for each child. They…
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CP Sport's National Athletics and Activity Day!
With just over a week to go, we are so excited to see you all. We have 102 athletes competing this year! Plus, we have a host of other activities and sporting partners attending the day. If you haven't booked onto the free activities yet, please scan and book below or visit our website. With just over a week to go, we are…
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Hi, my name is carolynwillis! son having botox in wrist for the first time and not sure what expect
My son has cerebral palsy with a left hemiplegia . He is now 20 years old . He is starting a supported internship at his local college . His love in life is cricket playing ,watching and coaching .As his mother often joke that I'm his personal assistant but joking aside I do help with things such as PIP and universal…
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'I'm the voice for Wrexham fans with a disability'
Charlie Buckland Source from BBC News Behind the newfound glitz and glamour of Wrexham AFC, people like Kerry Evans have acted as a pillar throughout the transition. Previously not even a football fan, she now makes sure no-one gets left behind as the club's disability liaison officer, and is also familiar face on the…
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Dad with cerebral palsy shares parenting hacks
From BBC News Vic Minett BBC Radio CWR. Tanya Gupta BBC News, West Midlands A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share "laughs, hacks and life". Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos…
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Mounjaro
Suggested by a senior staff nurse I would benefit by going onto Mounjaro due to me being obese and being a diabetic. Clinician I spoke to gave me the impression I would not be able to. If this is the case, do I have any redress?
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Creative Pathways is back for 2025!
Creative Pathways is back!! In association with Scope and The Rosie Jones Foundation. 28 & 29 August @ Here East, London. FREE!!! We’re back with another amazing lineup of creative professionals to move and inspire you!! Including the incredible Rosie Jones! If you’re between 11-19 (secondary & above) and have cerebral…
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Welsh Disability Rights Plan Risks Failure
The Disabled People's Right Plan, aims to give people more rights across a range of areas in Wales. Key parts of the Welsh government's flagship plan to improve disabled people's rights need to be rewritten, according to the equalities watchdog. Read the story here: BBC Wales Disability Rights Plan
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Mild CP
My 2 year old has recently been diagnosed with mild CP. It causes her left arm and leg to be stiff but she can use them both. She has OT assessment tomorrow and physio assessment on Tuesday. She was born at 24 weeks and had 3 surgeries so far, so she’s already been through so much. Can anyone give me a sense of what’s to…
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🌟 Attention Parents of children with cerebral palsy! 🌟
You have asked, and we have provided! Join our session on Education, Health, and Care plans (EHCPs). Connect through our live Zoom session with SEND specialists IPSEA. They will share general advice about EHCPs. 📅 Thursday, 18 September ⏰ 11:30am until 1pm 🚨 Limited spaces available Very limited spaces available - book…
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Is there any dentist that does specialise working with cerebral palsy patients
Hello I got cerebral palsy and I got 2 teeth from each side of the upper jaw missing and I want them replace with them I was wondering what eere my options, I don’t know if bridges would work or dentures work due my disability can you advise me or is my options implants ? Thank you very much Kinds regards
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Accessing botox
Hi! I have mild diplegic cerebral palsy. I had botox injections once as a child (now in my late 20s) but since then I have had no treatment/physio/consults etc so don't really know where to start with accessing support or treatment. I've been reading about Botox again and would like to explore this option and/or physio. I…
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Calling All Adults Living with CP in the Island of Ireland!
The team at the Royal College of Surgeons in Ireland (Dublin) are conducting a research study to deliver and evaluate an online exercise programme designed for adults with cerebral palsy (CP). They are inviting adults with CP to take part in this study. Participants will be randomly assigned to one of two groups. The first…
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Experience of Tizanidine vs Baclofen
Background: When i was a child i used to take delicious sugary like raspberry but no raspberries in it bacolfen. Transitioned to boring tablets and then off everything but recently increasing stiffness. Did a brief search and obviously increasing physical activity is a must (got appointment next week), but does any have…
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Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
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UK's first disabled strongman launches mission
From BBC News Alexandra Bassingham BBC News, West of England Claire Carter BBC Radio Somerset The UK's first disabled strongman is fundraising to secure the future of a national event for strongmen and strongwomen. Gary Clarke, 48, from Chard, Somerset, is a key organiser for the British Disabled Strongman Competition,…
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Anniversary of Stoke Mandeville Games-Paralympic Movement. Disability Pride 2025
The Paralympic movement at Stoke Mandeville is celebrating its 77th anniversary today. The first Stoke Mandeville Games were held on July 29, 1948. These games, organized by Ludwig Guttman are recognized as the precursor to the modern Paralympic Games. The anniversary will be marked by various events, including…
